A Narrative Review of Multiinstitutional Data Registries of Pediatric Congenital Heart Disease in Pediatric Cardiac Anesthesia and Critical Care Medicine

Congenital heart disease (CHD) is one of the most common birth anomalies. While the care of children with CHD has improved over recent decades, children with CHD who undergo general anesthesia remain at increased risk for morbidity and mortality. Electronic health record systems have enabled institu...

Full description

Saved in:
Bibliographic Details
Published inJournal of cardiothoracic and vascular anesthesia Vol. 37; no. 3; pp. 461 - 470
Main Authors Desai, Krupa D., Yuan, Ian, Padiyath, Asif, Goldsmith, Michael P., Tsui, Fu-Chiang, Pratap, Jayant Nick, Nelson, Olivia, Simpao, Allan F.
Format Journal Article
LanguageEnglish
Published United States Elsevier Inc 01.03.2023
Subjects
Online AccessGet full text

Cover

Loading…
Abstract Congenital heart disease (CHD) is one of the most common birth anomalies. While the care of children with CHD has improved over recent decades, children with CHD who undergo general anesthesia remain at increased risk for morbidity and mortality. Electronic health record systems have enabled institutions to combine data on the management and outcomes of children with CHD in multicenter registries. The application of descriptive analytics methods to these data can improve clinicians’ understanding and care of children with CHD. This narrative review covers efforts to leverage multicenter data registries relevant to pediatric cardiac anesthesia and critical care to improve the care of children with CHD.
AbstractList Congenital heart disease (CHD) is one of the most common birth anomalies. While the care of children with CHD has improved over recent decades, children with CHD who undergo general anesthesia remain at increased risk for morbidity and mortality. Electronic health record systems have enabled institutions to combine data on the management and outcomes of children with CHD in multicenter registries. The application of descriptive analytics methods to these data can improve clinicians' understanding and care of children with CHD. This narrative review covers efforts to leverage multicenter data registries relevant to pediatric cardiac anesthesia and critical care to improve the care of children with CHD.
Author Desai, Krupa D.
Nelson, Olivia
Simpao, Allan F.
Padiyath, Asif
Pratap, Jayant Nick
Yuan, Ian
Goldsmith, Michael P.
Tsui, Fu-Chiang
Author_xml – sequence: 1
  givenname: Krupa D.
  surname: Desai
  fullname: Desai, Krupa D.
  organization: Department of Anesthesiology, Perioperative Care, and Pain Medicine at NYU Grossman School of Medicine, NYU Langone Health, New York, NY
– sequence: 2
  givenname: Ian
  surname: Yuan
  fullname: Yuan, Ian
  organization: Department of Anesthesiology and Critical Care Medicine, Children's Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
– sequence: 3
  givenname: Asif
  surname: Padiyath
  fullname: Padiyath, Asif
  organization: Department of Anesthesiology and Critical Care Medicine, Children's Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
– sequence: 4
  givenname: Michael P.
  surname: Goldsmith
  fullname: Goldsmith, Michael P.
  organization: Department of Anesthesiology and Critical Care Medicine, Children's Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
– sequence: 5
  givenname: Fu-Chiang
  surname: Tsui
  fullname: Tsui, Fu-Chiang
  organization: Department of Anesthesiology and Critical Care Medicine, Children's Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
– sequence: 6
  givenname: Jayant Nick
  surname: Pratap
  fullname: Pratap, Jayant Nick
  organization: Department of Anesthesiology and Critical Care Medicine, Children's Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
– sequence: 7
  givenname: Olivia
  surname: Nelson
  fullname: Nelson, Olivia
  organization: Department of Anesthesiology and Critical Care Medicine, Children's Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
– sequence: 8
  givenname: Allan F.
  orcidid: 0000-0001-8871-2579
  surname: Simpao
  fullname: Simpao, Allan F.
  email: simpaoa@email.chop.edu
  organization: Department of Anesthesiology and Critical Care Medicine, Children's Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine, Philadelphia, PA
BackLink https://www.ncbi.nlm.nih.gov/pubmed/36529633$$D View this record in MEDLINE/PubMed
BookMark eNp9kc9u1DAQxi1URP_AC3BAPnJJsJ3ESSQuqy20lVpACM6WY0_KrLJOsZ1FPApvy0RbECdOHmt-36eZ-c7ZSZgDMPZSilKKpnqzK3cHZ0sllCqlLEVVP2FnsqlU0dVKnVBNVCHaVpyy85R2QkjZNO0zdlrpRvW6qs7Yrw3_YGO0GQ_AP8MB4QefR363TBkxpIx5yTgHO_FLmy0R95hyREgr9Qk8Wvo5vp3DPQTMxF2DjZlfYgKbgGP4l7KRSsc3AVL-Bgktt8HzbcSMjqTUB35HuMMAz9nT0U4JXjy-F-zr-3dfttfF7cerm-3mtnCq07mwXiolXDfWI3gnx9Y537di1FLpWvdeDTX0ehB6WHuddbXyQ9vpSvZdPYy6umCvj74Pcf6-0GBmj8nBNNkA85KMapumE4J4QtURdXFOKcJoHiLubfxppDDrsc3OrJGYNRIjpaFISPTq0X8Z9uD_Sv5kQMDbIwC0JQUQTXIIwdEdIrhs_Iz_8_8NbiKhBA
CitedBy_id crossref_primary_10_1111_pan_14775
Cites_doi 10.1016/j.athoracsur.2021.09.063
10.1056/NEJMp1114866
10.1161/CIRCULATIONAHA.115.019506
10.1161/JAHA.121.020730
10.1001/jama.2015.10166
10.1053/j.jvca.2022.05.030
10.1016/j.amjcard.2006.10.054
10.1053/j.jvca.2019.06.009
10.1093/bja/aex158
10.1007/s00246-022-02837-9
10.1097/01.PCC.0000200964.88206.B0
10.1111/anae.12537
10.1161/JAHA.119.013151
10.1097/00000542-200702000-00009
10.1016/j.athoracsur.2009.06.074
10.1007/s00246-021-02621-1
10.1016/j.jacc.2020.05.025
10.1213/01.ane.0000278632.22988.d7
10.1097/PCC.0000000000000159
10.1053/j.pcsu.2010.02.004
10.1007/s00246-015-1319-x
10.1016/j.athoracsur.2018.04.088
10.1016/j.ahj.2007.11.003
10.1177/2150135114526420
10.1016/j.athoracsur.2017.06.028
10.1177/2150135112461924
10.1161/CIRCULATIONAHA.116.026778
10.1016/j.jtcvs.2010.09.004
10.1016/j.athoracsur.2016.08.081
10.1016/j.jacc.2014.09.045
10.1097/CCM.0b013e3181bc8293
10.1213/ANE.0000000000003594
10.1017/S1047951115001833
10.1016/j.ahj.2016.01.013
10.1017/S1047951116001189
10.1017/S1047951115000967
10.1016/j.amjcard.2021.05.048
10.1017/S1047951116001736
10.1001/jama.2015.90
10.1213/ANE.0000000000001448
10.1016/j.athoracsur.2021.10.002
10.1016/j.athoracsur.2015.07.042
10.1213/ANE.0000000000001314
10.1038/s41598-020-62971-3
10.1016/j.athoracsur.2011.06.008
10.1016/j.jtcvs.2013.07.044
10.1016/j.jacc.2015.11.057
10.1177/2150135116681730
10.1007/s10916-014-0045-x
10.1016/j.ijcard.2021.05.007
10.1177/2150135119884911
10.1053/j.jvca.2017.06.027
10.1016/S0140-6736(11)61621-8
10.1016/j.athoracsur.2018.09.024
10.1053/j.jvca.2022.07.014
10.1097/MOP.0000000000000263
10.1093/bja/aet164
10.1161/JAHA.113.000256
10.1111/chd.12742
10.1097/PCC.0000000000000498
10.1017/S1047951116001268
10.1007/s00246-021-02763-2
10.1542/peds.2011-1188
10.1213/ANE.0000000000004988
10.1016/j.athoracsur.2012.06.070
10.1053/j.jvca.2020.10.001
10.1017/S1047951120003546
10.1016/j.hrthm.2021.05.019
10.1097/PCC.0b013e3182a553f3
10.1016/j.athoracsur.2013.10.015
10.1177/2150135118815059
10.1017/S1047951115002073
10.1016/j.bpa.2011.08.008
10.1161/JAHA.116.004148
10.1017/S1047951114001450
10.1016/j.jtcvs.2019.11.001
10.1016/j.athoracsur.2003.09.042
10.1177/2150135113519454
10.1093/bja/aeu552
10.1016/j.athoracsur.2018.10.001
10.1097/PCC.0000000000000918
10.1016/j.ijcard.2021.07.016
10.1016/j.athoracsur.2006.04.022
10.1016/j.athoracsur.2018.06.032
10.1007/s00246-018-1995-4
10.1016/j.athoracsur.2021.11.017
10.1001/jama.1996.03530350023029
10.1213/ANE.0000000000005416
10.1016/S0735-1097(02)01886-7
10.1016/j.jtcvs.2013.09.075
ContentType Journal Article
Copyright 2022 Elsevier Inc.
Copyright © 2022 Elsevier Inc. All rights reserved.
Copyright_xml – notice: 2022 Elsevier Inc.
– notice: Copyright © 2022 Elsevier Inc. All rights reserved.
DBID CGR
CUY
CVF
ECM
EIF
NPM
AAYXX
CITATION
7X8
DOI 10.1053/j.jvca.2022.11.034
DatabaseName Medline
MEDLINE
MEDLINE (Ovid)
MEDLINE
MEDLINE
PubMed
CrossRef
MEDLINE - Academic
DatabaseTitle MEDLINE
Medline Complete
MEDLINE with Full Text
PubMed
MEDLINE (Ovid)
CrossRef
MEDLINE - Academic
DatabaseTitleList MEDLINE

Database_xml – sequence: 1
  dbid: NPM
  name: PubMed
  url: https://proxy.k.utb.cz/login?url=http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed
  sourceTypes: Index Database
– sequence: 2
  dbid: EIF
  name: MEDLINE
  url: https://proxy.k.utb.cz/login?url=https://www.webofscience.com/wos/medline/basic-search
  sourceTypes: Index Database
DeliveryMethod fulltext_linktorsrc
Discipline Medicine
EISSN 1532-8422
EndPage 470
ExternalDocumentID 10_1053_j_jvca_2022_11_034
36529633
S1053077022008576
Genre Journal Article
Review
GroupedDBID ---
--K
--M
.1-
.FO
.GJ
.~1
0R~
1B1
1P~
1RT
1~.
1~5
4.4
457
4G.
