Health System Encounters after Loss to Cardiology Follow-Up Among Patients with Congenital Heart Disease

• Published in: The Journal of pediatrics Vol. 268; p. 113931
• Main Authors: Wright, Brandon, Fassler, Carly, Tumin, Dmitry, Sarno, Lauren A.
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.05.2024
• Subjects: Adolescent; Cardiology; Child; Child, Preschool; Emergency Service, Hospital - statistics & numerical data; Female; Follow-Up Studies; health encounters after loss to follow-up; Heart Defects, Congenital - therapy; Humans; Infant; Lost to Follow-Up; Male; Primary Health Care - statistics & numerical data; Retrospective Studies; HENT; health encounters after loss to follow-up; EMR; ECU; CHD; ED
• ISSN: 0022-3476; 1097-6833
• DOI: 10.1016/j.jpeds.2024.113931

To analyze receipt of care at other locations within a single rural academic health system after loss to follow-up in a cardiology clinic. Patients with congenital heart defects seen in the clinic during 2018 and subsequently lost to cardiology follow-up were included in the study. We defined loss to follow-up as not being seen in the clinic for at least 6 months past the most recently recommended follow-up visit. Subsequent visits to other locations, including other subspecialty clinics, primary care clinics, the emergency department, and the hospital, were tracked through 2020. Of 235 patients (median age 7 years, 136/99 female/male), 96 (41%) were seen elsewhere in the health system. Of 96 patients with any follow-up, 40 were seen by a primary care provider and 46 by another specialist; 44 were seen in the emergency department and 12 more were hospitalized. Patients with medical comorbidities or Medicaid insurance and those living closer to the clinic were more likely to continue receiving care within the same health system. Patients with congenital heart defect are frequently lost to cardiology follow-up. Our study supports collaboration across specialties and between cardiology clinics and affiliated emergency departments to identify patients with congenital heart defect who have been lost to cardiology follow-up but remain within the health system. A combination of in-person and remote outreach to these patients may help them continue cardiology care.