Survey Regarding Coping Strategies for Self-Perceived Burden among Patients with Advanced Cancer
Objective: This study is intended to investigate 1) the self-perceived burden (SPB) among patients with advanced cancer who were receiving care from family members and 2) the relationship between SPB and coping strategies. Methods: A total of 150 patients with advanced cancer who were receiving care...
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| Published in | Journal of Japan Society of Nursing Research Vol. 46; no. 4; pp. 4_683 - 4_691 |
|---|---|
| Main Author | |
| Format | Journal Article |
| Language | Japanese |
| Published |
Japan Society of Nursing Research
20.10.2023
一般社団法人 日本看護研究学会 |
| Subjects | |
| Online Access | Get full text |
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| Abstract | Objective: This study is intended to investigate 1) the self-perceived burden (SPB) among patients with advanced cancer who were receiving care from family members and 2) the relationship between SPB and coping strategies. Methods: A total of 150 patients with advanced cancer who were receiving care from family members were surveyed using a questionnaire. Both the relationship between SPB and the patients' use of coping strategies and the relationship between SPB and participant characteristics were tested using the Mann-Whitney or χ2 test. Results: Eighty-four patients completed questionnaires that were used for analysis. Many patients used various coping strategies to alleviate their SPB. Patients who practiced any 7 of the 12 types of coping strategies had stronger SPB. Patients who "made efforts to move autonomously" and "reflected on themselves and made modifications for improved methods" were in better physical shape. Most caregivers were women. A higher percentage of patients who "expressed their appreciation to their family in words" and "left decisions to be made by the family" were women. Conclusions: This study's findings suggest the need to encourage efforts by patients to cope with SPB while also supporting them so that they can face their cancer together with their family. |
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| AbstractList | Objective: This study is intended to investigate 1) the self-perceived burden (SPB) among patients with advanced cancer who were receiving care from family members and 2) the relationship between SPB and coping strategies. Methods: A total of 150 patients with advanced cancer who were receiving care from family members were surveyed using a questionnaire. Both the relationship between SPB and the patients’ use of coping strategies and the relationship between SPB and participant characteristics were tested using the Mann-Whitney or χ2 test. Results: Eighty-four patients completed questionnaires that were used for analysis. Many patients used various coping strategies to alleviate their SPB. Patients who practiced any 7 of the 12 types of coping strategies had stronger SPB. Patients who “made efforts to move autonomously” and “reflected on themselves and made modifications for improved methods” were in better physical shape. Most caregivers were women. A higher percentage of patients who “expressed their appreciation to their family in words” and “left decisions to be made by the family” were women. Conclusions: This study’s findings suggest the need to encourage efforts by patients to cope with SPB while also supporting them so that they can face their cancer together with their family.
目的：家族から介護を受ける進行がん患者のSelf-perceived burden（SPB）とSPBへの対処方略との関係を明らかにする。方法：家族から介護を受けている進行がん患者150名を対象に質問紙調査を実施した。対処方略とSPB，属性の関係はMann-Whitneyの検定またはχ2検定を行った。結果：有効回答者数84名であった。多くの患者がSPBを軽減しようとさまざまな対処方略を用いていた。12項目の対処方略のうち７項目で用いている者の方がSPBは強かった。「自分で動く努力をする」「反省してよりよい方法に変える」を用いている者は全身状態が良好であり，介護者は女性が多かった。「感謝の気持ちを家族に言葉で伝える」「判断は家族に任せる」を用いている者は女性が多かった。結論：SPBに対処する患者の努力を支援するだけでなく，患者と家族で共に状況に取り組めるように支援する必要性が示唆された。 