A Narrative Review of Multiinstitutional Data Registries of Pediatric Congenital Heart Disease in Pediatric Cardiac Anesthesia and Critical Care Medicine

• Published in: Journal of cardiothoracic and vascular anesthesia Vol. 37; no. 3; pp. 461 - 470
• Main Authors: Desai, Krupa D., Yuan, Ian, Padiyath, Asif, Goldsmith, Michael P., Tsui, Fu-Chiang, Pratap, Jayant Nick, Nelson, Olivia, Simpao, Allan F.
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.03.2023
• Subjects: Anesthesia, Cardiac Procedures; Anesthesia, General - adverse effects; cardiac anesthesia; Child; congenital heart disease; Critical Care; data registries; Heart Defects, Congenital - epidemiology; Heart Defects, Congenital - surgery; Humans; Multicenter Studies as Topic; pediatrics; Registries; cardiac anesthesia; congenital heart disease; data registries; pediatrics
• ISSN: 1053-0770; 1532-8422
• DOI: 10.1053/j.jvca.2022.11.034

Congenital heart disease (CHD) is one of the most common birth anomalies. While the care of children with CHD has improved over recent decades, children with CHD who undergo general anesthesia remain at increased risk for morbidity and mortality. Electronic health record systems have enabled institutions to combine data on the management and outcomes of children with CHD in multicenter registries. The application of descriptive analytics methods to these data can improve clinicians’ understanding and care of children with CHD. This narrative review covers efforts to leverage multicenter data registries relevant to pediatric cardiac anesthesia and critical care to improve the care of children with CHD.