10 Simple Rules for Sharing Human Genomic Data

These 10 Simple Rules have been developed from our combined experiences of working with human genomic data, data repositories and data users. We do not claim that these rules will eliminate every possible risk of data misuse. Rather, we hope that these will help researchers to increase the reusabili...

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Published inbioRxiv
Main Authors Corpas, Manuel, Whicher, Charlotte, Kovalevskaya, Nadezda V, Byers, Tom, Mcmurray, Amanda A, Nielsen, Fiona Gg, Khodiyar, Varsha K
Format Paper
LanguageEnglish
Published Cold Spring Harbor Cold Spring Harbor Laboratory Press 12.01.2017
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Abstract These 10 Simple Rules have been developed from our combined experiences of working with human genomic data, data repositories and data users. We do not claim that these rules will eliminate every possible risk of data misuse. Rather, we hope that these will help researchers to increase the reusability of their human genomic data, whilst also ensuring that the privacy of their subjects is maintained according to their consent frameworks. Many of the principles presented are also applicable to other types of clinical research data, where participant privacy is a concern.
AbstractList These 10 Simple Rules have been developed from our combined experiences of working with human genomic data, data repositories and data users. We do not claim that these rules will eliminate every possible risk of data misuse. Rather, we hope that these will help researchers to increase the reusability of their human genomic data, whilst also ensuring that the privacy of their subjects is maintained according to their consent frameworks. Many of the principles presented are also applicable to other types of clinical research data, where participant privacy is a concern.
Author Corpas, Manuel
Byers, Tom
Whicher, Charlotte
Khodiyar, Varsha K
Mcmurray, Amanda A
Nielsen, Fiona Gg
Kovalevskaya, Nadezda V
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