53G
5GY
5RE
5VS
7-5
71M
8P~
9JM
AABNK
AACTN
AAEDT
AAEDW
AAIAV
AAIKJ
AAKOC
AALRI
AAOAW
AAQFI
AAQQT
AAQXK
AAXUO
ABBQC
ABFRF
ABJNI
ABLVK
ABMAC
ABMZM
ABOCM
ABXDB
ABYKQ
ACDAQ
ACGFO
ACGFS
ACRLP
ADBBV
ADEZE
ADMUD
AEBSH
AEFWE
AEKER
AENEX
AEVXI
AFKWA
AFRHN
AFTJW
AFXIZ
AGHFR
AGUBO
AGYEJ
AHHHB
AIEXJ
AIKHN
AITUG
AJBFU
AJOXV
AJRQY
AJUYK
ALMA_UNASSIGNED_HOLDINGS
AMFUW
AMRAJ
ANZVX
ASPBG
AVWKF
AXJTR
AZFZN
BKOJK
BLXMC
BNPGV
CAG
COF
CS3
DU5
EBS
EFJIC
EFLBG
EJD
EO8
EO9
EP2
EP3
F5P
FDB
FEDTE
FGOYB
FIRID
FNPLU
FYGXN
G-2
G-Q
GBLVA
HEB
HMK
HMO
HVGLF
HZ~
IHE
J1W
J5H
K-O
KOM
LCYCR
M29
M41
MO0
N9A
O-L
O9-
O90
OAUVE
OL-
OZT
P-8
P-9
P2P
PC.
Q38
R2-
RIG
ROL
RPZ
SAE
SCC
SDF
SDG
SDP
SEL
SES
SEW
SJN
SPCBC
SSH
SSZ
T5K
UHS
UNMZH
UV1
WUQ
Z5R
ZA5
~G-
AAXKI
AFCTW
AFJKZ
AKRWK
CGR
CUY
CVF
ECM
EIF
NPM
AAYXX
CITATION
7X8
ID FETCH-LOGICAL-c286t-ad1220c8f4fedc1f7ccd970f6126469d2b4e96b06b1f7c8ac42db78631984bf63
IEDL.DBID AIKHN
ISSN 1053-0770
IngestDate Fri Aug 16 01:21:21 EDT 2024
Thu Sep 26 16:24:43 EDT 2024
Sat Sep 28 08:21:27 EDT 2024
Fri Feb 23 02:34:37 EST 2024
IsPeerReviewed true
IsScholarly true
Issue 3
Keywords cardiac anesthesia
congenital heart disease
data registries
pediatrics
Language English
License Copyright © 2022 Elsevier Inc. All rights reserved.
LinkModel DirectLink
MergedId FETCHMERGED-LOGICAL-c286t-ad1220c8f4fedc1f7ccd970f6126469d2b4e96b06b1f7c8ac42db78631984bf63
Notes ObjectType-Article-2
SourceType-Scholarly Journals-1
ObjectType-Feature-3
content type line 23
ObjectType-Review-1
ORCID 0000-0001-8871-2579
PMID 36529633
PQID 2755800319
PQPubID 23479
PageCount 10
ParticipantIDs proquest_miscellaneous_2755800319
crossref_primary_10_1053_j_jvca_2022_11_034
pubmed_primary_36529633
elsevier_sciencedirect_doi_10_1053_j_jvca_2022_11_034
PublicationCentury 2000
PublicationDate March 2023
2023-03-00
20230301
PublicationDateYYYYMMDD 2023-03-01
PublicationDate_xml – month: 03
  year: 2023
  text: March 2023
PublicationDecade 2020
PublicationPlace United States
PublicationPlace_xml – name: United States
PublicationTitle Journal of cardiothoracic and vascular anesthesia
PublicationTitleAlternate J Cardiothorac Vasc Anesth
PublicationYear 2023
Publisher Elsevier Inc
Publisher_xml – name: Elsevier Inc
References Chami, Nicholson, Strange (bib0085) 2021; 338
O'Byrne, Kim, Nornik (bib0031) 2007; 136
Moore, Vincent, Beekman (bib0089) 2014; 64
Ahmed, Anderson, Bates (bib0059) 2021; 42
McMullan, Thiagarajan, Smith (bib0071) 2014; 15
Mackie, Ionescu-Ittu, Pilote (bib0011) 2008; 155
Nathan, Karamichalis, Liu (bib0080) 2014; 147
Overman, Jacobs, Prager (bib0019) 2013; 4
Pasquali, Li, Burstein (bib0027) 2012; 129
National Pediatric Cardiology Quality Improvement Collaborative. News. Available at
Wolf, Lee, Nicolson (bib0051) 2016; 174
Ahmed, Anderson, Bates (bib0060) 2020; 160
Jalali, Lonsdale, Do (bib0098) 2020; 10
Martin, Anderson, Vincent (bib0046) 2019; 10
Ramachandran, King, Nebbia, Beekman (bib0062) 2017; 27
Jolley, Yarlagadda, Rajagopal (bib0070) 2014; 15
Freundlich, Kheterpal (bib0004) 2011; 25
Grover, Shahian, Clark (bib0018) 2014; 97
Jacobs, O'Brien, Pasquali (bib0077) 2011; 92
Percin, Brida (bib0095) 2021; 339
Martin, Beekman, Ing (bib0045) 2010; 13
Brunetti, Gaynor, Retzloff (bib0076) 2018; 19
Do, Hill, Wallace (bib0032) 2018; 105
Rajagopal, Almond, Laussen (bib0075) 2010; 38
Accessed October 18, 2022.
Johnson, Zubair, Armsby (bib0078) 2016; 37
O'Byrne, Kennedy, Jayaram (bib0047) 2019; 8
Gaies, Pasquali, Nicolson (bib0064) 2019; 107
Jacobs, Jacobs, Hill (bib0025) 2018; 106
Riehle-Colarusso, Bergersen, Broberg (bib0016) 2016; 5
Bootj, Roth, Thiagarajan (bib0072) 2004; 77
Allan, Thiagarajan, Armsby (bib0073) 2006; 7
Pasquali, Dimick, Ohye (bib0092) 2015; 314
Kansy, Evels, Shreiber (bib0081) 2015; 25
Hoch, Fatusin, Yenokyan (bib0061) 2019; 14
Gaies, Donohue, Willis (bib0090) 2016; 26
Jacobs, Shahian, D'Agostino (bib0024) 2018; 106
Mahle, Nicolson, Hollenbeck-Pringle (bib0063) 2016; 17
Glass, Valley (bib0037) 2007; 105
Sessler (bib0082) 2014; 69
Mackie, Pilote, Ionescu-Itti (bib0013) 2007; 99
Flick, Spring, Harrison (bib0002) 2007; 106
Einhorn, Andrew, Nelsen, Ames (bib0005) 2022
Quartermain, Hill, Goldberg (bib0033) 2019; 40
Berger, Beghetti, Humpl (bib0088) 2012; 379
Russo C, Elixhauser A. Hospitalizations for birth defects, 2004. Healthcare Cost and Utilization Project. Available at
Vener, Guzzetta, Jacobs (bib0039) 2012; 94
Al Ghafri, Al Badi, Al Hadhrami (bib0006) 2022; 36
Oster, Riehle-Colarusso, Simeone (bib0010) 2013; 2
Etzioni, Wasif, Dueck (bib0049) 2015; 313
Jacobs, Pasquali, Austin, al (bib0091) 2014; 5
Gaies, Tabbutt, Schwartz (bib0065) 2015; 16
Clauss, Anderson, Lannon (bib0050) 2015; 27
Nelson, Jacobs, Bhamidipati (bib0035) 2022; 114
Fleischut, Mazumdar, Memtsoudis (bib0083) 2013; 111
Greene, Jooste, Thibault (bib0042) 2019; 129
Gaies, Cooper, Tabbutt (bib0087) 2015; 25
Pasquali, Jacobs, Farber (bib0014) 2016; 133
Asante-Korang, Jacobs (bib0026) 2016; 26
Mirnezami, Nicholson, Darzi (bib0048) 2012; 366
Shahian, Edwards, Grover (bib0020) 2010; 140
Bates, Connelly, Khadr (bib0066) 2021; 10
Nampi, Law, Neuburger (bib0086) 2021; 35
Long, Engorn, Hill (bib0044) 2021; 133
Nathan, Sleeper, Ohye (bib0079) 2014; 148
Jacobs, Mavroudis, Jacobs (bib0021) 2006; 82
Czosek, Anderson, Baskar (bib0058) 2021; 18
Jalali, Lonsdale, Zamora (bib0097) 2021; 132
Kumar, Mayer, Jr (bib0023) 2021; 112
Gurvitz, Dunn, Bhatt (bib0034) 2020; 76
Miles, Conway, Pawlson (bib0053) 2011
Faraoni, Zurakowski, Goobie (bib0003) 2016; 67
Nelson-McMillan, Hornik, He (bib0029) 2016; 102
Grogan, Goldsmith, Masino (bib0007) 2020; 34
Nayar, Kennedy, Pappas (bib0030) 2016; 101
Vener, Pasquali, Mossad (bib0009) 2017; 124
Pasquali, Schumacker, Davies (bib0093) 2015; 25
O'Connor, Plume, Olmstead (bib0052) 1996; 275
Advanced Cardiac Therapies Improving Outcomes Network. FDA expands labeling of Abbott's HeartMate 3TM LVAD for pediatric use with collaboration from ACTION. Available at
Bradley, Wu, Goldberg (bib0094) 2017; 27
Vener, Gaies, Jacobs (bib0015) 2017; 8
Roeleveld, Wilde, Hazekamp (bib0069) 2014; 5
Bautista-Hernandez, Thiagarajan, Fynn-Thompson (bib0074) 2009; 88
Ing, Twite, Barrett (bib0040) 2017; 31
Mascio, Austin, Jacobs (bib0028) 2014; 147
Sagiv, Tjoeng, Davis (bib0055) 2022; 43
The Society of Thoracic Surgeons. STS national database. Available at
Simpao, Ahumada, Gálvez (bib0096) 2014; 38
Kartha, Jacobs, Vener (bib0043) 2018; 106
de Loizaga, Schneider, Beck (bib0056) 2022; 43
Ilardi, Sanz, Cassidy (bib0068) 2020; 30
Accessed on September 5, 2022.
