Application of the community dialogues method to identify ethical values and priorities related to pharmacogenomics

• Published in: Pharmacogenomics Vol. 22; no. 11; pp. 693 - 701
• Main Authors: Determeyer, Peggy, Crowder, Jerome, O'Mahony, Eimear, Esquivel, Bernard, Atwal, Herjot, Atwal, Paldeep S, Rogers, Sara L
• Format: Journal Article
• Language: English
• Published: England Future Medicine Ltd 01.07.2021
• Subjects: Bioethical Issues - standards; bioethics; community dialogues; Focus Groups - standards; Health Literacy - ethics; Health Literacy - standards; Humans; patient-centered outcomes research; personalized medicine; Pharmacogenetics - ethics; Pharmacogenetics - standards; pharmacogenetics testing; Pharmacogenomic Testing - ethics; Pharmacogenomic Testing - standards; pharmacogenomics; precision medicine; Precision Medicine - ethics; Precision Medicine - standards; values; pharmacogenetics testing; community dialogues; pharmacogenomics; bioethics; values; precision medicine; patient-centered outcomes research; personalized medicine
• ISSN: 1462-2416; 1744-8042
• DOI: 10.2217/pgs-2021-0017

Given the expansion of genetics in medicine, there is a growing need to develop approaches to engage patients in understanding how genetics affects their health. Various qualitative methods have been applied to gain a deeper understanding of patient perspectives in topics related to genetics. Community dialogues (CD) are a bi-directional research method that invites community members to discuss a pertinent, challenging topic over the course of a multi-week period and the community members openly discuss their positions on the topic. Authors discuss the first application of the CD method to the topic of pharmacogenetics testing. Additional CD are needed to engage diverse participant populations on this topic to improve genetics literacy, enhance physician engagement and drive policy change.