Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group Study

• Published in: PloS one Vol. 11; no. 3; p. e0152419
• Main Authors: Gumuchian, Stephanie T, Peláez, Sandra, Delisle, Vanessa C, Carrier, Marie-Eve, Jewett, Lisa R, El-Baalbaki, Ghassan, Fortune, Catherine, Hudson, Marie, Impens, Ann, Körner, Annett, Persmann, Jennifer, Kwakkenbos, Linda, Bartlett, Susan J, Thombs, Brett D
• Format: Journal Article
• Language: English
• Published: United States Public Library of Science 23.03.2016; Public Library of Science (PLoS)
• Subjects: Anxiety; Biology and Life Sciences; Connective tissues; Content analysis; Cost of Illness; Counseling psychology; Disease control; Emotions; Employment - psychology; Family - psychology; Female; Focus Groups; Health aspects; Health care; Hospitals; Humans; Interviews; Male; Medical research; Medicine and Health Sciences; Middle Aged; Nursing; Patients; People and Places; Psychiatry; Psychological aspects; Psychology; Qualitative research; Risk factors; Scleroderma; Scleroderma (Disease); Scleroderma, Systemic - psychology; Self image; Skin; Social factors; Social interactions; Social Sciences; Stress (Psychology); Stress, Psychological - etiology; Stress, Psychological - psychology; Systemic sclerosis; United Kingdom > UK; Canada

Systemic sclerosis, or scleroderma, is a chronic and rare connective tissue disease with negative physical and psychological implications. Sources of emotional distress and the impact they have on the lives of people with scleroderma are not well understood. To gain an in-depth understanding of the...