de Graaff, Engelhardt (bib0008) 2017; 119
Klausner, Parra, Kohl (bib0057) 2021; 154
Hoffman, Kaplan (bib0001) 2002; 39
Simpao, Ahumada, Rehman (bib0084) 2015; 115
Schwartz, Twite, Gulack (bib0041) 2016; 123
Jacobs JP, Frainklin RCG, Beland MJ, et al. Nomenclature for pediatric and congenital cardiac care: unification of clinical and administrative nomenclature. Available at
Nelson, Fuller, Kim (bib0036) 2022; 114
Vener, Abbasi, Brown (bib0038) 2020; 11
Jalali (10.1053/j.jvca.2022.11.034_bib0098) 2020; 10
Percin (10.1053/j.jvca.2022.11.034_bib0095) 2021; 339
de Graaff (10.1053/j.jvca.2022.11.034_bib0008) 2017; 119
Martin (10.1053/j.jvca.2022.11.034_bib0045) 2010; 13
Nathan (10.1053/j.jvca.2022.11.034_bib0080) 2014; 147
Gurvitz (10.1053/j.jvca.2022.11.034_bib0034) 2020; 76
Grover (10.1053/j.jvca.2022.11.034_bib0018) 2014; 97
Jacobs (10.1053/j.jvca.2022.11.034_bib0025) 2018; 106
Simpao (10.1053/j.jvca.2022.11.034_bib0084) 2015; 115
Schwartz (10.1053/j.jvca.2022.11.034_bib0041) 2016; 123
O'Connor (10.1053/j.jvca.2022.11.034_bib0052) 1996; 275
Allan (10.1053/j.jvca.2022.11.034_bib0073) 2006; 7
Vener (10.1053/j.jvca.2022.11.034_bib0039) 2012; 94
Czosek (10.1053/j.jvca.2022.11.034_bib0058) 2021; 18
Clauss (10.1053/j.jvca.2022.11.034_bib0050) 2015; 27
Flick (10.1053/j.jvca.2022.11.034_bib0002) 2007; 106
Jalali (10.1053/j.jvca.2022.11.034_bib0097) 2021; 132
Kumar (10.1053/j.jvca.2022.11.034_bib0023) 2021; 112
Ing (10.1053/j.jvca.2022.11.034_bib0040) 2017; 31
Pasquali (10.1053/j.jvca.2022.11.034_bib0093) 2015; 25
Bootj (10.1053/j.jvca.2022.11.034_bib0072) 2004; 77
Nelson-McMillan (10.1053/j.jvca.2022.11.034_bib0029) 2016; 102
Wolf (10.1053/j.jvca.2022.11.034_bib0051) 2016; 174
Sessler (10.1053/j.jvca.2022.11.034_bib0082) 2014; 69
Moore (10.1053/j.jvca.2022.11.034_bib0089) 2014; 64
Shahian (10.1053/j.jvca.2022.11.034_bib0020) 2010; 140
Bautista-Hernandez (10.1053/j.jvca.2022.11.034_bib0074) 2009; 88
Oster (10.1053/j.jvca.2022.11.034_bib0010) 2013; 2
Ilardi (10.1053/j.jvca.2022.11.034_bib0068) 2020; 30
10.1053/j.jvca.2022.11.034_bib0012
Pasquali (10.1053/j.jvca.2022.11.034_bib0027) 2012; 129
10.1053/j.jvca.2022.11.034_bib0017
Nelson (10.1053/j.jvca.2022.11.034_bib0036) 2022; 114
Sagiv (10.1053/j.jvca.2022.11.034_bib0055) 2022; 43
Kansy (10.1053/j.jvca.2022.11.034_bib0081) 2015; 25
de Loizaga (10.1053/j.jvca.2022.11.034_bib0056) 2022; 43
Long (10.1053/j.jvca.2022.11.034_bib0044) 2021; 133
10.1053/j.jvca.2022.11.034_bib0022
Mackie (10.1053/j.jvca.2022.11.034_bib0011) 2008; 155
Quartermain (10.1053/j.jvca.2022.11.034_bib0033) 2019; 40
Martin (10.1053/j.jvca.2022.11.034_bib0046) 2019; 10
Roeleveld (10.1053/j.jvca.2022.11.034_bib0069) 2014; 5
Nampi (10.1053/j.jvca.2022.11.034_bib0086) 2021; 35
Simpao (10.1053/j.jvca.2022.11.034_bib0096) 2014; 38
Rajagopal (10.1053/j.jvca.2022.11.034_bib0075) 2010; 38
Nayar (10.1053/j.jvca.2022.11.034_bib0030) 2016; 101
Mirnezami (10.1053/j.jvca.2022.11.034_bib0048) 2012; 366
Nelson (10.1053/j.jvca.2022.11.034_bib0035) 2022; 114
Glass (10.1053/j.jvca.2022.11.034_bib0037) 2007; 105
Greene (10.1053/j.jvca.2022.11.034_bib0042) 2019; 129
Ahmed (10.1053/j.jvca.2022.11.034_bib0060) 2020; 160
Pasquali (10.1053/j.jvca.2022.11.034_bib0014) 2016; 133
Gaies (10.1053/j.jvca.2022.11.034_bib0087) 2015; 25
Grogan (10.1053/j.jvca.2022.11.034_bib0007) 2020; 34
Berger (10.1053/j.jvca.2022.11.034_bib0088) 2012; 379
Mahle (10.1053/j.jvca.2022.11.034_bib0063) 2016; 17
Faraoni (10.1053/j.jvca.2022.11.034_bib0003) 2016; 67
Freundlich (10.1053/j.jvca.2022.11.034_bib0004) 2011; 25
Pasquali (10.1053/j.jvca.2022.11.034_bib0092) 2015; 314
Mascio (10.1053/j.jvca.2022.11.034_bib0028) 2014; 147
Gaies (10.1053/j.jvca.2022.11.034_bib0064) 2019; 107
Brunetti (10.1053/j.jvca.2022.11.034_bib0076) 2018; 19
Ramachandran (10.1053/j.jvca.2022.11.034_bib0062) 2017; 27
Al Ghafri (10.1053/j.jvca.2022.11.034_bib0006) 2022; 36
Fleischut (10.1053/j.jvca.2022.11.034_bib0083) 2013; 111
Jacobs (10.1053/j.jvca.2022.11.034_bib0091) 2014; 5
Mackie (10.1053/j.jvca.2022.11.034_bib0013) 2007; 99
Gaies (10.1053/j.jvca.2022.11.034_bib0090) 2016; 26
Bradley (10.1053/j.jvca.2022.11.034_bib0094) 2017; 27
Hoffman (10.1053/j.jvca.2022.11.034_bib0001) 2002; 39
Bates (10.1053/j.jvca.2022.11.034_bib0066) 2021; 10
Johnson (10.1053/j.jvca.2022.11.034_bib0078) 2016; 37
Jacobs (10.1053/j.jvca.2022.11.034_bib0024) 2018; 106
O'Byrne (10.1053/j.jvca.2022.11.034_bib0031) 2007; 136
Chami (10.1053/j.jvca.2022.11.034_bib0085) 2021; 338
Vener (10.1053/j.jvca.2022.11.034_bib0015) 2017; 8
O'Byrne (10.1053/j.jvca.2022.11.034_bib0047) 2019; 8
10.1053/j.jvca.2022.11.034_bib0054
Einhorn (10.1053/j.jvca.2022.11.034_bib0005) 2022
McMullan (10.1053/j.jvca.2022.11.034_bib0071) 2014; 15
Vener (10.1053/j.jvca.2022.11.034_bib0009) 2017; 124
Kartha (10.1053/j.jvca.2022.11.034_bib0043) 2018; 106
Jacobs (10.1053/j.jvca.2022.11.034_bib0077) 2011; 92
Etzioni (10.1053/j.jvca.2022.11.034_bib0049) 2015; 313
Gaies (10.1053/j.jvca.2022.11.034_bib0065) 2015; 16
Miles (10.1053/j.jvca.2022.11.034_bib0053) 2011
10.1053/j.jvca.2022.11.034_bib0067
Hoch (10.1053/j.jvca.2022.11.034_bib0061) 2019; 14
Nathan (10.1053/j.jvca.2022.11.034_bib0079) 2014; 148
Riehle-Colarusso (10.1053/j.jvca.2022.11.034_bib0016) 2016; 5
Vener (10.1053/j.jvca.2022.11.034_bib0038) 2020; 11
Klausner (10.1053/j.jvca.2022.11.034_bib0057) 2021; 154
Jacobs (10.1053/j.jvca.2022.11.034_bib0021) 2006; 82
Asante-Korang (10.1053/j.jvca.2022.11.034_bib0026) 2016; 26
Overman (10.1053/j.jvca.2022.11.034_bib0019) 2013; 4
Ahmed (10.1053/j.jvca.2022.11.034_bib0059) 2021; 42
Jolley (10.1053/j.jvca.2022.11.034_bib0070) 2014; 15
Do (10.1053/j.jvca.2022.11.034_bib0032) 2018; 105
References_xml – volume: 82
  year: 2006
  ident: bib0021
  article-title: Report of the 2005 STS Congenital Heart Surgery Practice and Manpower Survey
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Jacobs
– volume: 17
  start-page: 939
  year: 2016
  end-page: 947
  ident: bib0063
  article-title: Utilizing a collaborative learning model to promote early extubation following infant heart surgery
  publication-title: Pediatr Crit Care Med
  contributor:
    fullname: Hollenbeck-Pringle
– volume: 313
  start-page: 505
  year: 2015
  end-page: 511
  ident: bib0049
  article-title: Association of hospital participation in a surgical outcomes monitoring program with inpatient complications and mortality
  publication-title: JAMA
  contributor:
    fullname: Dueck
– volume: 25
  start-page: 489
  year: 2011
  end-page: 498
  ident: bib0004
  article-title: Perioperative effectiveness research using large databases
  publication-title: Best Pract Res Clin Anaesthesiol
  contributor:
    fullname: Kheterpal
– volume: 15
  start-page: 538
  year: 2014
  end-page: 545
  ident: bib0070
  article-title: Extracorporeal membrane oxygenation-supported cardiopulmonary resuscitation following stage 1 palliation for hypoplastic left heart syndrome
  publication-title: Pediatr Crit Care Med
  contributor:
    fullname: Rajagopal
– volume: 67
  start-page: 793
  year: 2016
  end-page: 801
  ident: bib0003
  article-title: Post-operative outcomes in children with and without congenital heart disease undergoing noncardiac surgery
  publication-title: J Am Coll Cardiol
  contributor:
    fullname: Goobie
– volume: 26
  start-page: 1597
  year: 2016
  end-page: 1602
  ident: bib0026
  article-title: Big data and paediatric cardiovascular disease in the era of transparency in healthcare
  publication-title: Cardiol Young
  contributor:
    fullname: Jacobs
– volume: 27
  start-page: 555
  year: 2015
  end-page: 562
  ident: bib0050
  article-title: Quality improvement through collaboration: The National Pediatric Quality Improvement Collaborative Initiative
  publication-title: Curr Opin Pediatr
  contributor:
    fullname: Lannon
– volume: 30
  start-page: 1623
  year: 2020
  end-page: 1636
  ident: bib0068
  article-title: Neurodevelopmental evaluation for school-age children with congenital heart disease: recommendations from the Cardiac Neurodevelopmental Outcome Collaborative
  publication-title: Cardiol Young
  contributor:
    fullname: Cassidy
– volume: 5
  start-page: 256
  year: 2014
  end-page: 271
  ident: bib0091
  article-title: Linking the congenital heart surgery databases of the Society of Thoracic Surgeons and the Congenital Heart Surgeons’ Society: Part 1 – rationale and methodology
  publication-title: World J Pediatr Congenit Heart Surg
  contributor:
    fullname: al
– volume: 119
  start-page: 448
  year: 2017
  end-page: 451
  ident: bib0008
  article-title: How big data shape paediatric anaesthesia
  publication-title: Br J Anaesth
  contributor:
    fullname: Engelhardt
– volume: 102
  start-page: 156
  year: 2016
  end-page: 172
  ident: bib0029
  article-title: Delayed sternal wound closure in infant heart surgery - the importance of where and when: An analysis of STS Congenital Heart Surgery Database
  publication-title: Ann Thorac Surg
  contributor:
    fullname: He
– volume: 97
  start-page: S48
  year: 2014
  end-page: S54
  ident: bib0018
  article-title: The STS national database
  publication-title: Am Thorac Surg
  contributor:
    fullname: Clark
– volume: 35
  start-page: 436
  year: 2021
  end-page: 438
  ident: bib0086
  article-title: Anesthesiology research using surgical registries: Consider the source
  publication-title: J Cardiothorac Vasc Anesth
  contributor:
    fullname: Neuburger
– volume: 124
  start-page: 572
  year: 2017
  end-page: 581
  ident: bib0009
  article-title: Anesthesia and databases: Pediatric cardiac disease as a role model
  publication-title: Anesth Analg
  contributor:
    fullname: Mossad
– volume: 111
  start-page: 532
  year: 2013
  end-page: 534
  ident: bib0083
  article-title: Perioperative database research: Possibilities and pitfalls
  publication-title: Br J Anaesth
  contributor:
    fullname: Memtsoudis
– volume: 27
  start-page: 757
  year: 2017
  end-page: 763
  ident: bib0094
  article-title: Out of many, one: Integrating data in the pediatric cardiovascular environment
  publication-title: Cardiol Young
  contributor:
    fullname: Goldberg
– volume: 154
  start-page: 99
  year: 2021
  end-page: 105
  ident: bib0057
  article-title: Impact of digoxin use on interstage outcomes of single ventricle heart disease (from a NPC-QIC Registry Analysis)
  publication-title: Am J Cardiol
  contributor:
    fullname: Kohl
– volume: 4
  start-page: 10
  year: 2013
  end-page: 12
  ident: bib0019
  article-title: Report from the Society of Thoracic Surgeons National Database Workforce: Clarifying the definition of operative mortality
  publication-title: World J Pediatr Congenit Heart Surg
  contributor:
    fullname: Prager
– volume: 31
  start-page: 1934
  year: 2017
  end-page: 1938
  ident: bib0040
