Promoting pain coping skills in haemophilia: A remote intervention integrating exercise and pain education

• Published in: Haemophilia : the official journal of the World Federation of Hemophilia Vol. 30; no. 3; pp. 800 - 808
• Main Authors: Feldberg, Glenda, Ricciardi, Janaína B S, Zorzi, Alessandro R, Yamaguti-Hayakawa, Gabriela G, Ozelo, Margareth C
• Format: Journal Article
• Language: English
• Published: England Wiley Subscription Services, Inc 01.05.2024
• Subjects: Adolescent; Adult; Arthralgia; Chronic pain; Chronic Pain - psychology; Chronic Pain - therapy; Coping; Coping Skills; Exercise; Exercise Therapy - methods; Female; Hemophilia; Hemophilia A - complications; Hemophilia A - psychology; Hemophilia A - therapy; Humans; Male; Middle Aged; Pain management; Pain Management - methods; Patient Education as Topic; Young Adult; haemophilia; remote intervention; pain; pain management; coping strategies
• ISSN: 1351-8216; 1365-2516; 1365-2516
• DOI: 10.1111/hae.14991

Chronic joint pain is a significant and widespread symptom in people with haemophilia (PWH). Despite medical advancements, effective pain management remains challenging. This study presents an innovative approach that integrates remote physical exercises, pain neuroscience education, and coping strategies to address chronic pain in PWH. The remote intervention consisted of sixteen 5-min videos encompassing physical exercises for chronic pain management and pain education strategies. These videos formed an 8-week remote intervention program. Clinical and physical assessments were conducted before and after the intervention. A total of thirty-one PWHs, with a median age of 34 years (ranging from 16 to 59 years), completed the remote intervention. The study revealed significant improvements in pain intensity, disability, and physical performance among PWH with chronic pain. Enhanced functional capacity was evident in the Timed Up and Go and Single Leg Stance tests, accompanied by improved scores on the Functional Independence Score in Haemophilia (FISH). Although lacking a control group, our findings are consistent with other successful exercise and pain education programs. This innovative intervention holds promise for managing chronic pain in PWH, underscoring patient empowerment, education, and collaboration. Notably, our study stands out by uniquely combining pain education and coping strategies, bolstering evidence for effective pain management.