Protecting Privacy of Pregnant and LGBTQ+ Research Participants

This Viewpoint summarizes existing federal regulations aimed at protecting research data, describes the challenges of enforcing these regulations, and discusses how evolving privacy technologies could be used to reduce health disparities and advance health equity among pregnant and LGBTQ+ research p...

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Bibliographic Details
Published inJAMA : the journal of the American Medical Association Vol. 331; no. 18; pp. 1527 - 1528
Main Authors Clayton, Ellen Wright, Bland, Harris T, Mittendorf, Kathleen F
Format Journal Article
LanguageEnglish
Published United States American Medical Association 14.05.2024
Subjects
Confidentiality - legislation & jurisprudence
Data Anonymization - legislation & jurisprudence
Federal Government
Federal regulation
Female
Government Regulation
Humans
Informed Consent - legislation & jurisprudence
Personally Identifiable Information - legislation & jurisprudence
Pregnancy
Privacy
Privacy - legislation & jurisprudence
Refusal to Participate - legislation & jurisprudence
Research - legislation & jurisprudence
Research Subjects - legislation & jurisprudence
Sexual and Gender Minorities - legislation & jurisprudence
United States
United States
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Summary:This Viewpoint summarizes existing federal regulations aimed at protecting research data, describes the challenges of enforcing these regulations, and discusses how evolving privacy technologies could be used to reduce health disparities and advance health equity among pregnant and LGBTQ+ research participants.
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ISSN:0098-7484
1538-3598
1538-3598
DOI:10.1001/jama.2024.4837