  article-title: Review of the Society of Thoracic Surgeons Congenital Heart Surgery Database: 2017 update on outcomes and quality implications for the anesthesiologist
  publication-title: J Cardiothorac Vasc Anesth
  contributor:
    fullname: Barrett
– volume: 13
  start-page: 20
  year: 2010
  end-page: 25
  ident: bib0045
  article-title: The IMPACT registry: Improving pediatric and adult congenital treatments
  publication-title: Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu
  contributor:
    fullname: Ing
– volume: 2
  year: 2013
  ident: bib0010
  article-title: Public health science agenda for congenital heart defects: Report from a Centers for Disease Control and Prevention experts meeting
  publication-title: J Am Heart Assoc
  contributor:
    fullname: Simeone
– volume: 5
  year: 2016
  ident: bib0016
  article-title: Databases for congenital heart defect public health studies across the lifespan
  publication-title: J Am Heart Assoc
  contributor:
    fullname: Broberg
– volume: 338
  start-page: 89
  year: 2021
  end-page: 94
  ident: bib0085
  article-title: National and regional registries for congenital heart diseases: Strengths, weaknesses and opportunities
  publication-title: Int J Cardiol
  contributor:
    fullname: Strange
– volume: 40
  start-page: 489
  year: 2019
  end-page: 496
  ident: bib0033
  article-title: Prenatal diagnosis influences preoperative status in neonates with congenital heart disease: An analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database
  publication-title: Pediatr Cardiol
  contributor:
    fullname: Goldberg
– volume: 76
  start-page: 175
  year: 2020
  end-page: 182
  ident: bib0034
  article-title: Characteristics of adults with congenital heart defects in the United States
  publication-title: J Am Coll Cardiol
  contributor:
    fullname: Bhatt
– volume: 132
  start-page: 160
  year: 2021
  end-page: 171
  ident: bib0097
  article-title: Machine learning applied to registry data: development of a patient-specific prediction model for blood transfusion requirements during craniofacial surgery using the pediatric craniofacial perioperative registry dataset
  publication-title: Anesth Analg
  contributor:
    fullname: Zamora
– volume: 101
  start-page: 190
  year: 2016
  end-page: 198
  ident: bib0030
  article-title: Improving cardiac surgical site infection reporting and prevention by using registry data for case ascertainment
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Pappas
– volume: 136
  start-page: 704
  year: 2007
  end-page: 718
  ident: bib0031
  article-title: Effect of obesity and underweight status on perioperative outcomes of congenital heart operations in children, adolescents, and young adults: An analysis of data from The Society of Thoracic Surgeons Database
  publication-title: Circulation
  contributor:
    fullname: Nornik
– volume: 94
  start-page: 2159
  year: 2012
  end-page: 2165
  ident: bib0039
  article-title: Development and implementation of a new data registry in congenital cardiac anesthesia
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Jacobs
– volume: 38
  start-page: 382
  year: 2010
  end-page: 387
  ident: bib0075
  article-title: Extracorporeal membrane oxygenation for the support of infants, children, and young adults with acute myocarditis: A review of the Extracorporeal Life Support Organization registry
  publication-title: Crit Care Med
  contributor:
    fullname: Laussen
– volume: 43
  start-page: 1141
  year: 2022
  end-page: 1155
  ident: bib0055
  article-title: Assessing the association between pre-operative feeding and the development of oral feeding skills in infants with single ventricle heart disease: An analysis of the NPC-QIC dataset
  publication-title: Pediatr Cardiol
  contributor:
    fullname: Davis
– volume: 133
  start-page: 1410
  year: 2016
  end-page: 1418
  ident: bib0014
  article-title: Report of the National Heart, Lung, and Blood Institute Working Group: An integrated network for congenital heart disease research
  publication-title: Circulation
  contributor:
    fullname: Farber
– volume: 36
  start-page: 4032
  year: 2022
  end-page: 4036
  ident: bib0006
  article-title: Extubation failure in infants with modified Blalock-Taussig shunt: The incidence, predictors, and outcomes
  publication-title: J Cardiothorac Vasc Anesth
  contributor:
    fullname: Al Hadhrami
– volume: 106
  start-page: 1603
  year: 2018
  end-page: 1611
  ident: bib0024
  article-title: The Society of Thoracic Surgeons National Database 2018 Annual Report
  publication-title: Ann Thorac Surg
  contributor:
    fullname: D'Agostino
– volume: 14
  start-page: 438
  year: 2019
  end-page: 445
  ident: bib0061
  article-title: Feeding methods for infants with single ventricle physiology are associated with length of stay during stage 2 surgery hospitalization
  publication-title: Congenit Heart Dis
  contributor:
    fullname: Yenokyan
– volume: 105
  start-page: 974
  year: 2007
  end-page: 976
  ident: bib0037
  article-title: Congenital Cardiac Anesthesia Society. Congenital Cardiac Anesthesia Society meeting review
  publication-title: Anesth Analg
  contributor:
    fullname: Valley
– volume: 8
  year: 2019
  ident: bib0047
  article-title: Failure to rescue as an outcome metric for pediatric and congenital cardiac catheterization laboratory programs: Analysis of data from the IMPACT Registry
  publication-title: J Am Heart Assoc
  contributor:
    fullname: Jayaram
– volume: 42
  start-page: 1372
  year: 2021
  end-page: 1378
  ident: bib0059
  article-title: Characteristics of interstage death after discharge from stage I palliation
  publication-title: Pediatr Cardiol
  contributor:
    fullname: Bates
– volume: 107
  start-page: 1427
  year: 2019
  end-page: 1433
  ident: bib0064
  article-title: Sustainability of infant cardiac surgery early extubation practices after implementation and study
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Nicolson
– volume: 88
  start-page: 1306
  year: 2009
  end-page: 1311
  ident: bib0074
  article-title: Preoperative extracorporeal membrane oxygenation as a bridge to cardiac surgery in children with congenital heart disease
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Fynn-Thompson
– volume: 38
  start-page: 45
  year: 2014
  ident: bib0096
  article-title: A review of analytics and clinical informatics in health care
  publication-title: J Med Syst
  contributor:
    fullname: Gálvez
– volume: 174
  start-page: 129
  year: 2016
  end-page: 137
  ident: bib0051
  article-title: Rationale and methodology of a collaborative learning project in congenital cardiac care
  publication-title: Am Heart J
  contributor:
    fullname: Nicolson
– volume: 11
  start-page: 14
  year: 2020
  end-page: 21
  ident: bib0038
  article-title: The Congenital Cardiac Anesthesia Society-Society of Thoracic Surgeons Cardiac Anesthesia Database collaboration
  publication-title: World J Pediatr Congenit Heart Surg
  contributor:
    fullname: Brown
– volume: 27
  start-page: 731
  year: 2017
  end-page: 738
  ident: bib0062
  article-title: Variability of antithrombotics use in patients with hypoplastic left heart syndrome and its variants following first-and second-stage palliation surgery: A national report using the National Pediatric Cardiology Quality Improvement Collaborative registry
  publication-title: Cardiol Young
  contributor:
    fullname: Beekman
– volume: 115
  start-page: 350
  year: 2015
  end-page: 356
  ident: bib0084
  article-title: Big data and visual analytics in anaesthesia and health care
  publication-title: Br J Anaesth
  contributor:
    fullname: Rehman
– volume: 133
  start-page: 1077
  year: 2021
  end-page: 1088
  ident: bib0044
  article-title: Postoperative hematocrit and adverse outcomes in pediatric cardiac surgery patients: A cross-sectional study from the Society of Thoracic Surgeons and Congenital Cardiac Anesthesia Society Database Collaboration
  publication-title: Anesth Analg
  contributor:
    fullname: Hill
– volume: 15
  start-page: e9
  year: 2014
  end-page: e16
  ident: bib0071
  article-title: Extracorporeal cardiopulmonary resuscitation outcomes in term and premature neonates
  publication-title: Pediatr Crit Care Med
  contributor:
    fullname: Smith
– volume: 129
  start-page: 1061
  year: 2019
  end-page: 1068
  ident: bib0042
  article-title: A study of practice behavior for endotracheal intubation site for children with congenital heart disease undergoing surgery: Impact of endotracheal intubation site on perioperative outcomes-An Analysis of the Society of Thoracic Surgeons Congenital Cardiac Anesthesia Society Database
  publication-title: Anesth Analg
  contributor:
    fullname: Thibault
– volume: 39
  start-page: 1890
  year: 2002
  end-page: 1900
  ident: bib0001
  article-title: The incidence of congenital heart disease
  publication-title: J Am Coll Cardiol
  contributor:
    fullname: Kaplan
– volume: 106
  start-page: 654
  year: 2018
  end-page: 663
  ident: bib0025
  article-title: The Society of Thoracic Surgeons Congenital Heart Surgery Database: 2018 update on research
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Hill
– year: 2022
  ident: bib0005
  article-title: Analgesic effects of a novel combination of regional anesthesia after pediatric cardiac surgery: A retrospective cohort study
  publication-title: J Cardiothorac Vasc Anesth
  contributor:
    fullname: Ames
– volume: 92
  start-page: 2184
  year: 2011
  end-page: 2192
  ident: bib0077
  article-title: Variation in outcomes for benchmark operations: an analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Pasquali
– volume: 99
  start-page: 839
  year: 2007
  end-page: 843
  ident: bib0013
  article-title: Health care resource utilization in adults with congenital heart disease
  publication-title: Am J Cardiol
  contributor:
    fullname: Ionescu-Itti
– volume: 379
  start-page: 537
  year: 2012
  end-page: 546
  ident: bib0088
  article-title: Clinical features of paediatric pulmonary hypertension: A registry study
  publication-title: Lancet
  contributor:
    fullname: Humpl
– volume: 339
  start-page: 43
  year: 2021
  end-page: 44
  ident: bib0095
  article-title: Congenital heart disease registries: Vast room for improvement
  publication-title: Int J Cardiol
  contributor:
    fullname: Brida
– volume: 16
  start-page: 837
  year: 2015
  end-page: 845
  ident: bib0065
  article-title: Clinical epidemiology of extubation failure in the pediatric cardiac ICU: A report from the Pediatric Critical Care Consortium
  publication-title: Pediatr Crit Care Med
  contributor:
    fullname: Schwartz
– volume: 112
  start-page: 1753
  year: 2021
  end-page: 1762
  ident: bib0023
  article-title: The Society of Thoracic Surgeons congenital heart surgery database: 2021 update on outcomes and research
