Review: Quality of life in children with systemic lupus erythematosus: a review

Systemic lupus erythematosus (SLE) in children is a chronic multisystem disease with wide ranging effects on their quality of life (QOL). While SLE's impact on different arenas of life and well-being has been extensively examined in the adult population, its effect on children has not received...

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Bibliographic Details
Published inLupus Vol. 16; no. 8; pp. 663 - 669
Main Authors Moorthy, LN, Peterson, Mge, Harrison, MJ, Onel, KB, Lehman, Tja
Format Book Review Journal Article
LanguageEnglish
Published London, England SAGE Publications 01.08.2007
Sage Publications Ltd
Subjects
Chronic illnesses
Cognition & reasoning
Cognitive ability
Disability
Disease
Hospitals
Lupus
Parents & parenting
Pediatrics
Quality of life
Rheumatology
Surgery
New York
United States > US
quality of life
systemic lupus erythematosus
pediatric
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Summary:Systemic lupus erythematosus (SLE) in children is a chronic multisystem disease with wide ranging effects on their quality of life (QOL). While SLE's impact on different arenas of life and well-being has been extensively examined in the adult population, its effect on children has not received adequate attention. This review discusses the multidimensional aspect of QOL, the biopsychosocial implications of SLE, factors complicating QOL measurement in the affected population, and the different generic and disease-specific scales used for measuring QOL and related constructs. Until now, there have not been any pediatric SLE-specific health-related QOL (HRQOL) scales. A section is devoted to a novel instrument developed specifically for measuring QOL in pediatric lupus called the Simple Measure of the Impact of Lupus Erythematosus in Youngsters© (SMILEY©). SMILEY© is a brief, easily understood, valid, reliable and internally consistent pediatric SLE-specific QOL scale and will be a useful adjunct to clinical trials and outcomes research. Lupus (2007) 16, 663—669.
ISSN:0961-2033
1477-0962
DOI:10.1177/0961203307077539