Health related quality of life in disorders of defecation: the Defecation Disorder List
Background: Constipation and encopresis frequently cause problems with respect to emotional wellbeing, and social and family life. Instruments to measure Health Related Quality of Life (HRQoL) in these disorders are not available. Methods: A disease specific HRQoL instrument, the “Defecation Disorde...
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Published in | Archives of disease in childhood Vol. 89; no. 12; pp. 1124 - 1127 |
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Main Authors | , , , , , |
Format | Journal Article |
Language | English |
Published |
London
BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health
01.12.2004
BMJ BMJ Publishing Group LTD |
Subjects | |
Online Access | Get full text |
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Summary: | Background: Constipation and encopresis frequently cause problems with respect to emotional wellbeing, and social and family life. Instruments to measure Health Related Quality of Life (HRQoL) in these disorders are not available. Methods: A disease specific HRQoL instrument, the “Defecation Disorder List” (DDL) for children with constipation or functional non-retentive faecal soiling (FNRFS) was developed using accepted guidelines. For each phase of the process, different samples of patients were used. The final phase of development included 27 children. Reliability was assessed in two ways: internal consistency of domains with Cronbach’s alpha, and test-retest reliability with intra-class correlation coefficients (ICC). To assess validity, comparable items and domains were correlated with Tacqol, a generic HRQoL instrument for children (TNO-AZL). Results: In the final phase of the development, 27 children completed the instrument. It consisted of 37 items in four domains. The response rate was 96%. Reliability was good for all domains, with Cronbach’s alpha values ranging from 0.61 to 0.76. Measures of test-retest stability were good for all four domains with ICCs ranging from 0.82 to 0.92. Validity based on comparison with the Tacqol instrument was moderate. Conclusion: The DDL is promising as a measure of HRQoL in childhood defecation disorders. |
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Bibliography: | ark:/67375/NVC-PZVQLDT3-J href:archdischild-89-1124.pdf PMID:15557046 istex:E833969BCFED8DD801C53AF3F819DBEC6F3E9681 local:0891124 Correspondence to: Dr W P Voskuijl Department of Paediatric Gastroenterology and Nutrition, Room C2-312, Academic Medical Center, Meibergdreef 9, 1105 AZ Amsterdam, Netherlands; w.p.voskuijl@amc.uva.nl ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23 |
ISSN: | 0003-9888 1468-2044 |
DOI: | 10.1136/adc.2003.037465 |