Impact of Open Data Policies on Consent to Participate in Human Subjects Research: Discrepancies between Participant Action and Reported Concerns

• Published in: PloS one Vol. 10; no. 5; p. e0125208
• Main Authors: Cummings, Jorden A., Zagrodney, Jessica M., Day, T. Eugene
• Format: Journal Article
• Language: English
• Published: United States Public Library of Science 20.05.2015; Public Library of Science (PLoS)
• Subjects: Access to Information - psychology; Adult; Analysis; Computer security; Computer Security - standards; Confidentiality; Confidentiality - psychology; Confidentiality - standards; Consent Forms - standards; Cybersecurity; Data Anonymization - psychology; Data Anonymization - standards; Data collection; Environmental policy; Ethics; Female; Human Experimentation - standards; Human Experimentation - statistics & numerical data; Human subjects; Humans; Informed consent; Innovations; Internet; Male; Marketing; Medical research; Open data; Policies; Privacy; Psychology; Research Subjects - psychology; Research Subjects - statistics & numerical data; Researchers; Scholarly publishing; Science; Security; Social networks; Studies; United States

Research outlets are increasingly adopting open data policies as a requisite for publication, including studies with human subjects data. We investigated whether open data policies influence participants' rate of consent by randomly assigning participants to view consent forms with and without...