Grndad and Disease Modifying Therapy (DMT): Shifts in Dmt Are Seen at the Adolescent/Young Adult Transition in Sickle Cell Disease in a Multi-Site Prospective Registry

• Published in: Blood Vol. 142; no. Supplement 1; p. 798
• Main Authors: Lanzkron, Sophie, Manwani, Deepa, Kanter, Julie, Sinha, Arpan A, Miller, Robin E., Cronin, Robert, Jacob, Seethal A, Harper, James, Anderson, Alan Randall, Treadwell, Marsha, Owusu-Ansah, Amma T., Fuh, Beng R., Mandernach, Molly, Gollamudi, Jahnavi, Saccente, Suzanne L, Fritch Lilla, Stephanie A., McNaull, Melissa, LeBlanc, Dana Marie, Saving, Kay Linn, Guarino, Stephanie H., Betensky, Marisol, Cohen, Alice J., Raj, Ashok B., Sayani, Farzana A, Shah, Sanjay J., Narang, Shalu, Sathi, Bindu Kanathezhath, Strouse, John J, Wong, Trisha E., Alvarez, Ofelia A., Gopal, Srila, Liang, Jessica, Semakula, Daniel, Chang, Matthew, Rivlin, Kenneth, Saif Ur Rehman, Sana, Shook, Lisa M, Frei-Jones, Melissa, Little, Jane A.
• Format: Journal Article
• Language: English
• Published: Elsevier Inc 02.11.2023

The ability to characterize the modern person living with SCD in the US has been limited by the lack of a well-curated longitudinal registry. The Globin Research Network for Data and Discovery ( GRNDaD) registry aims to overcome this challenge by collecting data from the now 53 IRB-approved centers...