End-of-life parental communication priorities among bereaved fathers due to cancer
Highlights • Web-based survey of bereaved fathers due to cancer. • Communication with children about death is a priority for bereaved fathers. • Fathers identify maternal wishes about raising children as important to discuss. • Communication priorities of fathers do not differ with time since death....
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| Published in | Patient education and counseling Vol. 100; no. 5; pp. 1019 - 1023 |
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| Main Authors | , , , , , , , |
| Format | Journal Article |
| Language | English |
| Published |
Ireland
Elsevier B.V
01.05.2017
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| Abstract | Highlights • Web-based survey of bereaved fathers due to cancer. • Communication with children about death is a priority for bereaved fathers. • Fathers identify maternal wishes about raising children as important to discuss. • Communication priorities of fathers do not differ with time since death. |
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| AbstractList | Highlights • Web-based survey of bereaved fathers due to cancer. • Communication with children about death is a priority for bereaved fathers. • Fathers identify maternal wishes about raising children as important to discuss. • Communication priorities of fathers do not differ with time since death. To elicit widowed fathers' perspectives on which domains of parenting-related communication they consider most important for dying parents to discuss at the end of life (EOL). Two hundred seventy nine fathers widowed by cancer completed a survey about their own depression and bereavement symptoms, their wife's illness, and EOL parental communication priorities. Chi square and Fisher's exact tests and logistic regression were used to evaluate relationships between maternal EOL characteristics and fathers' responses to parenting-related EOL communication priorities. Fathers identified raising children in a manner that reflected maternal wishes, whether/how to talk with children about their mother's death, and how the mother wanted to be remembered as the most important EOL communication domains. Fathers who reported that their dying wives were worried about the children were more likely to prioritize raising children in ways that reflect her wishes (p=0.01). Other EOL characteristics were not associated with communication domains. Communicating with children and maintaining emotional connection with the deceased parent are important priorities for bereaved fathers who lost a spouse to cancer. Health care providers working with seriously ill parents may improve family outcomes by supporting communication at the EOL between co-parents. •Web-based survey of bereaved fathers due to cancer.•Communication with children about death is a priority for bereaved fathers.•Fathers identify maternal wishes about raising children as important to discuss.•Communication priorities of fathers do not differ with time since death. To elicit widowed fathers’ perspectives on which domains of parenting-related communication they consider most important for dying parents to discuss at the end of life (EOL). Two hundred seventy nine fathers widowed by cancer completed a survey about their own depression and bereavement symptoms, their wife’s illness, and EOL parental communication priorities. Chi square and Fisher’s exact tests and logistic regression were used to evaluate relationships between maternal EOL characteristics and fathers’ responses to parenting-related EOL communication priorities. Fathers identified raising children in a manner that reflected maternal wishes, whether/how to talk with children about their mother’s death, and how the mother wanted to be remembered as the most important EOL communication domains. Fathers who reported that their dying wives were worried about the children were more likely to prioritize raising children in ways that reflect her wishes (p=0.01). Other EOL characteristics were not associated with communication domains. Communicating with children and maintaining emotional connection with the deceased parent are important priorities for bereaved fathers who lost a spouse to cancer. Health care providers working with seriously ill parents may improve family outcomes by supporting communication at the EOL between co-parents. OBJECTIVESTo elicit widowed fathers' perspectives on which domains of parenting-related communication they consider most important for dying parents to discuss at the end of life (EOL).METHODSTwo hundred seventy nine fathers widowed by cancer completed a survey about their own depression and bereavement symptoms, their wife's illness, and EOL parental communication priorities. Chi square and Fisher's exact tests and logistic regression were used to evaluate relationships between maternal EOL characteristics and fathers' responses to parenting-related EOL communication priorities.RESULTSFathers identified raising children in a manner that reflected maternal wishes, whether/how to talk with children about their mother's death, and how the mother wanted to be remembered as the most important EOL communication domains. Fathers who reported that their dying wives were worried about the children were more likely to prioritize raising children in ways that reflect her wishes (p=0.01). Other EOL characteristics were not associated with communication domains.CONCLUSIONSCommunicating with children and maintaining emotional connection with the deceased parent are important priorities for bereaved fathers who lost a spouse to cancer.PRACTICE IMPLICATIONSHealth care providers working with seriously ill parents may improve family outcomes by supporting communication at the EOL between co-parents. |
| Author | Nakamura, Zev M Stephenson, Elise M Edwards, Teresa Rosenstein, Donald L Deal, Allison M Park, Eliza M Yopp, Justin M Hailey, Claire E |
| AuthorAffiliation | d School of Medicine, University of North Carolina, 321 S. Columbia St., Chapel Hill, NC 27516, USA c H. W. Odum Institute for Research in Social Science, University of North Carolina at Chapel Hill, 208 N. Raleigh St, CB3355, Chapel Hill, NC 27599, USA b Lineberger Comprehensive Cancer Center Biostatistics Core Facility, University of North Carolina, 450 West Drive, Chapel Hill, NC 27514, USA a Department of Psychiatry, University of North Carolina, Chapel Hill, NC (USA); 170 Manning Drive, Chapel Hill, NC 27599, USA e Department of Medicine, University of North Carolina, 125 MacNider Hall, CB7005, Chapel Hill NC 27599, USA |
| AuthorAffiliation_xml | – name: c H. W. Odum Institute for Research in Social Science, University of North Carolina at Chapel Hill, 208 N. Raleigh St, CB3355, Chapel Hill, NC 27599, USA – name: b Lineberger Comprehensive Cancer Center Biostatistics Core Facility, University of North Carolina, 450 West Drive, Chapel Hill, NC 27514, USA – name: e Department of Medicine, University of North Carolina, 125 MacNider Hall, CB7005, Chapel Hill NC 27599, USA – name: a Department of Psychiatry, University of North Carolina, Chapel Hill, NC (USA); 170 Manning Drive, Chapel Hill, NC 27599, USA – name: d School of Medicine, University of North Carolina, 321 S. Columbia St., Chapel Hill, NC 27516, USA |
| Author_xml | – sequence: 1 fullname: Park, Eliza M – sequence: 2 fullname: Deal, Allison M – sequence: 3 fullname: Yopp, Justin M – sequence: 4 fullname: Edwards, Teresa – sequence: 5 fullname: Stephenson, Elise M – sequence: 6 fullname: Hailey, Claire E – sequence: 7 fullname: Nakamura, Zev M – sequence: 8 fullname: Rosenstein, Donald L |
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| Keywords | End-of-life Oncology Bereavement Parents Communication Cancer |
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| Snippet | Highlights • Web-based survey of bereaved fathers due to cancer. • Communication with children about death is a priority for bereaved fathers. • Fathers... •Web-based survey of bereaved fathers due to cancer.•Communication with children about death is a priority for bereaved fathers.•Fathers identify maternal... To elicit widowed fathers' perspectives on which domains of parenting-related communication they consider most important for dying parents to discuss at the... OBJECTIVESTo elicit widowed fathers' perspectives on which domains of parenting-related communication they consider most important for dying parents to discuss... |
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| SubjectTerms | Adolescent Bereavement Cancer Child Communication End-of-life Fathers - psychology Female Humans Internal Medicine Male Middle Aged Neoplasms - mortality Neoplasms - psychology Neoplasms - therapy Oncology Parents Professional-Family Relations Terminal Care Widowhood - psychology |
| Title | End-of-life parental communication priorities among bereaved fathers due to cancer |
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