Public Perspectives on Consent for and Governance of Biobanking in Japan

• Published in: Journal of empirical research on human research ethics Vol. 19; no. 4-5; pp. 208 - 219
• Main Authors: Oikawa, Masanori, Takimoto, Yoshiyuki
• Format: Journal Article
• Language: English
• Published: Los Angeles, CA SAGE Publications 01.10.2024; Sage Publications Ltd
• Subjects: Adult; Aged; Attitude; Biological Specimen Banks; Biomedical Research - ethics; Female; Humans; Informed Consent; Japan; Male; Middle Aged; Public Opinion; Surveys and Questionnaires; Tissue Donors; Trust; Young Adult; Japan; trust; informed consent; broad consent; Japan; solidarity; biorepositories/biobanks; research ethics; survey research; tissue samples; reciprocity

Through strengthened biobank governance, broad consent has been widely accepted as a means to replace donors’ discretion based on the information of individual research protocols. Trust and other ethical and social notions, such as reciprocity and solidarity, are key concepts that support biobank go...