Attitudes and beliefs about deceased organ donation in the Arabic-speaking community in Australia: a focus group study

• Published in: BMJ open Vol. 6; no. 1; p. e010138
• Main Authors: Ralph, Angelique F, Alyami, Ali, Allen, Richard D M, Howard, Kirsten, Craig, Jonathan C, Chadban, Steve J, Irving, Michelle, Tong, Allison
• Format: Journal Article
• Language: English
• Published: England BMJ Publishing Group LTD 01.01.2016; BMJ Publishing Group
• Subjects: Adult; Aged; Attitude to Death; Attitudes; Australia; Blood & organ donations; Consent; Decision Making; Emotions; Family Relations; Fear; Female; Focus Groups; Health Knowledge, Attitudes, Practice; Humans; Islam - psychology; Kidneys; Male; Medical research; Middle Aged; Minority & ethnic groups; Population; Qualitative Research; Religion; Researchers; Studies; Tissue and Organ Procurement; Transplants & implants; Young Adult; Sydney New South Wales Australia; Australia; United States > US; PUBLIC HEALTH; QUALITATIVE RESEARCH; TRANSPLANT MEDICINE
• ISSN: 2044-6055; 2044-6055
• DOI: 10.1136/bmjopen-2015-010138

ObjectivesTo describe the beliefs and attitudes to organ donation in the Arabic-speaking community.DesignArabic-speaking participants were purposively recruited to participate in 6 focus groups. Transcripts were analysed thematically.Participants53 participants, aged 19–77 years, and originating from 8 countries, participated in 1 of 6 focus groups. Participants identified as Christian (73%), Islam (26%), Buddhist (2%) or did not identify with any religion (2%).Results6 themes (with subthemes) were identified; religious conviction; invisibility of organ donation; medical suspicion; owning the decision; and reciprocal benefit.ConclusionsAlthough organ donation is considered a generous life-saving ‘gift’, representative members of the Arabic-speaking community in Australia were unfamiliar with, unnerved by and sceptical about the donation process. Making positive decisions about organ donation would likely require resolving tensions between respecting family, community and religious values versus their individual autonomy. Providing targeted education about the process and benefits of organ donation within the Arabic community may clarify ambiguities surrounding cultural and religious-based views on organ donation, reduce taboos and suspicion towards donation, and in turn, lead to increased organ donation rates.