Evaluation of the cost and effectiveness of diverse recruitmentmethods for a genetic screening study

• Published in: Genetics in medicine Vol. 21; no. 10; pp. 2371 - 2380
• Main Authors: Hila, Milo Rasouly, Wynn, Julia, Marasa Maddalena, Reingold, Rachel, Chatterjee Debanjana, Kapoor Sheena, Piva, Stacy, Kil, Byum Hee, Mu Xueru, Alvarez, Maria, Jordan, Nestor, Mehl, Karla, Revah-Politi Anya, Lippa, Natalie, Ernst, Michelle E, Bier, Louise, Espinal Aileen, Haser Bianca, Sinha Anoushka, Halim, Ian, Fasel, David, Cuneo, Nicole, Thompson, Jacqueline J, Verbitsky, Miguel, Cohn, Elizabeth G, Goldman, Jill, Marder, Karen, Klitzman, Robert L, Orjuela, Manuela A, So, Yat S, Fedotov, Alex, Crew, Katherine D, Kiryluk Krzysztof, Appelbaum, Paul S, Weng Chunhua, Siegel Karolynn, Gharavi, Ali G, Chung, Wendy K
• Format: Journal Article
• Language: English
• Published: Bethesda Elsevier Limited 01.10.2019
• Subjects: Adults; Cancer; Community; Consent; Consortia; Diabetes; Enrollments; Ethnicity; Genetic research; Genomes; Genomics; Medical research; Medicine; Minority & ethnic groups; Participation; Public health; Qualitative research; Socioeconomic factors; Studies; Systematic review

PurposeRecruitment of participants from diverse backgrounds is crucial to the generalizability of genetic research, but has proven challenging. We retrospectively evaluated recruitment methods used for a study on return of genetic results.MethodsThe costs of study design, development, and participan...