An Alaska Native community’s views on genetic research, testing, and return of results: Results from a public deliberation

• Published in: PloS one Vol. 15; no. 3; p. e0229540
• Main Authors: Hiratsuka, Vanessa Y., Beans, Julie A., Blanchard, Jessica W., Reedy, Justin, Blacksher, Erika, Lund, Justin R., Spicer, Paul G.
• Format: Journal Article
• Language: English
• Published: United States Public Library of Science 16.03.2020; Public Library of Science (PLoS)
• Subjects: Adult; Alaska - ethnology; Alaska Natives - psychology; Bioethics; Biology and Life Sciences; Boards of directors; Citizen participation; Community; Female; Genetic research; Genetic Research - ethics; Genetic screening; Genetic Testing - ethics; Genetics; Health care; Health care policy; Health Knowledge, Attitudes, Practice - ethnology; Humans; Indigenous peoples; Leadership; Male; Medical research; Medicine and Health Sciences; Primary care; Research methodology; Researchers; Science Policy; Setting (Literature); Studies; Technology; Alaska; India; United States > US; Oklahoma

As genetic testing technology advances, genetic testing will move into standard practice in the primary care setting. Genetic research, testing, and return of results are complex topics that require input from Alaska Native and American Indian (ANAI) communities as policies are developed for impleme...