Applying the FAIR Principles to Accelerate Health Research in Europe in the Post COVID-19 Era Proceedings of the 2021 EFMI Special Topic Conference

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Bibliographic Details
Main Authors Delgado, Jaime, Benis, Arriel, de Toledo, Paula, Giacomini, Mauro, Martínez-García, Alicia, Salvi, Dario
Format eBook
LanguageEnglish
Published London SAGE Publications, Limited 2021
Edition1
Subjects
Online AccessGet full text
ISBN1643682369
9781643682365

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Table of Contents:
  • Are Semantic Annotators Able to Extract Relevant Complexity-Related Concepts from Clinical Notes? -- Chios Hospital Information System Assessment -- Changes in Users Trends Before and During the COVID-19 Pandemic on WHO's Online Learning Platform -- Network Analysis of COVID-19 Vaccine Misinformation on Social Media -- An Online Information Tool for Diabetic Retinopathy -- Subject Index -- Author Index
  • Fast Healthcare Interoperability Resources (FHIR) in a FAIR Metadata Registry for COVID-19 Research -- Improving the FAIRness of Health Studies in Germany: The German Central Health Study Hub COVID-19 -- From EHR to EDC - The Experience at the Policlinico Hospital in Milan -- Towards FAIR Patient Reported Outcome: Application of the Interoperability Principle for Mobile Pandemic Apps -- Section IV. Metadata, Ontologies and Terminologies to Support Sharing of Health Research Data -- Automated Modeling of Clinical Narrative with High Definition Natural Language Processing Using Solor and Analysis Normal Form -- Distribution-Based Similarity Measures Applied to Laboratory Results Matching -- A Methodology for an Auto-Generated and Auto-Maintained HL7 FHIR OWL Ontology for Health Data Management -- Assessing Resolvability and Consistency in OBO Foundry Ontologies: Pilot Study -- Intelligent Integrative Platform for Sharing Heterogenuous Stem Cell Research Data -- Interoperability Standards for Data Sharing as a Basis to Fill in a Tailored EHR for Undiagnosed Rare Diseases -- Semantics Management for a Regional Health Information System in Italy by CTS2 and FHIR -- What Metadata? Defining Different Types of Digital Assets as Application Targets of Metadata in Clinical Research Informatics -- Section V. Paradigms to Share Health Research Data &amp -- Various Health Informatics Studies -- Making EHRs Reusable: A Common Framework of Data Operations -- Utilising the FOXS Stack for FAIR Architected Data Access -- Challenges and Experiences Extending the cBioPortal for Cancer Genomics to a Molecular Tumor Board Platform -- Deep Learning, a Not so Magical Problem Solver: A Case Study with Predicting the Complexity of Breast Cancer Cases -- Influence of Healthcare Organization Factors on Cardiovascular Diseases Mortality
  • Intro -- Title Page -- Preface -- EFMI Special Topic Conference 2021 - Scientific Programme Committee and Reviewers -- Section I. Artificial Intelligence in Health FAIR Data Driven &amp -- FAIR on Infrastructures and Software -- Federated Mining of Interesting Association Rules Over EHRs -- Encoding Health Records into Pathway Representations for Deep Learning -- A Learning Framework for Medical Image-Based Intelligent Diagnosis from Imbalanced Datasets -- Assessing Acceptance Level of a Hybrid Clinical Decision Support Systems -- A Data-Driven Intervention Framework for Improving Adherence to Growth Hormone Therapy Based on Clustering Analysis and Traffic Light Alerting Systems -- Development of a FHIR Layer on Top of the OMOP Common Data Model for the CAPABLE Project -- Automatic Data Transfer from OMOP-CDM to REDCap: A Semantically-Enriched Framework -- Section II. Methods for the Adoption of FAIR Principles &amp -- Privacy and Security Aspects Applying FAIR in Health Research -- FAIRification Efforts of Clinical Researchers: The Current State of Affairs -- Best Research Practice Implementation: The Experience of the N.N. Burdenko National Medical Research Center of Neurosurgery -- Pilot Study of an e-Cohort to Monitor Adverse Event for Patient with Hip Prostheses from Clinical Data Warehouse -- FAIR Aspects of a Genomic Information Protection and Management System -- Extraction of Temporal Structures for Clinical Events in Unlabeled Free-Text Electronic Health Records in Russian -- One Digital Health Is FAIR -- Investigating the FAIR Equivalency in National Guidance in Health in Kenya -- Section III. FAIR and COVID-19 (and Other Infective Diseases) Research Data -- Transfer of Clinical Drug Data to a Research Infrastructure on OMOP - A FAIR Concept -- Beyond the FAIRness of COVID-19 Data: What about Quality?