Measuring quality of life

• Published in: Archives of disease in childhood Vol. 77; no. 4; pp. 347 - 350
• Main Authors: Jenney, Meriel E M, Campbell, Stephen
• Format: Journal Article
• Language: English
• Published: London BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health 01.10.1997; BMJ; BMJ Publishing Group LTD; BMJ Group
• Subjects: Adolescent; Asthma; Attitude to Health; Biological and medical sciences; Child; Child Health; Child, Preschool; Children & youth; Childrens health; Collaboration; Compliance; Construct Validity; Content Validity; Epidemiology; Factor Analysis; Families & family life; Family Relationship; Focus Groups; Forecasting; General aspects; Health Conditions; Health Status Indicators; Humans; Medical sciences; Methodology; Pain; Patients; Perceptions; Predictive Validity; Public health. Hygiene; Public health. Hygiene-occupational medicine; Quality of Life; Quality-Adjusted Life Years; Questionnaires; Reproducibility of Results; Research Methodology; Resource Allocation; Self Concept; Self esteem; Validity; Human; Measurement; Validity; Disease; Measurement method; Reliability; Epidemiology; Child; Public health; Quality of life
• ISSN: 0003-9888; 1468-2044
• DOI: 10.1136/adc.77.4.347

[...]the theoretical framework within which one can apply a comprehensive yet practical measure of the child's HRQOL; the methodological considerations of the development of such instrument will be considered below. HRQOL measure Dimensions Child Health and Illness Profile (CHIP), child completed, ages 11-186 Activity, comfort, satisfaction disorders, achievement, resilience Child Health Questionnaire Parents Form (CHQPF50), proxy completed, ages 5-157 Physical functioning, role/social: emotional/behavioural/physical, bodily pain, general behaviour, mental health, self esteem, general health perceptions, change in health, parent impact: emotional/time, family activities, family cohesion Minneapolis Manchester Measure of Quality of Life (MMQL), child completed, ages 8-12, 13-20 (MEM Jenney, unpublished) Physical activity, energy, mood, body image/self esteem, peer/family relationships, pain/discomfort, school, outlook Childhood Asthma Questionnaire B (CAQ-B), child completed, ages 8-118 Active aspects of living with asthma, passive aspects of living with asthma, perceived disease severity, distress VALIDITY Validity is concerned with whether a measure of health status actually measures what it was intended to measure. 9-11 In the absence of a gold standard for comparison, a number of aspects of validity can be addressed to assess the validity of a measure within different theoretical frameworks.