The end of a participant's research journey: the expected path and the alternatives

This article discusses the expected and the alternative research journeys for clinical trial participants. It examines the stages when a participant may leave a trial, the reasons for alternative endings, and the impact of exiting a trial on both participants and health professionals. The participat...

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Bibliographic Details
Published inBritish journal of nursing (Mark Allen Publishing) Vol. 34; no. 13; p. 692
Main Author Pluess-Hall, Helen
Format Journal Article
LanguageEnglish
Published England 03.07.2025
Subjects
Clinical Trials as Topic
Humans
Research Subjects - psychology
United Kingdom
United Kingdom
Clinical research
Clinical trial
Trial termination
Patient support
Patient experience
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Summary:This article discusses the expected and the alternative research journeys for clinical trial participants. It examines the stages when a participant may leave a trial, the reasons for alternative endings, and the impact of exiting a trial on both participants and health professionals. The participation of patients and healthy volunteers is essential for treatments and care to be advanced. Research is no longer only the concern of dedicated clinical research nurses; it forms a pillar of nursing practice and the Chief Nursing Officer for England's Strategic Plan for Research applies to nurses in all roles, with the aim of research being embedded within the NHS. Therefore, nurses need an awareness and understanding of a patient's clinical trial journeys to provide appropriate support and care.
ISSN:2052-2819
DOI:10.12968/bjon.2025.0021