Patient pathways for rare diseases in Europe: ataxia as an example - Vallortigara, Julie; Greenfield, Julie; Hunt, Barry; Hoffman, Deborah; Reinhard, Carola; Graessner, Holm; Federico, Antonio; Quoidbach, Vinciane; Morris, Steve; Giunti, Paola (Orphanet journal of rare diseases, 2023)
Keywords: Ataxia; Care and treatment; Care pathway; Comparative analysis; Diagnosis; Feedback; Health care; Health care industry; Health surveys; Medical care; Medical research; Medicine, Experimental; Nervous system diseases; Neurological diseases; Patient satisfaction; Patient survey; Patients; Primary care; Rare diseases; Specialist centre; Surveys; Utilization; Italy; United Kingdom; Germany; United Kingdom--UK; Europe