Protecting Privacy in Health Research: The Limits of Individual Choice
In his groundbreaking 1967 study, Privacy and Freedom, Alan Westin defined privacy as the claim of individuals, groups, or institutions to determine for themselves when, how, and to what extent information about them is communicated to others. Many data protection laws enacted since then have follow...
Saved in:
Published in | California law review Vol. 98; no. 6; pp. 1765 - 1803 |
---|---|
Main Author | |
Format | Journal Article |
Language | English |
Published |
Berkeley
Joe Christensen, Inc. for students of School of Law, University of California, Berkeley
01.12.2010
University of California - Berkeley, School of Law |
Subjects | |
Online Access | Get full text |
Cover
Loading…
Abstract | In his groundbreaking 1967 study, Privacy and Freedom, Alan Westin defined privacy as the claim of individuals, groups, or institutions to determine for themselves when, how, and to what extent information about them is communicated to others. Many data protection laws enacted since then have followed suit, relying on choice -- often together with notice necessary to support choice -- as the key tool for protecting privacy, or even as the goal of those laws. Part I of this Article briefly surveys the objections to relying on consumer choice for protecting privacy generally, before examining the role of individual choice in health research in particular. Part II provides an introduction to health research and its regulation. Part III examines the Privacy Rule issued under HIPAA. Part IV considers the impact of the Privacy Rule and its consent requirement on both health research and personal privacy. |
---|---|
AbstractList | In his groundbreaking 1967 study, Privacy and Freedom, Alan Westin defined privacy as the claim of individuals, groups, or institutions to determine for themselves when, how, and to what extent information about them is communicated to others. Many data protection laws enacted since then have followed suit, relying on choice -- often together with notice necessary to support choice -- as the key tool for protecting privacy, or even as the goal of those laws. Part I of this Article briefly surveys the objections to relying on consumer choice for protecting privacy generally, before examining the role of individual choice in health research in particular. Part II provides an introduction to health research and its regulation. Part III examines the Privacy Rule issued under HIPAA. Part IV considers the impact of the Privacy Rule and its consent requirement on both health research and personal privacy. |
Author | Cate, Fred H. |
Author_xml | – sequence: 1 givenname: Fred H. surname: Cate fullname: Cate, Fred H. |
BookMark | eNotjV1LwzAYRoNMcJv-BCF4X8hnk3gnxblBwSHzuqTpO5vSNTPJBvv3DubV4YHDcxZoNoUJ7tCcGsGKUgo2Q3NCiC4oY_QBLVIarpMKReZotY0hg8t--sHb6M_WXbCf8BrsmHv8BQlsdP0r3vWAa3_wOeGwx5up82ffneyIqz54B4_ofm_HBE__XKLv1fuuWhf158emequLgRGRC8o11ZaUrRZGdEyAUp0U1jEpCAdJWiCl3RtSOgWUK62MYg6o5oxrq1vFl-jl9nuM4fcEKTdDOMXpmmy0VJwKKvlVer5JQ8ohNsfoDzZeGiaVMUZK_gcCX1GI |
CODEN | CLARDJ |
ContentType | Journal Article |
Copyright | Copyright © 2010 California Law Review, Inc., a California Nonprofit Corporation Copyright University of California Press Dec 2010 |
Copyright_xml | – notice: Copyright © 2010 California Law Review, Inc., a California Nonprofit Corporation – notice: Copyright University of California Press Dec 2010 |
DatabaseTitleList | |
DeliveryMethod | fulltext_linktorsrc |
Discipline | Law |
EISSN | 1942-6542 |
EndPage | 1803 |
ExternalDocumentID | 2294535321 25799955 |
Genre | Feature |
GeographicLocations | United States--US |
GeographicLocations_xml | – name: United States--US |
