Anxiety, Coping, and Stress: Counseling Parents of Children With a Rare Disease

Rare diseases affect an estimated 300 million individuals worldwide, and ∼30 million Americans. One of these diseases, FOXG1 syndrome, is a severe neurological condition that causes medical complications and developmental delays. The majority of those diagnosed with the genetic condition are childre...

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Bibliographic Details
Published inThe Family journal (Alexandria, Va.) Vol. 30; no. 2; pp. 219 - 225
Main Author Sherrell, Renee S.
Format Journal Article
LanguageEnglish
Published Los Angeles, CA SAGE Publications 01.04.2022
SAGE PUBLICATIONS, INC
Subjects
Anxiety
Children
Coping
Counseling
Counseling services
Developmentally delayed children
Disease
Genetics
Help seeking behavior
Medicine
Parents & parenting
Rare diseases
Stress
stress
anxiety
rare disease
FOXG1 syndrome
coping
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Summary:Rare diseases affect an estimated 300 million individuals worldwide, and ∼30 million Americans. One of these diseases, FOXG1 syndrome, is a severe neurological condition that causes medical complications and developmental delays. The majority of those diagnosed with the genetic condition are children, making parenting a challenging experience. The purpose of this investigation was to explore the relationship between anxiety, coping, and stress among parents of children with FOXG1 syndrome, (N = 84). The objective was to identify how these constructs relate and contribute to one another to best treat parents who are seeking counseling services. Results indicated significant relationships between these constructs. Study implications, limitations, and areas for future research are discussed.
ISSN:1066-4807
1552-3950
DOI:10.1177/10664807211027274