Creation of a Pilot Surgical Program for the Comprehensive Management of Patients with Congenital Urological Malformations

• Published in: Urologia Colombiana Vol. 31; no. 3; pp. e96 - e101
• Main Authors: Fernandez, Nicolas, Congote, Juliana Villanueva, Varela, Daniela, Prada, Juan Guillermo, Zarante, Ignacio, Seba, Juan Enrique, Perez, Jaime Francisco, Castellanos, Julio Cesar
• Format: Journal Article
• Language: English; Spanish
• Published: Rua do Matoso 170, Rio de Janeiro, RJ, CEP 20270-135, Brazil Thieme Revinter Publicações Ltda 01.09.2022
• Subjects: Original Article | Artículo Original; anomalías congénitas; congenital, hereditary, and neonatal diseases and abnormalities; congenital anomalies of the kidney and urinary tract; enfermedades y anomalías neonatales congénitas y hereditarias; congenital abnormalities; anomalías congénitas del riñón y del tracto urinario; enfermedades urológicas; procedimientos quirúrgicos urológicos; urogenital abnormalities; urologic surgical procedures; anomalías urogenitales; urologic diseases
• ISSN: 0120-789X; 2027-0119
• DOI: 10.1055/s-0042-1744465

Abstract Objectives  Congenital malformations constitute the first cause of morbidity and mortality in childhood in Latin America. That is why, since 2001, a surveillance system for congenital malformations has been implemented in Bogota - Colombia. However, despite the increase in detection, an impact on treatment has not been achieved. The present study describes our experience with a novel social program focused on congenital urologic disorders. Methods  The present manuscript is a retrospective observational study. We reviewed two national databases containing patients with congenital malformations. Patients were actively contacted to verify the status of the malformations. Children in whom the malformation was confirmed were offered a free consultation with a multidisciplinary group. After screening for surgical indications, patients were scheduled for surgery. Results  Between November 2018 and December 2019, 60 patients were identified. In total 44, attended the consultation; the remaining did not attend due to financial or travel limitations. The most common condition assessed was hypospadias. In total, 29 patients underwent surgery. The total cost of care was of US$ 5,800. Conclusions  Active search improves attention times and reduces the burden of disease. The limitations to be resolved include optimizing the transportation of patients and their families, which is a frequent limitation to access health care.