Ethical Issues of Human Genetic Databases A Challenge to Classical Health Research Ethics?

• Main Author: Elger, Bernice
• Format: eBook Book
• Language: English
• Published: Farnham, Surrey, England Routledge 2010; Taylor and Francis; Ashgate; Taylor & Francis Group
• Edition: 1
• Series: Medical Law and Ethics
• Subjects: Ethics - Jurisprudence; Ethics Philosophy; Health & Society; Human genetics; Human genetics > Databases > Moral and ethical aspects; Human Rights Law & Civil Liberties; Law, Ethics and Professional Values; Medical & Healthcare Law; Medical genetics; Medical genetics > Databases > Moral and ethical aspects; Medicine; Medicine > Research > Moral and ethical aspects; Moral and ethical aspects; Human Genes Research Act; icelandic; Health Research Ethics; Biobank Research; research; Human Genetic Databases; National Bioethics Advisory Commission; Benefit Sharing; national; CEST; sector; biobank; advisory; Icelandic Health Sector Database; HGC; bioethics; Genetic Databases; UNESCO Guideline; health; CIOMS Guideline; Human Genetic Data; Human Proteomic Data; Health Sector Database; EGP; Bioethics Convention; Irreversibly Anonymized; HGD Project; Non-human Subject Research; Tumor Bank; materials; biological; Blanket Consent; UK Biobank Project; UNESCO Declaration; UK Biobank
• ISBN: 1138269204; 9781138269200; 9780754674924; 0754674924
• DOI: 10.4324/9781315580296

This book compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, policy-makers and researchers in the field of medical ethics.