FRI0730-HPR The concept of patient centered care in spondyloarthritis based on a multidisciplinary model

• Published in: Annals of the rheumatic diseases Vol. 77; no. Suppl 2; p. 1812
• Main Authors: Santos-Moreno, P., Villarreal, L., Buitrago-Garcia, D., Cabrera, M.
• Format: Journal Article
• Language: English
• Published: Kidlington Elsevier Limited 01.06.2018
• Subjects: Diagnosis; Inflammatory diseases; Joint diseases; Laboratories; Literature reviews; Magnetic resonance imaging; Musculoskeletal diseases; Patients; Periodicity; Research programs; Rheumatic diseases; Rheumatoid arthritis; Ultrasound
• ISSN: 0003-4967; 1468-2060
• DOI: 10.1136/annrheumdis-2018-eular.7469

Background:Spondyloarthritis (SpA) is one the most prevalent musculoskeletal disease in the Americas, with an estimated prevalence of 0.5%. This group of patients presents a number of unmet needs for accessibility to the consultation, diagnosis and adequate treatments. That for this reason it is necessary to develop a program of Centers of Excellence (CoE), which allows answer to these needs and at the same time to add values for our health systems.Objectives:The aim was to create a program with pilot SpA centers initially in some countries that operate under the scheme of CoE, as they are already delineated in projects like REAL-PANLAR for rheumatoid arthritis. In a second phase and under the auspices of PANLAR (Panamerican league of associations for rheumatology) create a Pan American Network of Centers of Excellence in SpA (CESPA).Methods:We performed a systematic review of the literature in global and regional databases (Pubmed, Medline, Scopus, Lilacs), in order to search information on this research question-hypothesis. Subsequently and under a Delphi-modified methodology and consensus of involved rheumatologists lay the conceptual bases on this particular subject – the Centers of Excellence in SpA (CESPA). As a result of the above was defined as should be a CESPA.Results:In accordance with the principles of creation and operation of the CoE in particular, specific themes were developed by a coordinator who, after a review of the literature, presented a specific proposal on every particular topic that was discussed and then voted on and implemented swithin the CESPA concepts. A CESPA must have: 1. Screening Clinic and Early Diagnosis of SpA: the purpose is to rule out false positives of disease and to diagnose early SpA; 2. Model of patient-centered care: a model of frequencies of care should be implemented for SpA patients from the perspective of the different specialties involved in the multidisciplinary team; 3. Laboratories and images: conventional laboratory tests as having a minimum of 3–4 times a year and each patient will have conventional X-ray images of cervical and lumbosacral column at the beginning and then once a year. Ultrasound of entheses: upon admission to the program and then with a certain periodicity (annual) or depending of sensitivity to change (OMERACT). The same applies to the subject of MRI of sacroiliac joints and column for both diagnosis and follow-up; 4. Clinical guideline on SpA should be adapted and customized to the particular realities of some of our countries; 5. There must be a management (disease management) program that must include Structure, Process and Result Indicators to define CESPA as Standard, Optimal and Model; 6. There must be standardized education and research programs for patients and physicians at the centerConclusions:There is a global need to develop CESPAs, in order to define treatment targets type T2T-SpA, which would improve clinical outcomes and avoid so much disability and health economic costs.References1. Santos-Moreno P, et al. REAL-PANLAR Project for the Implementation and Accreditation of Centers of Excellence in RA Throughout Latin America. J Clin Rheumatol2015Jun;21(4):175–80.2. Santos-Moreno P, et al. From the model of integral attention to the creation of centers of excellence in RA. Clin Rheumatol. 2015Mar;34(Suppl 1):S71–7.Disclosure of Interest:None declared