Comment on the article entitled ‘Study of public human tissue resource bank for research purposes-An attempt to establish a surgically removed tonsil tissue bank at National Children's Hospital-’ in Tissue Culture Research Communications (19: 163-183, 2000), focusing on procedures of informed consent with tissue donor
Personal comments were described about the procedures of informed consent in the process of donation to human, tissue bank in National Children's Hospital, based on legal, ethical, psychological, and social considerations about genetic diagnosis and counseling for muscular dystrophy. There are...
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| Published in | TISSUE CULTURE RESEARCH COMMUNICATIONS Vol. 20; no. 1; pp. 5 - 13 |
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| Main Author | |
| Format | Journal Article |
| Language | Japanese |
| Published |
The Japanese Tissue Culture Association
2001
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| Subjects | |
| Online Access | Get full text |
| ISSN | 0912-3636 1881-3704 |
| DOI | 10.11418/jtca1981.20.1_5 |
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| Abstract | Personal comments were described about the procedures of informed consent in the process of donation to human, tissue bank in National Children's Hospital, based on legal, ethical, psychological, and social considerations about genetic diagnosis and counseling for muscular dystrophy. There are obvious differences between 'to receive medical care' and 'to be a subject of medical studies', since the former pursues patient's best interest but the latter aims scientific progress in medicine. In the present study and expected other human tissue banks, the samples are originally removed by the purpose of medical care. The authors of the original paper are required to explain an appropriateness of another standard for donation of human tissues. |
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| AbstractList | Personal comments were described about the procedures of informed consent in the process of donation to human, tissue bank in National Children's Hospital, based on legal, ethical, psychological, and social considerations about genetic diagnosis and counseling for muscular dystrophy. There are obvious differences between 'to receive medical care' and 'to be a subject of medical studies', since the former pursues patient's best interest but the latter aims scientific progress in medicine. In the present study and expected other human tissue banks, the samples are originally removed by the purpose of medical care. The authors of the original paper are required to explain an appropriateness of another standard for donation of human tissues.
国立小児病院における摘出ヒト扁桃リンパ組織バンクの試料提供者に対するインフォームド・コンセント手続きについて、筋ジストロフィーの遺伝子診断及び遺伝力ウンセリングに関する法的、倫理的、心理・社会的諸問題について検討を行ってきた経験を活かし私見を述べる。患者の直接的利益の実現である「医療ケアを受ける」ことと他者の利益の実現を第一義とする「医学研究の被験者になる」ことの間には決定的な違いがあり、研究参加に対する同意(承諾)は個々人のボランティア精神の発露でしかあり得ない。しかしながら、バンクに提供される組織はこの目的のためにわざわざ採取されるものではなく、医療上必要な手術を行った際の摘出物であることから、研究被験者になることと同列に扱うべきか否かについては、考慮すべき問題が数多く残っている。 Personal comments were described about the procedures of informed consent in the process of donation to human, tissue bank in National Children's Hospital, based on legal, ethical, psychological, and social considerations about genetic diagnosis and counseling for muscular dystrophy. There are obvious differences between 'to receive medical care' and 'to be a subject of medical studies', since the former pursues patient's best interest but the latter aims scientific progress in medicine. In the present study and expected other human tissue banks, the samples are originally removed by the purpose of medical care. The authors of the original paper are required to explain an appropriateness of another standard for donation of human tissues. |
