Reliability and Acceptability to Caregivers of Telehealth Administration of the Pediatric Evaluation of Disability Inventory - Computer Adaptive Test (PEDI-CAT) for Brazilian Youth with Down Syndrome

• Published in: Physiotherapy Canada Vol. 76; no. 1; pp. 104 - 108
• Main Authors: Castilho, Julia de Souza, Barbosa, Raiane Marques Furtado, Ayupe, Kênnea Martins Almeida, Defilipo, Érica Cesário, Chagas, Paula Silva de Carvalho
• Format: Journal Article
• Language: English
• Published: Canada 01.02.2024
• Subjects: assessment; psychometric properties; Down syndrome; disability evaluation; telehealth
• ISSN: 0300-0508; 1708-8313
• DOI: 10.3138/ptc-2021-0110

To estimate test-retest reliability of the two versions of the PEDI-CAT administered via telehealth to caregivers of Brazilian young people with DS, to compare scores on the two versions, and to determine caregiver acceptance of telehealth administration of the assessment. A methodological study approved by the research ethics committee. Data collection was performed online, with a mean duration of 45.0 minutes for the content-balanced version of the PEDI-CAT and 17.5 minutes for the speedy version. In total, 28 caregivers of individuals with DS up to age 21 years participated (mean = 5.9 years; SD = 4.9 years). Intra-class correlation coefficients for the four domains of the PEDI-CAT content-balanced version and four domains of the PEDI-CAT speedy version ranged from 0.77 to 0.97. There was a statistical difference between the versions in the scores of the social-cognitive domain < 0.05). A mean of 105 items (SD = 21) was administered in the content-balanced version and a mean of 51 items (SD = 8) in the speedy version. All the caregivers found the method of administration of the PEDI-CAT acceptable. This study demonstrated that either version of the Brazilian version of the PEDI-CAT can be used by telehealth in clinical practice to assess children, adolescents, and young adults with DS.