Palliative Care in Huntington Disease: Personal Reflections and a Review of the Literature

• Published in: Tremor and other hyperkinetic movements (New York, N.Y.) Vol. 7; p. 454
• Main Authors: Tarolli, Christopher G, Chesire, Amy M, Biglan, Kevin M
• Format: Journal Article
• Language: English
• Published: United States Columbia University Libraries/Information Services 01.01.2017; Ubiquity Press
• Subjects: Reviews; hospice; advance care planning; palliative care; caregiver burden; Huntington disease

Huntington disease is a fatal, autosomal dominant, neurodegenerative disorder manifest by the triad of a movement disorder, behavioral disturbances, and dementia. At present, no curative or disease modifying therapies exist for the condition and current treatments are symptomatic. Palliative care is...