Developing Behavior Change Model‐Informed and Participant‐Engaged Retention Strategies for Adolescents and Young Adults With Cancer Enrolled on Behavioral and/or Psychosocial Trials

ABSTRACT Adolescents and young adults (AYAs) with cancer face unique demands, which result in barriers to psychosocial/behavioral trial retention. Theory‐informed and patient‐engaged strategies have the potential to increase retention. The purpose of this manuscript is to illustrate how to partner w...

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Bibliographic Details
Published inPediatric blood & cancer Vol. 72; no. 5; pp. e31583 - n/a
Main Authors McGrady, Meghan E., Webster, Rachel Tillery, Burke, Macks, Gomez, Chelsey, Breen, Gabriella, Herriott, Julia K., Norris, Robin E., Ketterl, Tyler G.
Format Journal Article
LanguageEnglish
Published United States Wiley Subscription Services, Inc 01.05.2025
Subjects
Adolescent
Adolescents
Behavior Therapy
Behavioral Research
cancer
Clinical trials
Clinical Trials as Topic - psychology
Female
Humans
Male
Models, Psychological
Neoplasms - psychology
Patient Participation - methods
Patient Participation - psychology
Research Subjects - psychology
retention
Young Adult
Young adults
adolescent
young adult
cancer
clinical trials
retention
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Summary:ABSTRACT Adolescents and young adults (AYAs) with cancer face unique demands, which result in barriers to psychosocial/behavioral trial retention. Theory‐informed and patient‐engaged strategies have the potential to increase retention. The purpose of this manuscript is to illustrate how to partner with AYAs and leverage the Theoretical Domains Framework to identify barriers to retention and behavior change techniques (BCTs) targeting these barriers to create retention strategies. Exemplar strategies developed using this approach and implemented in our trial of an adherence‐promotion intervention are discussed, and a roadmap is included for teams interested in developing similar strategies to meet their unique needs.
Bibliography:Funding
Research reported in this publication was supported by the National Cancer Institute of the National Institutes of Health under Award Numbers K07CA200668 and R21CA268945, and the Cincinnati Children's Hospital Medical Center Charlotte R. Schmidlapp Women Scholars Program. Research reported in this publication also utilized REDCap, which was supported by the National Center for Advancing Translational Sciences of the National Institutes of Health to the University of Cincinnati under Award Number UL1TR001425. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
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ISSN:1545-5009
1545-5017
1545-5017
DOI:10.1002/pbc.31583