| Author | Shirai, Yasuko |
| Author_FL | 白井 泰子 |
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| Author_xml | – sequence: 1 fullname: Shirai, Yasuko organization: Section of Socio-cultural Studies, Division of Socio-cultural Environmental Research, National Institute of Mental Health, National Center of Neurology and Psychiatry |
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| Copyright | The Japanese Tissue Culture Association |
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| DOI | 10.11418/jtca1981.20.1_5 |
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| DocumentTitleAlternate | 絵野沢 伸ほか(著)「公共的な研究用ヒト組織バンク設立のための検討:国立小児病院における摘出ヒト扁桃リンパ組織バンク構築の試み」(組織培養研究.19:163-183, 2000)に対するコメント: 組織提供者に対するインフォームド・コンセント手続きを中心として |
| DocumentTitle_FL | 絵野沢 伸ほか(著)「公共的な研究用ヒト組織バンク設立のための検討:国立小児病院における摘出ヒト扁桃リンパ組織バンク構築の試み」(組織培養研究.19:163-183, 2000)に対するコメント: 組織提供者に対するインフォームド・コンセント手続きを中心として |
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| References | 1) Beauchamp, TL & Childress, J. F.: Principles of Biomedical Ethics (First Ed. ). Oxford University Press, 1979. 5)唄孝一, 宇都木伸, 佐藤雄一郎: ヒト由来物質の医学研究利用に関する問題(上). ジュリスト2001年2月1日号, 36-48. 3)丸山英二: 遺伝子検査―子どもの場合(2): 子どもに対する遺伝子検査の法律問題. 年報医事法学, 15: 1522, 2000. 2)白井泰子, 丸山英二, 土屋貴志ほか: 筋ジストロフィーの遺伝子診断に関する法的, 倫理的, 心理・社会的諸問題の検討. r平成11年度厚生省精神・神経疾患研究委託費による研究報告集(2年度班・初年度班)」, 1999, p.183. 6)唄孝一, 宇都木伸, 佐藤雄一郎: ヒト由来物質の医学研究利用に関する問題(下〉. ジュリスト2001年2月15日号, 91-99. 4)厚生省大臣官房厚生科学課: 厚生科学審議会答申(委員長, 黒川)「手術等で摘出されたヒト組織を用いた研究開発の在り方について」, 平成9年12月16日(http: //www. mhiw. go. jp/search/mmmhlwj/mhw/shingi/s9812/s1216-2-10. html). 7)クルツ・バイエルツ: ヒト・ゲノムの規範的位置づけ―ヨーロッパの視点. 星野一正(編著): 死の尊厳―日米の生命倫理. 思文閣出版, 1995, pp, 310-328. |
| References_xml | – reference: 2)白井泰子, 丸山英二, 土屋貴志ほか: 筋ジストロフィーの遺伝子診断に関する法的, 倫理的, 心理・社会的諸問題の検討. r平成11年度厚生省精神・神経疾患研究委託費による研究報告集(2年度班・初年度班)」, 1999, p.183. – reference: 3)丸山英二: 遺伝子検査―子どもの場合(2): 子どもに対する遺伝子検査の法律問題. 年報医事法学, 15: 1522, 2000. – reference: 4)厚生省大臣官房厚生科学課: 厚生科学審議会答申(委員長, 黒川)「手術等で摘出されたヒト組織を用いた研究開発の在り方について」, 平成9年12月16日(http: //www. mhiw. go. jp/search/mmmhlwj/mhw/shingi/s9812/s1216-2-10. html). – reference: 6)唄孝一, 宇都木伸, 佐藤雄一郎: ヒト由来物質の医学研究利用に関する問題(下〉. ジュリスト2001年2月15日号, 91-99. – reference: 7)クルツ・バイエルツ: ヒト・ゲノムの規範的位置づけ―ヨーロッパの視点. 星野一正(編著): 死の尊厳―日米の生命倫理. 思文閣出版, 1995, pp, 310-328. – reference: 5)唄孝一, 宇都木伸, 佐藤雄一郎: ヒト由来物質の医学研究利用に関する問題(上). ジュリスト2001年2月1日号, 36-48. – reference: 1) Beauchamp, TL & Childress, J. F.: Principles of Biomedical Ethics (First Ed. ). Oxford University Press, 1979. |
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| Title | Comment on the article entitled ‘Study of public human tissue resource bank for research purposes-An attempt to establish a surgically removed tonsil tissue bank at National Children's Hospital-’ in Tissue Culture Research Communications (19: 163-183, 2000), focusing on procedures of informed consent with tissue donor |
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