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Jr
– volume: 25
  start-page: 1572
  year: 2015
  end-page: 1578
  ident: bib0081
  article-title: Higher programmatic volume in paediatric heart surgery is associated with better early outcomes
  publication-title: Cardiol Young
  contributor:
    fullname: Shreiber
– volume: 69
  start-page: 100
  year: 2014
  end-page: 105
  ident: bib0082
  article-title: Big Data–and its contributions to peri-operative medicine
  publication-title: Anaesthesia
  contributor:
    fullname: Sessler
– volume: 106
  start-page: 226
  year: 2007
  end-page: 237
  ident: bib0002
  article-title: Perioperative cardiac arrests in children between 1988 and 2005 in a tertiary referral center: A study of 92, 881 patients
  publication-title: Anesthesiology
  contributor:
    fullname: Harrison
– volume: 5
  start-page: 393
  year: 2014
  end-page: 397
  ident: bib0069
  article-title: Extracorporeal membrane oxygenation in single ventricle lesions palliated via the hybrid approach
  publication-title: World J Pediatr Congenit Heart Surg
  contributor:
    fullname: Hazekamp
– volume: 43
  start-page: 605
  year: 2022
  end-page: 615
  ident: bib0056
  article-title: Socioeconomic impact on outcomes during the first year of life of patients with single ventricle heart disease: An analysis of the National Pediatric Cardiology Quality Improvement Collaborative Registry
  publication-title: Pediatr Cardiol
  contributor:
    fullname: Beck
– volume: 18
  start-page: 1876
  year: 2021
  end-page: 1883
  ident: bib0058
  article-title: Predictors and outcomes of heart block during surgical stage I palliation of patients with a single ventricle: A report from the NPC-QIC
  publication-title: Heart Rhythm
  contributor:
    fullname: Baskar
– volume: 314
  start-page: 1689
  year: 2015
  end-page: 1690
  ident: bib0092
  article-title: Time for a more unified approach to pediatric health care policy? The case of congenital heart care
  publication-title: JAMA
  contributor:
    fullname: Ohye
– volume: 8
  start-page: 77
  year: 2017
  end-page: 87
  ident: bib0015
  article-title: Clinical databases and registries in congenital and pediatric cardiac surgery, cardiology, critical care, and anesthesiology worldwide
  publication-title: World J Pediatr Congenit Heart Surg
  contributor:
    fullname: Jacobs
– volume: 19
  start-page: 544
  year: 2018
  end-page: 552
  ident: bib0076
  article-title: Characteristics, risk factors, and outcomes of extracorporeal membrane oxygenation use in pediatric cardiac ICUs: A report from the pediatric Cardiac Care Consortium Registry
  publication-title: PCCM
  contributor:
    fullname: Retzloff
– volume: 147
  start-page: 389
  year: 2014
  end-page: 394
  ident: bib0080
  article-title: Technical performance scores are strongly associated with early mortality, postoperative adverse events, and intensive care unit length of stay-analysis of consecutive discharges for 2 years
  publication-title: J Thorac Cardiovasc Surg
  contributor:
    fullname: Liu
– volume: 147
  start-page: 658
  year: 2014
  end-page: 664
  ident: bib0028
  article-title: Perioperative mechanical circulatory support in children: An analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database
  publication-title: J Thorac Cardiovasc Surg
  contributor:
    fullname: Jacobs
– volume: 160
  start-page: 1021
  year: 2020
  end-page: 1030
  ident: bib0060
  article-title: Development of a validated risk score for interstage death or transplant after stage I palliation for single-ventricle heart disease
  publication-title: J Thorac Cardiovasc Surg
  contributor:
    fullname: Bates
– volume: 140
  start-page: 955
  year: 2010
  end-page: 959
  ident: bib0020
  article-title: The Society of Thoracic Surgeons National Adult Cardiac Database: A continuing commitment to excellence
  publication-title: J Thorac Cardiovasc Surg
  contributor:
    fullname: Grover
– volume: 64
  start-page: 2439
  year: 2014
  end-page: 2451
  ident: bib0089
  article-title: Procedural results and safety of common interventional procedures in congenital heart disease: initial report from the National Cardiovascular Data Registry
  publication-title: J Am Coll Cardiol
  contributor:
    fullname: Beekman
– volume: 148
  year: 2014
  ident: bib0079
  article-title: Technical performance score is associated with outcome after the Norwood procedure
  publication-title: J Thorac Cardiovasc Surg
  contributor:
    fullname: Ohye
– volume: 114
  start-page: 1762
  year: 2022
  end-page: 1770
  ident: bib0036
  article-title: Capturing adult congenital heart disease: Framework for development of an adult congenital heart disease mortality risk model
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Kim
– volume: 106
  start-page: 1197
  year: 2018
  end-page: 1203
  ident: bib0043
  article-title: National benchmarks for proportions of patients receiving blood transfusions during pediatric and congenital heart surgery: An analysis of the STS Congenital Heart Surgery Database
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Vener
– volume: 275
  start-page: 841
  year: 1996
  end-page: 846
  ident: bib0052
  article-title: A regional intervention to improve the hospital mortality associated with coronary artery bypass graft surgery
  publication-title: JAMA
  contributor:
    fullname: Olmstead
– volume: 7
  start-page: 212
  year: 2006
  end-page: 219
  ident: bib0073
  article-title: Emergent use of extracorporeal membrane oxygenation during pediatric cardiac catheterization
  publication-title: Pediatr Crit Care Med
  contributor:
    fullname: Armsby
– volume: 105
  start-page: 857
  year: 2018
  end-page: 864
  ident: bib0032
  article-title: Shunt failure – risk factors and outcomes: an analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Wallace
– volume: 10
  year: 2021
  ident: bib0066
  article-title: Successful reduction of postoperative chest tube duration and length of stay after congenital heart surgery: A multicenter collaborative improvement project
  publication-title: J Am Heart Assoc
  contributor:
    fullname: Khadr
– volume: 129
  start-page: c370
  year: 2012
  end-page: c376
  ident: bib0027
  article-title: Association of center volume with mortality and complications in pediatric heart surgery
  publication-title: Pediatrics
  contributor:
    fullname: Burstein
– volume: 123
  start-page: 715
  year: 2016
  end-page: 721
  ident: bib0041
  article-title: The perioperative use of dexmedetomidine in pediatric patients with congenital heart disease: An analysis from the Congenital Cardiac Anesthesia Society-Society of Thoracic Surgeons Congenital Heart Disease Database
  publication-title: Anesth Analg
  contributor:
    fullname: Gulack
– year: 2011
  ident: bib0053
  article-title: Collaborative improvement networks and physician accountability
  publication-title: American Academy of Pediatrics
  contributor:
    fullname: Pawlson
– volume: 25
  start-page: 160
  year: 2015
  end-page: 166
  ident: bib0093
  article-title: Can linking databases answer questions about paediatric heart failure?
  publication-title: Cardiol Young
  contributor:
    fullname: Davies
– volume: 34
  start-page: 479
  year: 2020
  end-page: 482
  ident: bib0007
  article-title: A narrative review of analytics in pediatric cardiac anesthesia and critical care medicine
  publication-title: J Cardiothorac Vasc Anesth
  contributor:
    fullname: Masino
– volume: 114
  start-page: 2323
  year: 2022
  end-page: 2329
  ident: bib0035
  article-title: Assessment of current Society of Thoracic Surgeons data elements for adults with congenital heart disease
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Bhamidipati
– volume: 10
  start-page: 9289
  year: 2020
  ident: bib0098
  article-title: Deep learning for improved risk prediction in surgical outcomes
  publication-title: Sci Rep
  contributor:
    fullname: Do
– volume: 10
  start-page: 72
  year: 2019
  end-page: 80
  ident: bib0046
  article-title: IMPACT Registry and National Pediatric Cardiology Quality Improvement Collaborative: Contributions to quality in congenital heart disease
  publication-title: World J Pediatr Congenit Heart Surg
  contributor:
    fullname: Vincent
– volume: 37
  start-page: 593
  year: 2016
  end-page: 600
  ident: bib0078
  article-title: Surgical quality predicts length of stay in patients with congenital heart disease
  publication-title: Pediatr Cardiol
  contributor:
    fullname: Armsby
– volume: 366
  start-page: 489
  year: 2012
  end-page: 491
  ident: bib0048
  article-title: Preparing for precision medicine
  publication-title: N Engl J Med
  contributor:
    fullname: Darzi
– volume: 26
  start-page: 1090
  year: 2016
  end-page: 1096
  ident: bib0090
  article-title: Data integrity of the Pediatric Cardiac Critical Care Consortium (PC4) clinical registry
  publication-title: Cardiol Young
  contributor:
    fullname: Willis
– volume: 155
  start-page: 577
  year: 2008
  end-page: 584
  ident: bib0011
  article-title: Hospital readmissions in children with congenital heart disease: A population-based study
  publication-title: Am Heart J
  contributor:
    fullname: Pilote
– volume: 25
  start-page: 951
  year: 2015
  end-page: 957
  ident: bib0087
  article-title: Collaborative quality improvement in the cardiac intensive care unit: Development of the Paediatric Cardiac Critical Care Consortium (PC4)
  publication-title: Cardiol Young
  contributor:
    fullname: Tabbutt
– volume: 77
  start-page: 1341
  year: 2004
  end-page: 1348
  ident: bib0072
  article-title: Extracorporeal membrane oxygenation support of the Fontan and bidirectional Glenn circulations
  publication-title: Ann Thorac Surg
  contributor:
    fullname: Thiagarajan
– volume: 114
  start-page: 1762
  year: 2022
  ident: 10.1053/j.jvca.2022.11.034_bib0036
  article-title: Capturing adult congenital heart disease: Framework for development of an adult congenital heart disease mortality risk model
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2021.09.063
  contributor:
    fullname: Nelson
– volume: 366
  start-page: 489
  year: 2012
  ident: 10.1053/j.jvca.2022.11.034_bib0048
  article-title: Preparing for precision medicine
  publication-title: N Engl J Med
  doi: 10.1056/NEJMp1114866
  contributor:
    fullname: Mirnezami
– volume: 133
  start-page: 1410
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0014
  article-title: Report of the National Heart, Lung, and Blood Institute Working Group: An integrated network for congenital heart disease research
  publication-title: Circulation
  doi: 10.1161/CIRCULATIONAHA.115.019506
  contributor:
    fullname: Pasquali
– year: 2011
  ident: 10.1053/j.jvca.2022.11.034_bib0053
