“You always think the worst …” Family members' experiences during the COVID-19 emergency: A qualitative descriptive study

• Published in: Australian critical care Vol. 37; no. 4; pp. 659 - 666
• Main Authors: Steiner, Laura Maria, Tolotti, Angela, Valcarenghi, Dario, Balice-Bourgois, Colette, Luca, Corina Elena, Villa, Michele, Liptrott, Sarah Jayne, Biegger, Annette, Bonetti, Loris
• Format: Journal Article
• Language: English
• Published: Australia Elsevier Ltd 01.07.2024
• Subjects: Adaptation, Psychological; Adult; Aged; COVID-19 - psychology; COVID-19 pandemic; Experience; Family - psychology; Family members; Female; Humans; Intensive Care Units; Interviews as Topic; Male; Middle Aged; Pandemics; Patient; Qualitative Research; SARS-CoV-2; Switzerland; Thematic analysis; Switzerland; Qualitative research; COVID-19 pandemic; Patient; Experience; Thematic analysis; Family members
• ISSN: 1036-7314; 1878-1721
• DOI: 10.1016/j.aucc.2023.12.001

The aim of this study was to explore the experiences of family members of patients admitted to the intensive care unit (ICU) for COVID-19 during the first and second waves of the pandemic in Switzerland. A qualitative descriptive approach was used in this study. Face-to-face in-depth semistructured interviews were used to explore the experiences of family members of surviving COVID-19 patients, who were admitted to the ICU. Interviews were transcribed verbatim and wereanalysed using Braun and Clarke thematic analysis. In our context, family visits were prohibited during the first and second waves of the pandemic. Fifteen family members participated. Interviews were conducted between October 2020 and March 2021. Data analysis identified three main themes: (i) becoming a pillar of support for all; (ii) dealing with uncertainty; and (iii) a trajectory of emotions. Five subthemes are reported within these themes. The primary concern was the need for information due to visitation restrictions. This led to stress as many became the main communication source for other family members and friends. Coping strategies to support the ongoing uncertainty included daily routines, work, and prayer. The inability to visit and the lack of information led to a range of conflicting emotions, such as feeling of helplessness, which were countered by the gratitude that their loved ones had survived. This study highlights the profound impact of the COVID-19 pandemic on the family members of ICU patients. It emphasises their struggle for information, adaptation to new roles, and coping mechanisms amidst uncertainty. Although they experienced predominantly negative emotions, the recovery and return of their loved ones triggered a sense of gratitude. This study sheds light on the crucial role of social support. Such findings may have implications for nursing practice in effectively addressing the concerns and priorities of family members in similar emergency situations, thereby improving clinical outcomes.