Parental wellbeing and treatment adherence for children and adolescents with Phenylketonuria (PKU)

• Main Author: Medford, Emma
• Format: Dissertation
• Language: English
• Published: University of Manchester 2016
• Subjects: Adherence; Children; Parent; Phenylketonuria; Treatment; Wellbeing

Phenylketonuria is a rare genetic disorder that causes cognitive impairment unless treated with a strict, protein-restricted diet. Due to the challenges of treatment adherence, caring for a child with PKU may affect parental wellbeing, and many children and adolescents have poor metabolic control. T...