Burden of Care, Depression, and Anxiety Among Family Caregivers of People With Dementia

• Published in: Journal of primary care & community health Vol. 15; p. 21501319241288029
• Main Authors: Abdelhalim, Doaa S, Ahmed, Marwa M, Hussein, Hoda A, Khalaf, Ola O, Sarhan, Mai D
• Format: Journal Article
• Language: English
• Published: United States SAGE Publishing 01.01.2024
• Subjects: Adult; Aged; Anxiety - epidemiology; Caregiver Burden - psychology; Caregivers - psychology; Cost of Illness; Cross-Sectional Studies; Dementia; Depression - epidemiology; Egypt; Female; Humans; Male; Middle Aged; Surveys and Questionnaires; Egypt; anxiety; caregivers; dementia; depression; burden
• ISSN: 2150-1319; 2150-1327; 2150-1327
• DOI: 10.1177/21501319241288029

There are many challenges that entail caring for an individual with dementia, affecting not only the individual with the condition but also their caregivers. This can lead to increased burden, frustration, and depression among those taking care of them. A research gap exists concerning the care of people with dementia in Egypt, particularly regarding the mental health of caregivers. Limited studies have been conducted in Egypt, particularly focusing on the mental health of caregivers. This lack highlights the need to understand the prevalence and impact of caregiver burden in this population. The research aimed to evaluate the burden of dementia, levels of depression, and anxiety among family caregivers of individuals with dementia. A cross-sectional study was conducted at a geriatric unit clinic of a psychiatric hospital in Cairo University, Egypt. Caregiver burden, anxiety, and depression were assessed using questionnaires. These questionnaires included the Zarit Burden Interview (ZBI), Generalized Anxiety Disorder scale (GAD-7), and Patient Health Questionnaire-9 (PHQ-9), together with demographic data on the patients and caregivers. The majority of the 141 participants (73% (n = 103)) were female, mostly daughters, with an average age of 40 years. Approximately 50% (n = 71) of the subjects exhibited mild to moderate burden, whereas 30% (n = 43) showed moderate to severe burden. About 31% (n = 44) of the subjects exhibited symptoms of moderate depression, whereas 9% (n = 13) had symptoms of severe depression. Furthermore, almost 43% (n = 60) of caregivers exhibited a moderate level of anxiety. Furthermore, a significant association was seen between caregiver burden and the presence of anxiety and depression. This study showed a substantial burden in providing care, elevated levels of despair, and anxiety among caregivers of PWD. The findings highlight how important it is to develop targeted therapies and support systems in order to lessen the load on caregivers, advance their mental health, and improve overall care for both caregivers and their patients in Egypt. Policy-makers should prioritize investing in dementia-related support systems and services to empower caregivers and improve the quality of life for both caregivers and their patients.