  article-title: Collaborative improvement networks and physician accountability
  publication-title: American Academy of Pediatrics
  contributor:
    fullname: Miles
– volume: 10
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0066
  article-title: Successful reduction of postoperative chest tube duration and length of stay after congenital heart surgery: A multicenter collaborative improvement project
  publication-title: J Am Heart Assoc
  doi: 10.1161/JAHA.121.020730
  contributor:
    fullname: Bates
– volume: 314
  start-page: 1689
  year: 2015
  ident: 10.1053/j.jvca.2022.11.034_bib0092
  article-title: Time for a more unified approach to pediatric health care policy? The case of congenital heart care
  publication-title: JAMA
  doi: 10.1001/jama.2015.10166
  contributor:
    fullname: Pasquali
– volume: 36
  start-page: 4032
  year: 2022
  ident: 10.1053/j.jvca.2022.11.034_bib0006
  article-title: Extubation failure in infants with modified Blalock-Taussig shunt: The incidence, predictors, and outcomes
  publication-title: J Cardiothorac Vasc Anesth
  doi: 10.1053/j.jvca.2022.05.030
  contributor:
    fullname: Al Ghafri
– volume: 99
  start-page: 839
  year: 2007
  ident: 10.1053/j.jvca.2022.11.034_bib0013
  article-title: Health care resource utilization in adults with congenital heart disease
  publication-title: Am J Cardiol
  doi: 10.1016/j.amjcard.2006.10.054
  contributor:
    fullname: Mackie
– volume: 34
  start-page: 479
  year: 2020
  ident: 10.1053/j.jvca.2022.11.034_bib0007
  article-title: A narrative review of analytics in pediatric cardiac anesthesia and critical care medicine
  publication-title: J Cardiothorac Vasc Anesth
  doi: 10.1053/j.jvca.2019.06.009
  contributor:
    fullname: Grogan
– volume: 119
  start-page: 448
  year: 2017
  ident: 10.1053/j.jvca.2022.11.034_bib0008
  article-title: How big data shape paediatric anaesthesia
  publication-title: Br J Anaesth
  doi: 10.1093/bja/aex158
  contributor:
    fullname: de Graaff
– volume: 43
  start-page: 1141
  year: 2022
  ident: 10.1053/j.jvca.2022.11.034_bib0055
  article-title: Assessing the association between pre-operative feeding and the development of oral feeding skills in infants with single ventricle heart disease: An analysis of the NPC-QIC dataset
  publication-title: Pediatr Cardiol
  doi: 10.1007/s00246-022-02837-9
  contributor:
    fullname: Sagiv
– volume: 7
  start-page: 212
  year: 2006
  ident: 10.1053/j.jvca.2022.11.034_bib0073
  article-title: Emergent use of extracorporeal membrane oxygenation during pediatric cardiac catheterization
  publication-title: Pediatr Crit Care Med
  doi: 10.1097/01.PCC.0000200964.88206.B0
  contributor:
    fullname: Allan
– volume: 69
  start-page: 100
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0082
  article-title: Big Data–and its contributions to peri-operative medicine
  publication-title: Anaesthesia
  doi: 10.1111/anae.12537
  contributor:
    fullname: Sessler
– volume: 8
  year: 2019
  ident: 10.1053/j.jvca.2022.11.034_bib0047
  article-title: Failure to rescue as an outcome metric for pediatric and congenital cardiac catheterization laboratory programs: Analysis of data from the IMPACT Registry
  publication-title: J Am Heart Assoc
  doi: 10.1161/JAHA.119.013151
  contributor:
    fullname: O'Byrne
– volume: 106
  start-page: 226
  year: 2007
  ident: 10.1053/j.jvca.2022.11.034_bib0002
  article-title: Perioperative cardiac arrests in children between 1988 and 2005 in a tertiary referral center: A study of 92, 881 patients
  publication-title: Anesthesiology
  doi: 10.1097/00000542-200702000-00009
  contributor:
    fullname: Flick
– volume: 88
  start-page: 1306
  year: 2009
  ident: 10.1053/j.jvca.2022.11.034_bib0074
  article-title: Preoperative extracorporeal membrane oxygenation as a bridge to cardiac surgery in children with congenital heart disease
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2009.06.074
  contributor:
    fullname: Bautista-Hernandez
– volume: 42
  start-page: 1372
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0059
  article-title: Characteristics of interstage death after discharge from stage I palliation
  publication-title: Pediatr Cardiol
  doi: 10.1007/s00246-021-02621-1
  contributor:
    fullname: Ahmed
– volume: 76
  start-page: 175
  year: 2020
  ident: 10.1053/j.jvca.2022.11.034_bib0034
  article-title: Characteristics of adults with congenital heart defects in the United States
  publication-title: J Am Coll Cardiol
  doi: 10.1016/j.jacc.2020.05.025
  contributor:
    fullname: Gurvitz
– volume: 105
  start-page: 974
  year: 2007
  ident: 10.1053/j.jvca.2022.11.034_bib0037
  article-title: Congenital Cardiac Anesthesia Society. Congenital Cardiac Anesthesia Society meeting review
  publication-title: Anesth Analg
  doi: 10.1213/01.ane.0000278632.22988.d7
  contributor:
    fullname: Glass
– volume: 15
  start-page: 538
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0070
  article-title: Extracorporeal membrane oxygenation-supported cardiopulmonary resuscitation following stage 1 palliation for hypoplastic left heart syndrome
  publication-title: Pediatr Crit Care Med
  doi: 10.1097/PCC.0000000000000159
  contributor:
    fullname: Jolley
– volume: 13
  start-page: 20
  year: 2010
  ident: 10.1053/j.jvca.2022.11.034_bib0045
  article-title: The IMPACT registry: Improving pediatric and adult congenital treatments
  publication-title: Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu
  doi: 10.1053/j.pcsu.2010.02.004
  contributor:
    fullname: Martin
– volume: 37
  start-page: 593
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0078
  article-title: Surgical quality predicts length of stay in patients with congenital heart disease
  publication-title: Pediatr Cardiol
  doi: 10.1007/s00246-015-1319-x
  contributor:
    fullname: Johnson
– volume: 106
  start-page: 1197
  year: 2018
  ident: 10.1053/j.jvca.2022.11.034_bib0043
  article-title: National benchmarks for proportions of patients receiving blood transfusions during pediatric and congenital heart surgery: An analysis of the STS Congenital Heart Surgery Database
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2018.04.088
  contributor:
    fullname: Kartha
– volume: 155
  start-page: 577
  year: 2008
  ident: 10.1053/j.jvca.2022.11.034_bib0011
  article-title: Hospital readmissions in children with congenital heart disease: A population-based study
  publication-title: Am Heart J
  doi: 10.1016/j.ahj.2007.11.003
  contributor:
    fullname: Mackie
– volume: 5
  start-page: 393
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0069
  article-title: Extracorporeal membrane oxygenation in single ventricle lesions palliated via the hybrid approach
  publication-title: World J Pediatr Congenit Heart Surg
  doi: 10.1177/2150135114526420
  contributor:
    fullname: Roeleveld
– volume: 105
  start-page: 857
  year: 2018
  ident: 10.1053/j.jvca.2022.11.034_bib0032
  article-title: Shunt failure – risk factors and outcomes: an analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2017.06.028
  contributor:
    fullname: Do
– volume: 4
  start-page: 10
  year: 2013
  ident: 10.1053/j.jvca.2022.11.034_bib0019
  article-title: Report from the Society of Thoracic Surgeons National Database Workforce: Clarifying the definition of operative mortality
  publication-title: World J Pediatr Congenit Heart Surg
  doi: 10.1177/2150135112461924
  contributor:
    fullname: Overman
– ident: 10.1053/j.jvca.2022.11.034_bib0017
– volume: 136
  start-page: 704
  year: 2007
  ident: 10.1053/j.jvca.2022.11.034_bib0031
  article-title: Effect of obesity and underweight status on perioperative outcomes of congenital heart operations in children, adolescents, and young adults: An analysis of data from The Society of Thoracic Surgeons Database
  publication-title: Circulation
  doi: 10.1161/CIRCULATIONAHA.116.026778
  contributor:
    fullname: O'Byrne
– volume: 140
  start-page: 955
  year: 2010
  ident: 10.1053/j.jvca.2022.11.034_bib0020
  article-title: The Society of Thoracic Surgeons National Adult Cardiac Database: A continuing commitment to excellence
  publication-title: J Thorac Cardiovasc Surg
  doi: 10.1016/j.jtcvs.2010.09.004
  contributor:
    fullname: Shahian
– volume: 102
  start-page: 156
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0029
  article-title: Delayed sternal wound closure in infant heart surgery - the importance of where and when: An analysis of STS Congenital Heart Surgery Database
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2016.08.081
  contributor:
    fullname: Nelson-McMillan
– volume: 64
  start-page: 2439
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0089
  article-title: Procedural results and safety of common interventional procedures in congenital heart disease: initial report from the National Cardiovascular Data Registry
  publication-title: J Am Coll Cardiol
  doi: 10.1016/j.jacc.2014.09.045
  contributor:
    fullname: Moore
– volume: 38
  start-page: 382
  year: 2010
  ident: 10.1053/j.jvca.2022.11.034_bib0075
  article-title: Extracorporeal membrane oxygenation for the support of infants, children, and young adults with acute myocarditis: A review of the Extracorporeal Life Support Organization registry
  publication-title: Crit Care Med
  doi: 10.1097/CCM.0b013e3181bc8293
  contributor:
    fullname: Rajagopal
– volume: 129
  start-page: 1061
  year: 2019
  ident: 10.1053/j.jvca.2022.11.034_bib0042
  publication-title: Anesth Analg
  doi: 10.1213/ANE.0000000000003594
  contributor:
    fullname: Greene
– volume: 26
  start-page: 1090
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0090
  article-title: Data integrity of the Pediatric Cardiac Critical Care Consortium (PC4) clinical registry
  publication-title: Cardiol Young
  doi: 10.1017/S1047951115001833
  contributor:
    fullname: Gaies
– volume: 174
  start-page: 129
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0051
  article-title: Rationale and methodology of a collaborative learning project in congenital cardiac care
  publication-title: Am Heart J
  doi: 10.1016/j.ahj.2016.01.013
  contributor:
    fullname: Wolf
– volume: 27
  start-page: 731
  year: 2017
  ident: 10.1053/j.jvca.2022.11.034_bib0062
  article-title: Variability of antithrombotics use in patients with hypoplastic left heart syndrome and its variants following first-and second-stage palliation surgery: A national report using the National Pediatric Cardiology Quality Improvement Collaborative registry
  publication-title: Cardiol Young
  doi: 10.1017/S1047951116001189
  contributor:
    fullname: Ramachandran
– volume: 25
  start-page: 160
  year: 2015
  ident: 10.1053/j.jvca.2022.11.034_bib0093
  article-title: Can linking databases answer questions about paediatric heart failure?
