Self-reported benefits for care partners of attending a person-centred dementia cafe

Informal care partners of individuals with dementia are often referred to as the ‘invisible patient’, whose needs are under-represented in research. The physical, mental and emotional responsibilities of caring for someone with dementia can be both rewarding and challenging. This qualitative study e...

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Bibliographic Details
Published inInternational journal of care and caring Vol. 6; no. 4; pp. 586 - 603
Main Authors Chesterton, Lorna, Innes, Anthea, Smith, Sarah K., Morris, Lydia
Format Journal Article
LanguageEnglish
Published Bristol Policy Press 01.11.2022
The Policy Press
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Summary:Informal care partners of individuals with dementia are often referred to as the ‘invisible patient’, whose needs are under-represented in research. The physical, mental and emotional responsibilities of caring for someone with dementia can be both rewarding and challenging. This qualitative study explored how attending a dementia cafe affected care partner well-being. The co-designed cafe adopted a person-centred approach, valuing members’ unique abilities and contributions. Results showed that the cafe provided a safe environment where individuals could be themselves. Participants found a sense of belonging, camaraderie and friendship that enhanced their sense of well-being and maintained their selfhood and dignity.
ISSN:2397-8821
2397-883X
DOI:10.1332/239788221X16357690075748