Public Perspectives on Consent for and Governance of Biobanking in Japan

Through strengthened biobank governance, broad consent has been widely accepted as a means to replace donors’ discretion based on the information of individual research protocols. Trust and other ethical and social notions, such as reciprocity and solidarity, are key concepts that support biobank go...

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Published inJournal of empirical research on human research ethics Vol. 19; no. 4-5; pp. 208 - 219
Main Authors Oikawa, Masanori, Takimoto, Yoshiyuki
Format Journal Article
LanguageEnglish
Published Los Angeles, CA SAGE Publications 01.10.2024
Sage Publications Ltd
Subjects
Adult
Aged
Attitude
Biological Specimen Banks
Biomedical Research - ethics
Female
Humans
Informed Consent
Japan
Male
Middle Aged
Public Opinion
Surveys and Questionnaires
Tissue Donors
Trust
Young Adult
Japan
trust
informed consent
broad consent
Japan
solidarity
biorepositories/biobanks
research ethics
survey research
tissue samples
reciprocity
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Abstract Through strengthened biobank governance, broad consent has been widely accepted as a means to replace donors’ discretion based on the information of individual research protocols. Trust and other ethical and social notions, such as reciprocity and solidarity, are key concepts that support biobank governance. The types of allowed broad consent are several; however, they remain unclear, and whether these ethical and social notions are associated with public attitudes toward the consent model is not fully understood. This quantitative study examined two hypotheses: narrower and limited broad consent are more accepted by the public, and acceptance rates for broad consent increase with established measures related to biobank governance. This analysis supported both hypotheses, implying that the limited type of broad consent should be considered an important option, and that a specific type of governance is critical in promoting trust, reciprocity, and solidarity between biobanks and the public.
AbstractList Through strengthened biobank governance, broad consent has been widely accepted as a means to replace donors' discretion based on the information of individual research protocols. Trust and other ethical and social notions, such as reciprocity and solidarity, are key concepts that support biobank governance. The types of allowed broad consent are several; however, they remain unclear, and whether these ethical and social notions are associated with public attitudes toward the consent model is not fully understood. This quantitative study examined two hypotheses: narrower and limited broad consent are more accepted by the public, and acceptance rates for broad consent increase with established measures related to biobank governance. This analysis supported both hypotheses, implying that the limited type of broad consent should be considered an important option, and that a specific type of governance is critical in promoting trust, reciprocity, and solidarity between biobanks and the public.Through strengthened biobank governance, broad consent has been widely accepted as a means to replace donors' discretion based on the information of individual research protocols. Trust and other ethical and social notions, such as reciprocity and solidarity, are key concepts that support biobank governance. The types of allowed broad consent are several; however, they remain unclear, and whether these ethical and social notions are associated with public attitudes toward the consent model is not fully understood. This quantitative study examined two hypotheses: narrower and limited broad consent are more accepted by the public, and acceptance rates for broad consent increase with established measures related to biobank governance. This analysis supported both hypotheses, implying that the limited type of broad consent should be considered an important option, and that a specific type of governance is critical in promoting trust, reciprocity, and solidarity between biobanks and the public.
Through strengthened biobank governance, broad consent has been widely accepted as a means to replace donors’ discretion based on the information of individual research protocols. Trust and other ethical and social notions, such as reciprocity and solidarity, are key concepts that support biobank governance. The types of allowed broad consent are several; however, they remain unclear, and whether these ethical and social notions are associated with public attitudes toward the consent model is not fully understood. This quantitative study examined two hypotheses: narrower and limited broad consent are more accepted by the public, and acceptance rates for broad consent increase with established measures related to biobank governance. This analysis supported both hypotheses, implying that the limited type of broad consent should be considered an important option, and that a specific type of governance is critical in promoting trust, reciprocity, and solidarity between biobanks and the public.
Author Takimoto, Yoshiyuki
Oikawa, Masanori
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informed consent
broad consent
Japan
solidarity
biorepositories/biobanks
research ethics
survey research
tissue samples
reciprocity
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Snippet Through strengthened biobank governance, broad consent has been widely accepted as a means to replace donors’ discretion based on the information of individual...
Through strengthened biobank governance, broad consent has been widely accepted as a means to replace donors' discretion based on the information of individual...
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SubjectTerms Adult
Aged
Attitude
Biological Specimen Banks
Biomedical Research - ethics
Female
Humans
Informed Consent
Japan
Male
Middle Aged
Public Opinion
Surveys and Questionnaires
Tissue Donors
Trust
Young Adult
Title Public Perspectives on Consent for and Governance of Biobanking in Japan
URI https://journals.sagepub.com/doi/full/10.1177/15562646241286143
https://www.ncbi.nlm.nih.gov/pubmed/39328053
https://www.proquest.com/docview/3132909740
https://www.proquest.com/docview/3110403205
Volume 19
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