  publication-title: Cardiol Young
  doi: 10.1017/S1047951115000967
  contributor:
    fullname: Pasquali
– volume: 154
  start-page: 99
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0057
  article-title: Impact of digoxin use on interstage outcomes of single ventricle heart disease (from a NPC-QIC Registry Analysis)
  publication-title: Am J Cardiol
  doi: 10.1016/j.amjcard.2021.05.048
  contributor:
    fullname: Klausner
– volume: 26
  start-page: 1597
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0026
  article-title: Big data and paediatric cardiovascular disease in the era of transparency in healthcare
  publication-title: Cardiol Young
  doi: 10.1017/S1047951116001736
  contributor:
    fullname: Asante-Korang
– volume: 19
  start-page: 544
  year: 2018
  ident: 10.1053/j.jvca.2022.11.034_bib0076
  article-title: Characteristics, risk factors, and outcomes of extracorporeal membrane oxygenation use in pediatric cardiac ICUs: A report from the pediatric Cardiac Care Consortium Registry
  publication-title: PCCM
  contributor:
    fullname: Brunetti
– volume: 313
  start-page: 505
  year: 2015
  ident: 10.1053/j.jvca.2022.11.034_bib0049
  article-title: Association of hospital participation in a surgical outcomes monitoring program with inpatient complications and mortality
  publication-title: JAMA
  doi: 10.1001/jama.2015.90
  contributor:
    fullname: Etzioni
– volume: 124
  start-page: 572
  year: 2017
  ident: 10.1053/j.jvca.2022.11.034_bib0009
  article-title: Anesthesia and databases: Pediatric cardiac disease as a role model
  publication-title: Anesth Analg
  doi: 10.1213/ANE.0000000000001448
  contributor:
    fullname: Vener
– ident: 10.1053/j.jvca.2022.11.034_bib0012
– volume: 112
  start-page: 1753
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0023
  article-title: The Society of Thoracic Surgeons congenital heart surgery database: 2021 update on outcomes and research
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2021.10.002
  contributor:
    fullname: Kumar
– ident: 10.1053/j.jvca.2022.11.034_bib0054
– volume: 101
  start-page: 190
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0030
  article-title: Improving cardiac surgical site infection reporting and prevention by using registry data for case ascertainment
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2015.07.042
  contributor:
    fullname: Nayar
– ident: 10.1053/j.jvca.2022.11.034_bib0067
– volume: 123
  start-page: 715
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0041
  article-title: The perioperative use of dexmedetomidine in pediatric patients with congenital heart disease: An analysis from the Congenital Cardiac Anesthesia Society-Society of Thoracic Surgeons Congenital Heart Disease Database
  publication-title: Anesth Analg
  doi: 10.1213/ANE.0000000000001314
  contributor:
    fullname: Schwartz
– volume: 10
  start-page: 9289
  year: 2020
  ident: 10.1053/j.jvca.2022.11.034_bib0098
  article-title: Deep learning for improved risk prediction in surgical outcomes
  publication-title: Sci Rep
  doi: 10.1038/s41598-020-62971-3
  contributor:
    fullname: Jalali
– volume: 92
  start-page: 2184
  year: 2011
  ident: 10.1053/j.jvca.2022.11.034_bib0077
  article-title: Variation in outcomes for benchmark operations: an analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2011.06.008
  contributor:
    fullname: Jacobs
– volume: 147
  start-page: 389
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0080
  article-title: Technical performance scores are strongly associated with early mortality, postoperative adverse events, and intensive care unit length of stay-analysis of consecutive discharges for 2 years
  publication-title: J Thorac Cardiovasc Surg
  doi: 10.1016/j.jtcvs.2013.07.044
  contributor:
    fullname: Nathan
– volume: 67
  start-page: 793
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0003
  article-title: Post-operative outcomes in children with and without congenital heart disease undergoing noncardiac surgery
  publication-title: J Am Coll Cardiol
  doi: 10.1016/j.jacc.2015.11.057
  contributor:
    fullname: Faraoni
– volume: 8
  start-page: 77
  year: 2017
  ident: 10.1053/j.jvca.2022.11.034_bib0015
  article-title: Clinical databases and registries in congenital and pediatric cardiac surgery, cardiology, critical care, and anesthesiology worldwide
  publication-title: World J Pediatr Congenit Heart Surg
  doi: 10.1177/2150135116681730
  contributor:
    fullname: Vener
– volume: 38
  start-page: 45
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0096
  article-title: A review of analytics and clinical informatics in health care
  publication-title: J Med Syst
  doi: 10.1007/s10916-014-0045-x
  contributor:
    fullname: Simpao
– volume: 338
  start-page: 89
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0085
  article-title: National and regional registries for congenital heart diseases: Strengths, weaknesses and opportunities
  publication-title: Int J Cardiol
  doi: 10.1016/j.ijcard.2021.05.007
  contributor:
    fullname: Chami
– volume: 11
  start-page: 14
  year: 2020
  ident: 10.1053/j.jvca.2022.11.034_bib0038
  article-title: The Congenital Cardiac Anesthesia Society-Society of Thoracic Surgeons Cardiac Anesthesia Database collaboration
  publication-title: World J Pediatr Congenit Heart Surg
  doi: 10.1177/2150135119884911
  contributor:
    fullname: Vener
– volume: 31
  start-page: 1934
  year: 2017
  ident: 10.1053/j.jvca.2022.11.034_bib0040
  article-title: Review of the Society of Thoracic Surgeons Congenital Heart Surgery Database: 2017 update on outcomes and quality implications for the anesthesiologist
  publication-title: J Cardiothorac Vasc Anesth
  doi: 10.1053/j.jvca.2017.06.027
  contributor:
    fullname: Ing
– volume: 379
  start-page: 537
  year: 2012
  ident: 10.1053/j.jvca.2022.11.034_bib0088
  article-title: Clinical features of paediatric pulmonary hypertension: A registry study
  publication-title: Lancet
  doi: 10.1016/S0140-6736(11)61621-8
  contributor:
    fullname: Berger
– volume: 107
  start-page: 1427
  year: 2019
  ident: 10.1053/j.jvca.2022.11.034_bib0064
  article-title: Sustainability of infant cardiac surgery early extubation practices after implementation and study
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2018.09.024
  contributor:
    fullname: Gaies
– year: 2022
  ident: 10.1053/j.jvca.2022.11.034_bib0005
  article-title: Analgesic effects of a novel combination of regional anesthesia after pediatric cardiac surgery: A retrospective cohort study
  publication-title: J Cardiothorac Vasc Anesth
  doi: 10.1053/j.jvca.2022.07.014
  contributor:
    fullname: Einhorn
– volume: 27
  start-page: 555
  year: 2015
  ident: 10.1053/j.jvca.2022.11.034_bib0050
  article-title: Quality improvement through collaboration: The National Pediatric Quality Improvement Collaborative Initiative
  publication-title: Curr Opin Pediatr
  doi: 10.1097/MOP.0000000000000263
  contributor:
    fullname: Clauss
– volume: 111
  start-page: 532
  year: 2013
  ident: 10.1053/j.jvca.2022.11.034_bib0083
  article-title: Perioperative database research: Possibilities and pitfalls
  publication-title: Br J Anaesth
  doi: 10.1093/bja/aet164
  contributor:
    fullname: Fleischut
– volume: 2
  year: 2013
  ident: 10.1053/j.jvca.2022.11.034_bib0010
  article-title: Public health science agenda for congenital heart defects: Report from a Centers for Disease Control and Prevention experts meeting
  publication-title: J Am Heart Assoc
  doi: 10.1161/JAHA.113.000256
  contributor:
    fullname: Oster
– volume: 14
  start-page: 438
  year: 2019
  ident: 10.1053/j.jvca.2022.11.034_bib0061
  article-title: Feeding methods for infants with single ventricle physiology are associated with length of stay during stage 2 surgery hospitalization
  publication-title: Congenit Heart Dis
  doi: 10.1111/chd.12742
  contributor:
    fullname: Hoch
– volume: 16
  start-page: 837
  year: 2015
  ident: 10.1053/j.jvca.2022.11.034_bib0065
  article-title: Clinical epidemiology of extubation failure in the pediatric cardiac ICU: A report from the Pediatric Critical Care Consortium
  publication-title: Pediatr Crit Care Med
  doi: 10.1097/PCC.0000000000000498
  contributor:
    fullname: Gaies
– volume: 27
  start-page: 757
  year: 2017
  ident: 10.1053/j.jvca.2022.11.034_bib0094
  article-title: Out of many, one: Integrating data in the pediatric cardiovascular environment
  publication-title: Cardiol Young
  doi: 10.1017/S1047951116001268
  contributor:
    fullname: Bradley
– volume: 148
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0079
  article-title: Technical performance score is associated with outcome after the Norwood procedure
  publication-title: J Thorac Cardiovasc Surg
  contributor:
    fullname: Nathan
– volume: 43
  start-page: 605
  year: 2022
  ident: 10.1053/j.jvca.2022.11.034_bib0056
  article-title: Socioeconomic impact on outcomes during the first year of life of patients with single ventricle heart disease: An analysis of the National Pediatric Cardiology Quality Improvement Collaborative Registry
  publication-title: Pediatr Cardiol
  doi: 10.1007/s00246-021-02763-2
  contributor:
    fullname: de Loizaga
– volume: 129
  start-page: c370
  year: 2012
  ident: 10.1053/j.jvca.2022.11.034_bib0027
  article-title: Association of center volume with mortality and complications in pediatric heart surgery
  publication-title: Pediatrics
  doi: 10.1542/peds.2011-1188
  contributor:
    fullname: Pasquali
– volume: 132
  start-page: 160
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0097
  article-title: Machine learning applied to registry data: development of a patient-specific prediction model for blood transfusion requirements during craniofacial surgery using the pediatric craniofacial perioperative registry dataset
  publication-title: Anesth Analg
  doi: 10.1213/ANE.0000000000004988
  contributor:
    fullname: Jalali
– volume: 94
  start-page: 2159
  year: 2012
  ident: 10.1053/j.jvca.2022.11.034_bib0039
  article-title: Development and implementation of a new data registry in congenital cardiac anesthesia
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2012.06.070
  contributor:
    fullname: Vener
– volume: 35
  start-page: 436
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0086
  article-title: Anesthesiology research using surgical registries: Consider the source
  publication-title: J Cardiothorac Vasc Anesth
  doi: 10.1053/j.jvca.2020.10.001
  contributor:
    fullname: Nampi
– volume: 30
  start-page: 1623
  year: 2020
  ident: 10.1053/j.jvca.2022.11.034_bib0068
  article-title: Neurodevelopmental evaluation for school-age children with congenital heart disease: recommendations from the Cardiac Neurodevelopmental Outcome Collaborative