GroupedDBID | -ET .4L .CB 2-G 29B 2QL 5.J 5GY 6DY 7LF 8OO 8VB 96U AACLI AAFWJ ABACO ABBHK ABDBF ABLWH ABVAB ABXSQ ACBMB ACHQT ADDQP ADEPB ADEYR ADNFJ ADULT ADUOI AEGZQ AEMOZ AEUPB AFACB AFAZI AFXCU AGQRV AHEHV AJPNJ AKVCP AL2 ALMA_UNASSIGNED_HOLDINGS AQNXB AQSKT B0M BHRNT CS3 DU5 EAP EAS EAU EBE EBO EBR EBU EHL EKAWT EMK ESX EV9 F5P FM. GCQ GENNL HISYW HLR HOCAJ IPB JAAYA JAV JBMMH JBZCM JENOY JHFFW JKQEH JLEZI JLXEF JPL JSODD JST K1G KQ8 LGEZI LOTEE LU7 LXB LXL LXN LXO LXU LXY M86 MVM NADUK NXXTH O2D OK1 PQQKQ QWB RHO RWL RXW SA0 TAA TAC TAE TAF TH9 TQQ TQW TWJ TWL UFL ULB UXK VKN W2G WE1 WH7 X6Y XFL XPM ZL0 ZRF ZRR ZYG ~8M ~X8 AAAZS ADACV ADMHG HCSNT IPSME |
ID | FETCH-LOGICAL-j204t-13818a06b8494d24e77d54ac25403e50be06af906c7e13787972ce183238a8b73 |
ISSN | 0008-1221 |
IngestDate | Thu Oct 10 20:31:30 EDT 2024 Fri Feb 02 08:16:50 EST 2024 |
IsPeerReviewed | true |
IsScholarly | true |
Issue | 6 |
Language | English |
LinkModel | OpenURL |
MergedId | FETCHMERGED-LOGICAL-j204t-13818a06b8494d24e77d54ac25403e50be06af906c7e13787972ce183238a8b73 |
PQID | 857314153 |
PQPubID | 37380 |
PageCount | 39 |
ParticipantIDs | proquest_journals_857314153 jstor_primary_25799955 |
PublicationCentury | 2000 |
PublicationDate | 20101201 |
PublicationDateYYYYMMDD | 2010-12-01 |
PublicationDate_xml | – month: 12 year: 2010 text: 20101201 day: 1 |
PublicationDecade | 2010 |
PublicationPlace | Berkeley |
PublicationPlace_xml | – name: Berkeley |
PublicationTitle | California law review |
PublicationYear | 2010 |
Publisher | Joe Christensen, Inc. for students of School of Law, University of California, Berkeley University of California - Berkeley, School of Law |
Publisher_xml | – name: Joe Christensen, Inc. for students of School of Law, University of California, Berkeley – name: University of California - Berkeley, School of Law |
SSID | ssj0001470 |
Score | 2.020164 |
Snippet | In his groundbreaking 1967 study, Privacy and Freedom, Alan Westin defined privacy as the claim of individuals, groups, or institutions to determine for... |
SourceID | proquest jstor |
SourceType | Aggregation Database Publisher |
StartPage | 1765 |
SubjectTerms | Data integrity Genetic research Health information Health Insurance Portability & Accountability Act 1996-US Information legislation Informed consent Institutional review boards Legal consent Medical genetics Medical research Personal information Privacy Privacy rights Prosser's "Privacy" at 50: A Symposium on Privacy in the 21st Century Right of privacy |
Title | Protecting Privacy in Health Research: The Limits of Individual Choice |
URI | https://www.jstor.org/stable/25799955 https://www.proquest.com/docview/857314153 |
Volume | 98 |
hasFullText | 1 |
inHoldings | 1 |
isFullTextHit | |
isPrint | |
link | http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwnV3Na9swFBdNetllbOvKumxFh14d9GnJvSXZQshh9NBCbkG2ZfoxnJGkK_Sv79OH7UAbaHsRRv5A6Cc_PUm_33sInQktClVWNhF5ThJRFiQxVvCkkqkVDO7ZwLb4k86uxHwhF12WTq8u2ebD4vFFXcl7UIU6wNWpZN-AbPtRqIBrwBdKQBjKV2F8EYIsuNX-xfrmv8vc7kNXeWVRw6lreBVeyrQJ0pFWhDW5XkXyWxeuoBVr_TUPUdrSnVSEbHpTx1qfDXe3DJ7RL-YrG0MX2Dpu8zhj5HmNmxBR07cmxgENZxXuqX3iMT8U7frONmfRjbGFBSoLAuihDfY1EyxxObJ2DXCmdwbarjWlKuSRiDMz1YR301ZLJgSjA16ulD3U41T20eFo_Gs8badjKlTQIcXWNMTTZ5Ov9yguP6GPcSmARwHXz-jA1l9QDzrhCE07ZHFEFt_UOCCLG2TPMeCKA654VeEOVxxw_Yqupr8vJ7MkZrxIbhkRWxcQkmpD0lyLTJRMWKVKKUwBq3jCrSS5JampMpLCP0Q52NpMscI6q8y10bnix6hfr2r7DWGpTaGZMEqBw0iV0eAoF4wWJVUVZUSfoGPfDct_IarJsunGEzRo-mUZx_pmqaXiFHw9_n3fawP0oRtqP1B_u763P8Ff2-anEZEnebRCyQ |
link.rule.ids | 315,786,790 |
linkProvider | EBSCOhost |
openUrl | ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=Protecting+Privacy+in+Health+Research%3A+The+Limits+of+Individual+Choice&rft.jtitle=California+law+review&rft.au=Cate%2C+Fred+H.&rft.date=2010-12-01&rft.pub=Joe+Christensen%2C+Inc.+for+students+of+School+of+Law%2C+University+of+California%2C+Berkeley&rft.issn=0008-1221&rft.eissn=1942-6542&rft.volume=98&rft.issue=6&rft.spage=1765&rft.epage=1803&rft.externalDocID=25799955 |
thumbnail_l | http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/lc.gif&issn=0008-1221&client=summon |
thumbnail_m | http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/mc.gif&issn=0008-1221&client=summon |
thumbnail_s | http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/sc.gif&issn=0008-1221&client=summon |