Exploring barriers and ethical challenges to medical data sharing: perspectives from Chinese researchers

• Published in: BMC medical ethics Vol. 25; no. 1; pp. 132 - 11
• Main Authors: Li, Xiaojie, Cong, Yali
• Format: Journal Article
• Language: English
• Published: England BioMed Central Ltd 15.11.2024; BioMed Central; BMC
• Subjects: Beliefs, opinions and attitudes; Benefits sharing; Big Data; Biomedical Research - ethics; China; Confidentiality - ethics; Data collection; Data integrity; Data protection law; Data quality; Data sensitivity; Data sharing; East Asian People; Ethical aspects; Ethics; Ethics, Research; Female; Focus Groups; Hospitals; Humans; Information Dissemination - ethics; Information professionals; Information sharing; Informed Consent - ethics; Interviews; Male; Management science; Medical data; Medical ethics; Medical research; Medical research personnel; Medicine, Experimental; Personal information; Physicians; Privacy; Public opinion; Research Personnel - ethics; Researchers; Scientists; China; Medical data; Data protection law; Data quality; Benefits sharing; Data sharing; Data sensitivity

The impetus for policies promoting medical data sharing in China has gained significant traction. Nonetheless, the present legal and ethical framework governing the research use of medical data in China, is characterized by a more restrictive rather than permissive approach. The proportion of Chines...