Pain Experience and Expression in Rett Syndrome: Subjective and Objective Measurement Approaches

• Published in: Journal of developmental and physical disabilities Vol. 27; no. 4; pp. 417 - 429
• Main Authors: Barney, Chantel C., Feyma, Timothy, Beisang, Arthur, Symons, Frank J.
• Format: Journal Article
• Language: English
• Published: New York Springer US 01.08.2015; Springer Nature B.V
• Subjects: Behavior; Behavioral Science and Psychology; Child and School Psychology; Chronic pain; Convulsions & seizures; Discomfort; Informed consent; Measurement; Original Article; Pain; Pediatrics; Psychology; Public Health; Recurrent; Rett syndrome; Measurement; MeCP2; Pain; Neurodevelopmental disability; Rett syndrome; pain; neurodevelopmental disability; measurement

Rett syndrome (RTT) is associated with myriad debilitating health issues and significant motor and communicative impairments. Because of the former there is concern about the possibility of recurrent and chronic pain but because of the latter it remains difficult to determine what pain ‘looks like’...