Differences in Child versus Parent Reports of the Child's Health-Related Quality of Life in Children with Epilepsy and Healthy Siblings

• Published in: Value in health Vol. 13; no. 6; pp. 778 - 786
• Main Authors: Baca, Christine Bower, MD, Vickrey, Barbara G., MD, MPH, Hays, Ron D., PhD, Vassar, Stefanie D., MS, Berg, Anne T., PhD
• Format: Journal Article
• Language: English
• Published: Malden, USA Elsevier Inc 01.09.2010; Blackwell Publishing Inc
• Subjects: Adolescent; Adult; Case-Control Studies; Child; child and adolescent health; Child Health Questionnaire (CHQ); Children; Epilepsy; Epilepsy - psychology; Female; Health status; health-related quality of life (HRQOL); Humans; Internal Medicine; Male; outcomes research; Parents; Parents - psychology; patient-reported outcomes; Prospective Studies; proxy; Proxy - psychology; Quality of Life; Self-Assessment; Siblings; Siblings - psychology; Sickness Impact Profile; epilepsy; patient-reported outcomes; proxy; child and adolescent health; outcomes research; Child Health Questionnaire (CHQ); health-related quality of life (HRQOL)

Abstract Objectives Self versus proxy perspectives may produce different results that are important for clinical decision-making and for assessing outcomes in research studies. We examined differences in child versus parent report of the child's health-related quality of life (HRQOL) in a large...