Women's Experience With Celiac Disease: A Phenomenological Study
The purpose of this qualitative study was to explore the lived experience of women who have been diagnosed with celiac disease. Celiac disease is a multisystem autoimmune disease and affects approximately 1% of the population. In addition, celiac disease is seen 1-2 times more often in women and the...
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| Published in | Gastroenterology nursing Vol. 43; no. 5; p. E190 |
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| Main Author | |
| Format | Journal Article |
| Language | English |
| Published |
United States
01.09.2020
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| Online Access | Get more information |
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| Summary: | The purpose of this qualitative study was to explore the lived experience of women who have been diagnosed with celiac disease. Celiac disease is a multisystem autoimmune disease and affects approximately 1% of the population. In addition, celiac disease is seen 1-2 times more often in women and they tend to have more severe disease and treatment burden. Quantitative research has been completed on celiac disease, but there remains a gap related to the implications of the disease from a qualitative perspective. The research tradition used for this qualitative study was phenomenology. Interviews were audio-recorded using a developed questionnaire. Saturation of the data occurred after 12 participant interviews. Following the analysis, 5 themes resulted: (a) Who am I? (b) medical aspects; (c) challenges; (d) daily living; and (e) facing the challenges. There remains a gap in the education, support, advocacy, and follow-up care of this population. |
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| ISSN: | 1538-9766 |
| DOI: | 10.1097/SGA.0000000000000490 |