  publication-title: Cardiol Young
  doi: 10.1017/S1047951120003546
  contributor:
    fullname: Ilardi
– volume: 18
  start-page: 1876
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0058
  article-title: Predictors and outcomes of heart block during surgical stage I palliation of patients with a single ventricle: A report from the NPC-QIC
  publication-title: Heart Rhythm
  doi: 10.1016/j.hrthm.2021.05.019
  contributor:
    fullname: Czosek
– volume: 15
  start-page: e9
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0071
  article-title: Extracorporeal cardiopulmonary resuscitation outcomes in term and premature neonates
  publication-title: Pediatr Crit Care Med
  doi: 10.1097/PCC.0b013e3182a553f3
  contributor:
    fullname: McMullan
– volume: 97
  start-page: S48
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0018
  article-title: The STS national database
  publication-title: Am Thorac Surg
  doi: 10.1016/j.athoracsur.2013.10.015
  contributor:
    fullname: Grover
– volume: 10
  start-page: 72
  year: 2019
  ident: 10.1053/j.jvca.2022.11.034_bib0046
  article-title: IMPACT Registry and National Pediatric Cardiology Quality Improvement Collaborative: Contributions to quality in congenital heart disease
  publication-title: World J Pediatr Congenit Heart Surg
  doi: 10.1177/2150135118815059
  contributor:
    fullname: Martin
– volume: 25
  start-page: 1572
  year: 2015
  ident: 10.1053/j.jvca.2022.11.034_bib0081
  article-title: Higher programmatic volume in paediatric heart surgery is associated with better early outcomes
  publication-title: Cardiol Young
  doi: 10.1017/S1047951115002073
  contributor:
    fullname: Kansy
– volume: 25
  start-page: 489
  year: 2011
  ident: 10.1053/j.jvca.2022.11.034_bib0004
  article-title: Perioperative effectiveness research using large databases
  publication-title: Best Pract Res Clin Anaesthesiol
  doi: 10.1016/j.bpa.2011.08.008
  contributor:
    fullname: Freundlich
– volume: 5
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0016
  article-title: Databases for congenital heart defect public health studies across the lifespan
  publication-title: J Am Heart Assoc
  doi: 10.1161/JAHA.116.004148
  contributor:
    fullname: Riehle-Colarusso
– volume: 25
  start-page: 951
  year: 2015
  ident: 10.1053/j.jvca.2022.11.034_bib0087
  article-title: Collaborative quality improvement in the cardiac intensive care unit: Development of the Paediatric Cardiac Critical Care Consortium (PC4)
  publication-title: Cardiol Young
  doi: 10.1017/S1047951114001450
  contributor:
    fullname: Gaies
– volume: 160
  start-page: 1021
  year: 2020
  ident: 10.1053/j.jvca.2022.11.034_bib0060
  article-title: Development of a validated risk score for interstage death or transplant after stage I palliation for single-ventricle heart disease
  publication-title: J Thorac Cardiovasc Surg
  doi: 10.1016/j.jtcvs.2019.11.001
  contributor:
    fullname: Ahmed
– volume: 77
  start-page: 1341
  year: 2004
  ident: 10.1053/j.jvca.2022.11.034_bib0072
  article-title: Extracorporeal membrane oxygenation support of the Fontan and bidirectional Glenn circulations
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2003.09.042
  contributor:
    fullname: Bootj
– volume: 5
  start-page: 256
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0091
  article-title: Linking the congenital heart surgery databases of the Society of Thoracic Surgeons and the Congenital Heart Surgeons’ Society: Part 1 – rationale and methodology
  publication-title: World J Pediatr Congenit Heart Surg
  doi: 10.1177/2150135113519454
  contributor:
    fullname: Jacobs
– volume: 115
  start-page: 350
  year: 2015
  ident: 10.1053/j.jvca.2022.11.034_bib0084
  article-title: Big data and visual analytics in anaesthesia and health care
  publication-title: Br J Anaesth
  doi: 10.1093/bja/aeu552
  contributor:
    fullname: Simpao
– volume: 106
  start-page: 1603
  year: 2018
  ident: 10.1053/j.jvca.2022.11.034_bib0024
  article-title: The Society of Thoracic Surgeons National Database 2018 Annual Report
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2018.10.001
  contributor:
    fullname: Jacobs
– ident: 10.1053/j.jvca.2022.11.034_bib0022
– volume: 17
  start-page: 939
  year: 2016
  ident: 10.1053/j.jvca.2022.11.034_bib0063
  article-title: Utilizing a collaborative learning model to promote early extubation following infant heart surgery
  publication-title: Pediatr Crit Care Med
  doi: 10.1097/PCC.0000000000000918
  contributor:
    fullname: Mahle
– volume: 339
  start-page: 43
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0095
  article-title: Congenital heart disease registries: Vast room for improvement
  publication-title: Int J Cardiol
  doi: 10.1016/j.ijcard.2021.07.016
  contributor:
    fullname: Percin
– volume: 82
  year: 2006
  ident: 10.1053/j.jvca.2022.11.034_bib0021
  article-title: Report of the 2005 STS Congenital Heart Surgery Practice and Manpower Survey
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2006.04.022
  contributor:
    fullname: Jacobs
– volume: 106
  start-page: 654
  year: 2018
  ident: 10.1053/j.jvca.2022.11.034_bib0025
  article-title: The Society of Thoracic Surgeons Congenital Heart Surgery Database: 2018 update on research
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2018.06.032
  contributor:
    fullname: Jacobs
– volume: 40
  start-page: 489
  year: 2019
  ident: 10.1053/j.jvca.2022.11.034_bib0033
  article-title: Prenatal diagnosis influences preoperative status in neonates with congenital heart disease: An analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database
  publication-title: Pediatr Cardiol
  doi: 10.1007/s00246-018-1995-4
  contributor:
    fullname: Quartermain
– volume: 114
  start-page: 2323
  year: 2022
  ident: 10.1053/j.jvca.2022.11.034_bib0035
  article-title: Assessment of current Society of Thoracic Surgeons data elements for adults with congenital heart disease
  publication-title: Ann Thorac Surg
  doi: 10.1016/j.athoracsur.2021.11.017
  contributor:
    fullname: Nelson
– volume: 275
  start-page: 841
  year: 1996
  ident: 10.1053/j.jvca.2022.11.034_bib0052
  article-title: A regional intervention to improve the hospital mortality associated with coronary artery bypass graft surgery
  publication-title: JAMA
  doi: 10.1001/jama.1996.03530350023029
  contributor:
    fullname: O'Connor
– volume: 133
  start-page: 1077
  year: 2021
  ident: 10.1053/j.jvca.2022.11.034_bib0044
  article-title: Postoperative hematocrit and adverse outcomes in pediatric cardiac surgery patients: A cross-sectional study from the Society of Thoracic Surgeons and Congenital Cardiac Anesthesia Society Database Collaboration
  publication-title: Anesth Analg
  doi: 10.1213/ANE.0000000000005416
  contributor:
    fullname: Long
– volume: 39
  start-page: 1890
  year: 2002
  ident: 10.1053/j.jvca.2022.11.034_bib0001
  article-title: The incidence of congenital heart disease
  publication-title: J Am Coll Cardiol
  doi: 10.1016/S0735-1097(02)01886-7
  contributor:
    fullname: Hoffman
– volume: 147
  start-page: 658
  year: 2014
  ident: 10.1053/j.jvca.2022.11.034_bib0028
  article-title: Perioperative mechanical circulatory support in children: An analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database
  publication-title: J Thorac Cardiovasc Surg
  doi: 10.1016/j.jtcvs.2013.09.075
  contributor:
    fullname: Mascio
SSID ssj0011557
Score 2.4063962
SecondaryResourceType review_article
Snippet Congenital heart disease (CHD) is one of the most common birth anomalies. While the care of children with CHD has improved over recent decades, children with...
SourceID proquest
crossref
pubmed
elsevier
SourceType Aggregation Database
Index Database
Publisher
StartPage 461
SubjectTerms Anesthesia, Cardiac Procedures
Anesthesia, General - adverse effects
cardiac anesthesia
Child
congenital heart disease
Critical Care
data registries
Heart Defects, Congenital - epidemiology
Heart Defects, Congenital - surgery
Humans
Multicenter Studies as Topic
pediatrics
Registries
Title A Narrative Review of Multiinstitutional Data Registries of Pediatric Congenital Heart Disease in Pediatric Cardiac Anesthesia and Critical Care Medicine
URI https://dx.doi.org/10.1053/j.jvca.2022.11.034
https://www.ncbi.nlm.nih.gov/pubmed/36529633
https://search.proquest.com/docview/2755800319
Volume 37
hasFullText 1
inHoldings 1
isFullTextHit
isPrint
link http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwnR3LTtxAzIJFqnpBbelj-0CD1BvKPuaZHFdL0baIvRQkbtG8IoVDFkHokf_gb7GTyYoe6KG3JONRrLHHj_HYBvhug3bGmEBBd55J5XlWqCAyGVSsXKGKICg5-XytV5fy15W62oHlkAtD1yqT7O9leiet05dpWs3pTV1Pf6NlgAxqKFWUyrTrXdhDdSTlCPYWP89W620wAVVm12MF4TOakHJn8HV6Pbn-46n8EOcTKuYp5Ev66SX7s9NDp29gPxmQbNHj-BZ2YvMOXp2nEPkBPC7Y2t729bxZf_LPNhXrEm3rdDOgO_5jJ7a1CEEZQOQvE9S2cQdbbijpijqKsBVuhpad9JEcVjfPoTr-8myBAhMtybvaMtsENvRPoPHIBtzew-Xpj4vlKkv9FzLPc91mNsxxbX1eySoGP6-M96EwswqNIo1edeBOxkK7mXY0llsveXAm17irc-kqLT7AqNk08RMwG6zgfobGT7Cysrmz-BhDMROGB6TPGI6HVS9v-jIbZRceVwLdE6JRSTRCf6VEGo1BDYQp_2KWEvXAP-cdDVQscRdRaMQ2cXN_V3KjVE4CrhjDx568WzyEpti0EJ__869f4DX1qO8vrn2FUXt7H7-hJdO6Q9idPMwPE78-AYMA83s
link.rule.ids 315,786,790,4521,24144,27955,27956,45618,45712
linkProvider Elsevier
linkToHtml http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwnV1LT9tAEB5RKrW9VH03tNCt1FvlJOzTPkYBlLYkl4LEbbUvS-bgIDA98j_4t8z4EcGBHrj5MZZXO7Oz3-y8AH64qL0xJpLTnWdSBZ4VKopMRpVKX6giCkpOXq704lT-PlNnWzAfcmEorLLX_Z1Ob7V1_2TSz-bkoqomfxEZoIAaShWlMu36GTwnNEBxXeObTZwHIp623CdRZ0TeZ87g7eR8fP4vUPEhzsdUylPIx3anx9BnuwsdvYHXPXxks26Eb2Er1e_gxbJ3kL-H2xlbucuumjfrzv3ZumRtmm3VxwW0h3_swDUOKSj_h6xlotq07WDzNaVcUT8RtsCl0LCDzo_Dqvo-VStdgc1QXSKOvKocc3VkQ_cEep_YMLYPcHp0eDJfZH33hSzwXDeZi_s4syEvZZli2C9NCLEw0xIhkUabOnIvU6H9VHt6l7sgefQm17imc-lLLT7Cdr2u02dgLjrBwxShT3SydLl3eJliMRWGR-TPCH4Os24vuiIbtnWOK4HGCfHIEo_QWrHIoxGogTH2gahY3AX--933gYsW1xA5Rlyd1tdXlhulclJvxQg-dezdjENo8kwLsfPEv36Dl4uT5bE9_rX68wVeUbf6LoTtK2w3l9dpFzFN4_damb0DrxD0UA
openUrl ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=A+Narrative+Review+of+Multiinstitutional+Data+Registries+of+Pediatric+Congenital+Heart+Disease+in+Pediatric+Cardiac+Anesthesia+and+Critical+Care+Medicine&rft.jtitle=Journal+of+cardiothoracic+and+vascular+anesthesia&rft.au=Desai%2C+Krupa+D.&rft.au=Yuan%2C+Ian&rft.au=Padiyath%2C+Asif&rft.au=Goldsmith%2C+Michael+P.&rft.date=2023-03-01&rft.issn=1053-0770&rft.volume=37&rft.issue=3&rft.spage=461&rft.epage=470&rft_id=info:doi/10.1053%2Fj.jvca.2022.11.034&rft.externalDBID=n%2Fa&rft.externalDocID=10_1053_j_jvca_2022_11_034
thumbnail_l http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/lc.gif&issn=1053-0770&client=summon
thumbnail_m http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/mc.gif&issn=1053-0770&client=summon
thumbnail_s http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/sc.gif&issn=1053-0770&client=summon