Exploring Parent and Autistic Youth Perspectives to Inform Adaptations for an Advocacy Program

Autistic Youth and their parents often struggle to access adult disability services. It is important to garner feedback from autistic youth and their parents to inform interventions to facilitate access to adult services. In this study, 128 parents of transition-aged autistic youth and 78 autistic y...

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Bibliographic Details
Published inJournal of developmental and physical disabilities
Main Authors Burke, Meghan M., Johnston, Amanda N., Ramos-Torres, Saury, Singh, Sanskriti, DaWalt, Leann Smith, Taylor, Julie Lounds
Format Journal Article
LanguageEnglish
Published 29.01.2025
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ISSN1056-263X
1573-3580
DOI10.1007/s10882-025-10005-z

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Summary:Autistic Youth and their parents often struggle to access adult disability services. It is important to garner feedback from autistic youth and their parents to inform interventions to facilitate access to adult services. In this study, 128 parents of transition-aged autistic youth and 78 autistic youth completed individual interviews to inform adaptations to an advocacy program designed to improve access to adult services. Parents reported wanting a navigator (versus a group) program to help them learn to navigate adult services. However, parents reported concerns about the quality of navigators. Autistic youth reported wanting to learn about diverse issues in adulthood including types of adult services; most youth wanted to learn about services via videos. Implications for research and practice are discussed.
ISSN:1056-263X
1573-3580
DOI:10.1007/s10882-025-10005-z