Rare diseases: diagnostic and therapeutic journey of the families of affected people/ Doenças raras: itinerário diagnóstico e terapêutico das famílias de pessoas afetadas

• Published in: Acta paulista de enfermagem Vol. 28; no. 5; p. 395
• Main Authors: Luz, Geisa dos Santos, da Silva, Mara Regina Santos, DeMontigny, Francine
• Format: Journal Article
• Language: English
• Published: Sao Paulo Universidade Federal de São Paulo, Escola Paulista de Enfermagem 01.09.2015
• Subjects: Content analysis

This paper aims to characterize the diagnostic and therapeutic journey of families of people with rare diseases within the network of Brazilian public services. This was a qualitative research project. The bio-ecological theory of human development, by Urie Bronfenbrenner, was used to understand the...