THE WHITE HOUSE: Office of the Press Secretary -- Press Briefing by Dr. Neal Lane, Director of The President's Office on Science and Technology Policy and Dr. Francis Collins, Director of the Human Genome Project

As you know, President Clinton and U.K. Prime Minister Blair announced their support today for making the raw, fundamental human DNA sequence information freely available to scientists around the world in order to stimulate the rapid development of genome-based health care products. Supporters for t...

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Abstract As you know, President Clinton and U.K. Prime Minister Blair announced their support today for making the raw, fundamental human DNA sequence information freely available to scientists around the world in order to stimulate the rapid development of genome-based health care products. Supporters for the Human Genome Project have long held that open access to such information will speed up the translation of that basic data into therapies that can cure or prevent disease rather than simply treating symptoms, as well as unlocking the mysteries of normal human development. DR. LANE: As I said earlier, this statement really in no way is intended to change patent policy, or changes patent policy. I'm sure you know the Patent Trade Office has recently issued guidelines on how they would deal with requests for patents on genetic material. And it's clear that they require a certain level of utility. This statement does not address that set of issues at all. I think the patent policies and patent decisions are up to that office, and what this statement emphasizes is the importance of making available the raw, fundamental human genome data that I think no one disputes is not subject to patent. DR. LANE: I think you would have to direct your question to the Patent Office. But what I think is clear is that everybody agrees that the raw, fundamental sequence data of the human genome is not patentable. I think discussions have to do with what level of utility does one need to demonstrate in order for that information to be patented. And I think the specifics of that, you would need to address to the Patent Office.
AbstractList M2 PRESSWIRE-15 March 2000-THE WHITE HOUSE: Office of the Press Secretary -- Press Briefing by Dr. Neal Lane, Director of The President's Office on Science and Technology Policy and Dr. Francis Collins, Director of the Human Genome Project (C)1994-2000 M2 COMMUNICATIONS LTD MR. SIEWERT: Here to brief on the President's announcement today are Dr. Neal Lane, Director of the President's Office on Science and Technology Policy, and Dr. Collins, Director of the Human Genome Project. And Dr. Lane will begin. DR. LANE: Thank you, Jake. Ladies and gentlemen, I just have a couple of quick points to make before my colleague, Dr. Collins, makes his comment. And then we'd be happy to answer your questions. As you know, President Clinton and U.K. Prime Minister Blair announced their support today for making the raw, fundamental human DNA sequence information freely available to scientists around the world in order to stimulate the rapid development of genome-based health care products. Supporters for the Human Genome Project have long held that open access to such information will speed up the translation of that basic data into therapies that can cure or prevent disease rather than simply treating symptoms, as well as unlocking the mysteries of normal human development. Therefore in 1996, the three principal partners in the not-for-profit Human Genome Project -- which are the National Institutes of Health, the U.S. Department of Energy, and the U.K.'s Wellcome Trust -- adopted a policy requiring their grantees, all of their grantees, to deposit human genome sequence data into the public database within 24 hours. The President and the Prime Minister endorsed this policy, and call on countries and scientists around the world to adopt this approach. I want to make it absolutely clear that this statement has nothing to do with any ongoing discussions between the public and the private sector. Rather, it's made in recognition of the fundamental importance of the underlying science, and the need for a balanced set of policies. The United States and the United Kingdom have discussed the principles of this statement for many months, I can assure you, because I have been involved in those discussions. The statement does not require anyone to release information. The point of the statement is the development of the new generation of treatments, of preventions and cures will be greatly accelerated if raw genome data which is not patentable is widely shared. I want to also make it clear the statement is not about patents or what should or should not be patentable. Patent law dictates criteria for patentability and nothing in the statement supersedes these criteria. Intellectual property protection is a vital incentive to promote investment in product research and development. The statement also expresses the worthy goal of putting as much fundamental sequence data as possible into the public domain. This approach is the explicit policy of the government with respect to government funded research. It is also the approach taken by some in the private sector already. The statement applauds all who will take this approach from either the public or private sector. Now I would like to ask Dr. Francis Collins, who heads the government's efforts on the Human Genome Project, to comment briefly on the significance of today's joint statement. Then we would be glad to answer your questions. DR. COLLINS: Thank you, Neal. Good afternoon. I am happy to be here on what I think is a rather significant day, where a very important principle about access to the human genome sequence -- our common, shared heritage as human beings -- is being endorsed by the leaders of the free world. The Human Genome Project is an effort to decipher the sequence of the 3 billion subunits of DNA. Running ahead of schedule and under budget, this audacious project, and it is audacious, will complete a working draft of the human genome sequence in the next few months. Already, the sequence of close to 2 billion subunits of DNA have been determined and placed into gen bank, which is the publicly accessible database that you can go to on the Internet. Any scientist, anywhere in the world, can access the sequence and use it to help them answer their research questions, and they are doing that thousands of times each day. The Human Genome Project is a decidedly international effort, with contributions from the United States, the United Kingdom, France, Germany, Japan and China. In the United States, as mentioned, the project is supported with public funds by the National Institutes of Health and the Department of Energy. Why does this matter, this project? Well, all disease -- whether we're talking heart disease, breast cancer, or mental illness, or a long list of the ills that afflict us -- have genetic contributions.
As you know, President Clinton and U.K. Prime Minister Blair announced their support today for making the raw, fundamental human DNA sequence information freely available to scientists around the world in order to stimulate the rapid development of genome-based health care products. Supporters for the Human Genome Project have long held that open access to such information will speed up the translation of that basic data into therapies that can cure or prevent disease rather than simply treating symptoms, as well as unlocking the mysteries of normal human development. DR. LANE: As I said earlier, this statement really in no way is intended to change patent policy, or changes patent policy. I'm sure you know the Patent Trade Office has recently issued guidelines on how they would deal with requests for patents on genetic material. And it's clear that they require a certain level of utility. This statement does not address that set of issues at all. I think the patent policies and patent decisions are up to that office, and what this statement emphasizes is the importance of making available the raw, fundamental human genome data that I think no one disputes is not subject to patent. DR. LANE: I think you would have to direct your question to the Patent Office. But what I think is clear is that everybody agrees that the raw, fundamental sequence data of the human genome is not patentable. I think discussions have to do with what level of utility does one need to demonstrate in order for that information to be patented. And I think the specifics of that, you would need to address to the Patent Office.
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Snippet As you know, President Clinton and U.K. Prime Minister Blair announced their support today for making the raw, fundamental human DNA sequence information...
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Research & development
Title THE WHITE HOUSE: Office of the Press Secretary -- Press Briefing by Dr. Neal Lane, Director of The President's Office on Science and Technology Policy and Dr. Francis Collins, Director of the Human Genome Project
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