The evaluation of disease awareness, caregiver burden, and workday loss in caregivers of COPD patients

• Published in: Turkish journal of medical sciences Vol. 52; no. 2; pp. 346 - 353
• Main Authors: Baha, Ayşe, Köktürk, Nurdan, Öztürk, Burcu, Yıldırım, Elif Özarı, Özmen, İpek, Gürgün, Alev, Topçu, Ayşe Füsun, Akpınar, Eylem, Elmas, Funda, Şen, Hadice Selimoğlu, Ogan, Nalan, Önder, Yeşim, Doğan, Ömer Tamer, Polatlı, Mehmet, Bingöl, Züleyha, Ece, Turhan, Çelik, Eda, Akgün, Metin, Özgür, Eylem Sercan, Naycı, Sibel Atış, Şerifoğlu, İrem, Ateş, Can
• Format: Journal Article
• Language: English
• Published: Turkey Scientific and Technological Research Council of Turkey (TUBITAK) 01.01.2021
• Subjects: Caregiver Burden; Caregivers - psychology; Forced Expiratory Volume; Humans; Oxygen; Pulmonary Disease, Chronic Obstructive - epidemiology; Pulmonary Disease, Chronic Obstructive - therapy; Severity of Illness Index; Surveys and Questionnaires; caregiver; Burden; COPD
• ISSN: 1300-0144; 1303-6165
• DOI: 10.3906/sag-2001-239

Our aim is to determine the caregiver burden of chronic obstructive lung disease (COPD) patient's caregivers, and to determine whether there is a workday loss. 252 COPD patients and their caregivers were included. Disease information of the patients were recorded and a questionnaire was applied. Socio-demographic characteristics of the caregivers were recorded and a questionnaire consisting of 24 questions including COPD disease, treatment and loss of working days, and the Zarit Scale were used. 128(50.8%) of the patients according to GOLD were group-D, 97(38.5%) of the patient's relatives were working, 62(24.7%) were not able to go to work for 1-14 days, and 125(57.1%) spent outside the home from 1-14 nights, because those accompanied to patients. In univariate analysis were detected modified medical research council (mMRC) (p < 0.001), CAT (p < 0.001), the number of comorbidities of patients (p = 0.027), forced expiratory volume in 1 FEV1cc (p = 0.009), FEV1% (p < 0.001), the presence of long term oxygen therapy (LTOT), and the number of comorbidities of the patient's relatives (p = 0.06) increased the care load. In multiple linear regression analysis, age (p = 0.03), COPD assessment test (CAT) score (p = 0.001), FEV1% (<0.068) and the number of comorbidities of patients (p = 0.01) and the number of comorbidities of caregivers (p = 0.003) increased the caregiving burden. In COPD increases caregiving burden. This burden is greater in symptomatic patients and when comorbidities are present. Psychosocial and legal regulations should be investigated and solutions should be produced for the caregivers of COPD patients.