Objective: This study is intended to investigate 1) the self-perceived burden (SPB) among patients with advanced cancer who were receiving care from family members and 2) the relationship between SPB and coping strategies. Methods: A total of 150 patients with advanced cancer who were receiving care from family members were surveyed using a questionnaire. Both the relationship between SPB and the patients' use of coping strategies and the relationship between SPB and participant characteristics were tested using the Mann-Whitney or χ2 test. Results: Eighty-four patients completed questionnaires that were used for analysis. Many patients used various coping strategies to alleviate their SPB. Patients who practiced any 7 of the 12 types of coping strategies had stronger SPB. Patients who "made efforts to move autonomously" and "reflected on themselves and made modifications for improved methods" were in better physical shape. Most caregivers were women. A higher percentage of patients who "expressed their appreciation to their family in words" and "left decisions to be made by the family" were women. Conclusions: This study's findings suggest the need to encourage efforts by patients to cope with SPB while also supporting them so that they can face their cancer together with their family. |
| Author | Oeki, Miki |
| Author_FL | 大﨏 美樹 |
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| PublicationYear | 2023 |
| Publisher | Japan Society of Nursing Research 一般社団法人 日本看護研究学会 |
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| References | 雉子谷知子（2010）. ストレスコーピング理論. 野川道子（編）, 看護実践に活かす中範囲理論（pp.206-213）. 東京：メヂカルフレンド社. Wilson, K.G., Curran, D., McPherson, CJ. (2005). A burden to others: A common source of distress for the terminally ill. Cognitive Behavior Therapy, 34(2), 115-123. Oeki, M., Takase, M. (2020). Coping strategies for self-perceived burden among advanced cancer patients. Cancer Nursing, 43(6), E349-E355. White, J.M. （1993）／正岡寛司, 藤見純子, 西野理子, 嶋﨑尚子訳（1996）. 家族発達のダイナミックス：理論構築に向けて. （pp.3-250）. 京都：ミネルヴァ書房. Akazawa, T., Akechi, T., Morita, T., Miyashita, M., Sato, K., Tsuneto, S., Shima, Y., Furukawa, T.A. (2010). Self-perceived burden in terminally ill cancer patients: A categorization of care strategies based on bereaved family members' perspectives. Journal of Pain and Symptom Management, 40(2), 224-234. Simmons, L.A. (2007). Self-perceived burden in cancer patients: Validation of the self-perceived burden scale. Cancer Nursing, 30(5), 405-411. 大﨏美樹, 佐々木由紀, 谷村千華（2017）. 終末期がん患者の家族介護者へのSelf-Perceived Burden. 日本看護研究学会雑誌, 40（2）, 113-118. Cousineau, N., McDowell, I., Hotz , S., Hébert, P. (2003). Measuring chronic patients' feelings of being a burden to their caregivers: Development and preliminary validation of a scale. Medical Care, 41(1), 110-118. 飯尾牧子（2017）. 感謝を表す表現「ありがとう」と「すみません」：大学生におけるコミュニケーション様式の一考察. 東洋学園大学紀要, 26（1）, 55-68. McPherson, C.J., Wilson, K.G., Murray, M.A. (2007a). Feeling like a burden: Exploring the perspectives of patients at the end of life. Social Science & Medicine, 64(2), 417-427. Oeki, M. (2017). Physical and cognitive factors associated with self-perceived burden in patients with advanced cancer. Hiroshima Journal of Medical Sciences, 66(3), 55-59. Oeki, M., Mogami, T., Hagino, H. (2012). Self-perceived burden in patients with cancer: Scale development and descriptive study. European Journal of Oncology Nursing, 16(2), 145-152. 厚生労働省 人生の最終段階における医療の普及･啓発の在り方に関する検討会（2018） . 人生の最終段階における医療に関する意識調査 報告書. https://www.mhlw.go.jp/toukei/list/dl/saisyuiryo_a_h29.pdf （参照2021年９月17日） Kowal, J., Wilson, K.G., McWilliams, L.A., Péloquin, K., Duong, D. (2012). Self-perceived burden in chronic pain: Relevance, prevalence, and predictors. Pain, 153(8), 1735-1741. Lazarus, R.S., & Folkman, S. （1984）／本明 寛, 春木 豊, 織田正美監訳（1991）. ストレスの心理学：認知的評価と対処の研究. （pp.143-229）. 東京：実務教育出版. 森 雅紀, 森田達也（2020）. Advance Care Planningのエビデンス：何がどこまでわかっているのか？. 132-133, 東京：医学書院. 塚本尚子, 舩木由香（2012）. がん患者の心理的適応に関する研究の動向と今後の展望：コーピング研究から意味研究へ. 日本看護研究学会雑誌, 35（1）, 159-166. 櫻井成美（1999）. 介護肯定感がもつ負担軽減効果. 心理学研究, 70（3）, 203-210. McPherson, C.J., Wilson, KG., Murray, M.A. (2007b). Feeling like a burden to others: a systematic review focusing on the end of life. Palliative Medicine, 21(2), 115-128. Chiò, A., Gauthier, A., Calvo, A., Ghiglione, P., Mutani, R. (2005). Caregiver burden and patients' perception of being a burden in ALS. Neurology, 64(10), 1780-1782. 陶山啓子, 河野理恵, 河野保子（2004）. 家族介護者の介護肯定感の形成に関する要因分析. 老年社会科学, 25（4）, 461-470. 大﨏美樹, 萩野 浩（2014）. 家族介護者による身体的介護を必要とするがん患者の自覚的負担感に関連する要因の検討. 日本在宅ケア学会誌, 18（1）, 76-82. McPherson, C.J., Wilson, K.G., Chyurlia, L., Leclerc, C. (2010). The balance of give and take in caregiver-partner relationships: An examination of self-perceived burden, relationship equity, and quality of life from the perspective of care recipients following stroke. Rehabilitation Psychology, 55(2), 194-203. 森田達也, 白土明美（2015）. 死亡直前と看取りのエビデンス. 3-5, 東京：医学書院. |
