Methodologies and Inequities: Participatory and Narrative Approaches to Research with Marginalized Communities

In this commentary, we reflect on a study investigating how young people living with HIV navigated the COVID-19 pandemic and offer concrete methodological approaches to studying health inequity. We describe how participatory and narrative-based methods helped us develop five specific study protocols...

Full description

Saved in:
Bibliographic Details
Published inRhetoric of health & medicine Vol. 7; no. 2; pp. 225 - 254
Main Authors Green, McKinley, Crutcher, Val, Lune, Océane, Mutmainna, Munira, Lenoir, Racquelle, Schuster, Andrew, Urvina, Gage, Brown, Calla
Format Journal Article
LanguageEnglish
Published Gainesville University Press of Florida 22.03.2024
Subjects
Acquired immune deficiency syndrome
AIDS
COVID-19
Floyd, George
HIV
Human immunodeficiency virus
Social exclusion
Online AccessGet full text

Cover

More Information
Summary:In this commentary, we reflect on a study investigating how young people living with HIV navigated the COVID-19 pandemic and offer concrete methodological approaches to studying health inequity. We describe how participatory and narrative-based methods helped us develop five specific study protocols that reflected our commitments to equity in research: revising questions to account for local conditions of risk; intervening in histories of extractive research practices leveraged against communities at the margins; phrasing demographic questions to account for the complexity of identity; incorporating consent iteratively across the study; and offering incentives that were consistent with participants' expertise of their own lived experiences. We use these reflections to further ongoing conversations about integrating equity into rhetorically inflected health research. Keywords: HIV, Covid-19, participatory action research, narrative medicine, research methods
ISSN:2573-5055
2573-5063
DOI:10.5744/rhm.2024.2005