Blurring lines The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects

Companies that offer direct‐to‐consumer genetic testing and conduct research are blurring the line between customers and research subjects. Should these companies adhere to the same ethical regulations as academic researchers?

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Bibliographic Details
Published inEMBO reports Vol. 11; no. 8; pp. 579 - 582
Main Authors Howard, Heidi C, Borry, Pascal, Knoppers, Bartha Maria
Format Journal Article
LanguageEnglish
Published London Nature Publishing Group UK 01.08.2010
Subjects
EMBO47
EMBO49
Genetic Privacy
Genetic Testing - economics
Genetic Testing - ethics
Humans
Marketing
Outlook
Research - economics
Research Subjects
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Summary:Companies that offer direct‐to‐consumer genetic testing and conduct research are blurring the line between customers and research subjects. Should these companies adhere to the same ethical regulations as academic researchers?
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ISSN:1469-221X
1469-3178
1469-3178
DOI:10.1038/embor.2010.105