Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study - Lacerda, Eliana M.; McDermott, Clare; Kingdon, Caroline C.; Butterworth, Jack; Cliff, Jacqueline M.; Nacul, Luis (Health expectations : an international journal of public participation in health care and health policy, 2019)
Keywords: Adaptation, Psychological; Adult; Attitude to Health; Chronic fatigue syndrome; Clinical medicine; Collaboration; Data storage; Diagnosis; Encephalomyelitis; Encephalomyelitis - psychology; England; Epidemiology; Fatigue; Fatigue Syndrome, Chronic - psychology; Female; Focus Groups; Genetics; Health aspects; Hope; Humans; Hygiene; Immunology; Male; Medical research; Medicine; Medicine, Experimental; Middle Aged; Multiple sclerosis; Multiple Sclerosis - psychology; myalgic encephalomyelitis; Original Research Paper; Original Research Papers; patient and public involvement; Public involvement; Qualitative Research; Research Design; Research Subjects - psychology; Social Stigma; England; United Kingdom--UK; chronic fatigue syndrome; myalgic encephalomyelitis; qualitative research; patient and public involvement; multiple sclerosis; focus groups