Gaining the Patient Reported Outcomes Measurement Information System (PROMIS) perspective in chronic kidney disease: a Midwest Pediatric Nephrology Consortium study

• Published in: Pediatric nephrology (Berlin, West) Vol. 29; no. 12; pp. 2347 - 2356
• Main Authors: Selewski, David T., Massengill, Susan F., Troost, Jonathan P., Wickman, Larysa, Messer, Kassandra L., Herreshoff, Emily, Bowers, Corinna, Ferris, Maria E., Mahan, John D., Greenbaum, Larry A., MacHardy, Jackie, Kapur, Gaurav, Chand, Deepa H., Goebel, Jens, Barletta, Gina Marie, Geary, Denis, Kershaw, David B., Pan, Cynthia G., Gbadegesin, Rasheed, Hidalgo, Guillermo, Lane, Jerome C., Leiser, Jeffrey D., Song, Peter X., Thissen, David, Liu, Yang, Gross, Heather E., DeWalt, Darren A., Gipson, Debbie S.
• Format: Journal Article
• Language: English
• Published: Berlin/Heidelberg Springer Berlin Heidelberg 01.12.2014; Springer; Springer Nature B.V
• Subjects: Adolescent; Anxiety; Child; Chronic kidney failure; Clinical outcomes; Consortia; Cross-Sectional Studies; Demographic aspects; Edema; Female; Hospitals; Humans; Hypertension; Information systems; Item response theory; Kidney diseases; Male; Measurement; Medicine; Medicine & Public Health; Methods; Nephrology; Nephrology - methods; Original Article; Outcome and process assessment (Health Care); Pain; Patient Outcome Assessment; Patient outcomes; Patients; Pediatrics; Peer relationships; Quality of Life; Renal Insufficiency, Chronic - complications; Renal Insufficiency, Chronic - psychology; Self Report; Severity of Illness Index; Surveys and Questionnaires; Urology; Ann Arbor Michigan; Atlanta Georgia; United States > US; Pediatrics; Patient reported outcomes; End stage kidney disease; Chronic kidney disease; Children; Quality of life; Transplant

Background and objectives Chronic kidney disease is a persistent chronic health condition commonly seen in pediatric nephrology programs. Our study aims to evaluate the sensitivity of the Patient Reported Outcomes Measurement Information System (PROMIS) pediatric instrument to indicators of disease...