| References_xml | – reference: Wilson, K.G., Curran, D., McPherson, CJ. (2005). A burden to others: A common source of distress for the terminally ill. Cognitive Behavior Therapy, 34(2), 115-123. – reference: Oeki, M., Takase, M. (2020). Coping strategies for self-perceived burden among advanced cancer patients. Cancer Nursing, 43(6), E349-E355. – reference: McPherson, C.J., Wilson, K.G., Murray, M.A. (2007a). Feeling like a burden: Exploring the perspectives of patients at the end of life. Social Science & Medicine, 64(2), 417-427. – reference: White, J.M. （1993）／正岡寛司, 藤見純子, 西野理子, 嶋﨑尚子訳（1996）. 家族発達のダイナミックス：理論構築に向けて. （pp.3-250）. 京都：ミネルヴァ書房. – reference: Cousineau, N., McDowell, I., Hotz , S., Hébert, P. (2003). Measuring chronic patients' feelings of being a burden to their caregivers: Development and preliminary validation of a scale. Medical Care, 41(1), 110-118. – reference: Lazarus, R.S., & Folkman, S. （1984）／本明 寛, 春木 豊, 織田正美監訳（1991）. ストレスの心理学：認知的評価と対処の研究. （pp.143-229）. 東京：実務教育出版. – reference: 大﨏美樹, 佐々木由紀, 谷村千華（2017）. 終末期がん患者の家族介護者へのSelf-Perceived Burden. 日本看護研究学会雑誌, 40（2）, 113-118. – reference: Chiò, A., Gauthier, A., Calvo, A., Ghiglione, P., Mutani, R. (2005). Caregiver burden and patients' perception of being a burden in ALS. Neurology, 64(10), 1780-1782. – reference: 厚生労働省 人生の最終段階における医療の普及･啓発の在り方に関する検討会（2018） . 人生の最終段階における医療に関する意識調査 報告書. https://www.mhlw.go.jp/toukei/list/dl/saisyuiryo_a_h29.pdf （参照2021年９月17日） – reference: Oeki, M., Mogami, T., Hagino, H. (2012). Self-perceived burden in patients with cancer: Scale development and descriptive study. European Journal of Oncology Nursing, 16(2), 145-152. – reference: 飯尾牧子（2017）. 感謝を表す表現「ありがとう」と「すみません」：大学生におけるコミュニケーション様式の一考察. 東洋学園大学紀要, 26（1）, 55-68. – reference: 雉子谷知子（2010）. ストレスコーピング理論. 野川道子（編）, 看護実践に活かす中範囲理論（pp.206-213）. 東京：メヂカルフレンド社. – reference: 塚本尚子, 舩木由香（2012）. がん患者の心理的適応に関する研究の動向と今後の展望：コーピング研究から意味研究へ. 日本看護研究学会雑誌, 35（1）, 159-166. – reference: 森田達也, 白土明美（2015）. 死亡直前と看取りのエビデンス. 3-5, 東京：医学書院. – reference: Kowal, J., Wilson, K.G., McWilliams, L.A., Péloquin, K., Duong, D. (2012). Self-perceived burden in chronic pain: Relevance, prevalence, and predictors. Pain, 153(8), 1735-1741. – reference: 陶山啓子, 河野理恵, 河野保子（2004）. 家族介護者の介護肯定感の形成に関する要因分析. 老年社会科学, 25（4）, 461-470. – reference: McPherson, C.J., Wilson, KG., Murray, M.A. (2007b). Feeling like a burden to others: a systematic review focusing on the end of life. Palliative Medicine, 21(2), 115-128. – reference: Oeki, M. (2017). Physical and cognitive factors associated with self-perceived burden in patients with advanced cancer. Hiroshima Journal of Medical Sciences, 66(3), 55-59. – reference: 大﨏美樹, 萩野 浩（2014）. 家族介護者による身体的介護を必要とするがん患者の自覚的負担感に関連する要因の検討. 日本在宅ケア学会誌, 18（1）, 76-82. – reference: 森 雅紀, 森田達也（2020）. Advance Care Planningのエビデンス：何がどこまでわかっているのか？. 132-133, 東京：医学書院. – reference: 櫻井成美（1999）. 介護肯定感がもつ負担軽減効果. 心理学研究, 70（3）, 203-210. – reference: Simmons, L.A. (2007). Self-perceived burden in cancer patients: Validation of the self-perceived burden scale. Cancer Nursing, 30(5), 405-411. – reference: Akazawa, T., Akechi, T., Morita, T., Miyashita, M., Sato, K., Tsuneto, S., Shima, Y., Furukawa, T.A. (2010). Self-perceived burden in terminally ill cancer patients: A categorization of care strategies based on bereaved family members' perspectives. Journal of Pain and Symptom Management, 40(2), 224-234. – reference: McPherson, C.J., Wilson, K.G., Chyurlia, L., Leclerc, C. (2010). The balance of give and take in caregiver-partner relationships: An examination of self-perceived burden, relationship equity, and quality of life from the perspective of care recipients following stroke. Rehabilitation Psychology, 55(2), 194-203. |
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| Title | Survey Regarding Coping Strategies for Self-Perceived Burden among Patients with Advanced Cancer |
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