Data protection legislation in Africa and pathways for enhancing compliance in big data health research

• Published in: Health research policy and systems Vol. 22; no. 1; pp. 145 - 14
• Main Authors: Munung, Nchangwi Syntia, Staunton, Ciara, Mazibuko, Otshepeng, Wall, P. J., Wonkam, Ambroise
• Format: Journal Article
• Language: English
• Published: England BioMed Central Ltd 15.10.2024; BioMed Central; BMC
• Subjects: Africa; Analysis; Big Data; Biomedical Research - legislation & jurisprudence; Borders; Codes of conduct; Collaboration; Compensation; Compliance; Computer Security - legislation & jurisprudence; Confidentiality; Confidentiality - legislation & jurisprudence; Consent; Cybersecurity; Data analysis; Data collection; Data governance; Data laws; Data processing; Data Science; Data sharing; Data transfer (computers); Discrimination; Dynamic consent; Electronic Health Records; Electronic medical records; Electronic records; Evidence-based medicine; Genetic screening; Genetic testing; Health research; Health surveillance; Humans; Information Dissemination - legislation & jurisprudence; Information sharing; Informed consent; Innovations; Jurisdiction; Legislation; Legitimacy; Medical records; Medical research; Methods; Personal information; Precision medicine; Privacy; Public health; Regulation; Research ethics; Rights; Safe data flows; Sculpture; Storage; Wearable technology; Africa; South Africa; Dynamic consent; Big data; Data laws; Data governance; Data sharing; Safe data flows

The increasing availability of large volumes of personal data from diverse sources such as electronic health records, research programmes, commercial genetic testing, national health surveys and wearable devices presents significant opportunities for advancing public health, disease surveillance, pe...