Looking back: three key lessons from 20 years of shaping Japanese genome research regulations

Saved in:

Bibliographic Details
Published in	Journal of human genetics Vol. 66; no. 11; pp. 1039 - 1041
Main Authors	Minari, Jusaku, Yokono, Megumu, Takashima, Kayo, Kokado, Minori, Ida, Ryuichi, Hishiyama, Yutaka
Format	Journal Article
Language	English
Published	England Nature Publishing Group 01.11.2021 Springer Singapore
Subjects	Biomedical research Biomedical Research - ethics Biomedical Research - history Biomedical Research - legislation & jurisprudence Biomedical Research - standards Computer Security - ethics Computer Security - history Computer Security - legislation & jurisprudence Consent Ethicists - history Ethicists - legislation & jurisprudence Ethics Genetic Privacy - ethics Genetic Privacy - legislation & jurisprudence Genome, Human - physiology Genomes Government Regulation - history Healthy Volunteers History, 21st Century Human Genetics - ethics Human Genetics - history Human Genetics - legislation & jurisprudence Human Genetics - standards Human subjects Humans Japan Legislation Medical research Practice Guidelines as Topic - standards Privacy Regulation Revisions Science Social sciences Japan
Online Access	Get full text

Cover

Loading…

Author	Yokono, Megumu Takashima, Kayo Ida, Ryuichi Minari, Jusaku Kokado, Minori Hishiyama, Yutaka
Author_xml	– sequence: 1 givenname: Jusaku orcidid: 0000-0002-6773-4741 surname: Minari fullname: Minari, Jusaku – sequence: 2 givenname: Megumu surname: Yokono fullname: Yokono, Megumu – sequence: 3 givenname: Kayo surname: Takashima fullname: Takashima, Kayo – sequence: 4 givenname: Minori surname: Kokado fullname: Kokado, Minori – sequence: 5 givenname: Ryuichi surname: Ida fullname: Ida, Ryuichi – sequence: 6 givenname: Yutaka surname: Hishiyama fullname: Hishiyama, Yutaka
BackLink	https://www.ncbi.nlm.nih.gov/pubmed/33972679$$D View this record in MEDLINE/PubMed
BookMark	eNp9kU1vEzEQhi1URNvAH-CALHHhsuBvezkgoYpPReICEhdkOe442WZ3HexdpPTXM01KBT1wmpH8vOOZ9z0nJ2MegZCnnL3kTLpXlTMsDRO8YawVsrl-QM64kroRUnw_OfSq0dzwU3Je6xVDXFjxiJxK2VphbHtGfixz3nbjmq5C3L6m06YA0C3saQ-15rHSVPJABaN7CKXSnGjdhN2N4HPYhREq0DWMeQBasA8lbrBZz32YOlQ_Jg9T6Cs8ua0L8u39u68XH5vllw-fLt4um6iNmpoIKhkbL23iIiUTdVS4OVjpVAtOJgvG8tYaJZwzKiajjQ5xldrWWpe4lgvy5jh3N68GuIwwTiX0fle6IZS9z6Hz_76M3cav8y_vtBIazVyQF7cDSv45Q5380NUIfY8n5rl6oQX-yZTliD6_h17luYx4HlJOo_XGCaSe_b3R3Sp_nEdAHIFYcq0F0h3Cmb-J1x_j9RivP8Trr1Hk7oliNx2sxqu6_n_S38fKqiI
CitedBy_id	crossref_primary_10_3389_fpos_2022_825496
Cites_doi	10.1007/s41649-017-0022-z 10.1038/s10038-019-0587-3 10.1007/s00439-011-1063-0 10.1017/s0963180104133070 10.1111/j.1475-6781.2010.01127.x 10.1038/s10038-017-0409-4 10.1126/science.aax0892 10.2966/scrip.110214.180 10.1038/s41431-020-00771-z 10.1177/2053951716650211
ContentType	Journal Article
Copyright	The Author(s) 2021. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. The Author(s) 2021
Copyright_xml	– notice: The Author(s) 2021. This work is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License. – notice: The Author(s) 2021
DBID	AAYXX CITATION CGR CUY CVF ECM EIF NPM 3V. 7X7 7XB 88E 8FD 8FE 8FH 8FI 8FJ 8FK ABUWG AFKRA AZQEC BBNVY BENPR BHPHI CCPQU DWQXO FR3 FYUFA GHDGH GNUQQ HCIFZ K9. LK8 M0S M1P M7P P64 PHGZM PHGZT PJZUB PKEHL PPXIY PQEST PQGLB PQQKQ PQUKI PRINS RC3 7X8 5PM
DOI	10.1038/s10038-021-00923-z
DatabaseName	CrossRef Medline MEDLINE MEDLINE (Ovid) MEDLINE MEDLINE PubMed ProQuest Central (Corporate) Health & Medical Collection ProQuest Central (purchase pre-March 2016) Medical Database (Alumni Edition) Technology Research Database ProQuest SciTech Collection ProQuest Natural Science Collection Hospital Premium Collection Hospital Premium Collection (Alumni Edition) ProQuest Central (Alumni) (purchase pre-March 2016) ProQuest Central (Alumni) ProQuest Central UK/Ireland ProQuest Central Essentials Biological Science Collection ProQuest Central Natural Science Collection ProQuest One Community College ProQuest Central Korea Engineering Research Database Health Research Premium Collection Health Research Premium Collection (Alumni) ProQuest Central Student ProQuest SciTech Premium Collection ProQuest Health & Medical Complete (Alumni) Biological Sciences Health & Medical Collection (Alumni) Medical Database Biological Science Database Biotechnology and BioEngineering Abstracts ProQuest Central Premium ProQuest One Academic ProQuest Health & Medical Research Collection ProQuest One Academic Middle East (New) ProQuest One Health & Nursing ProQuest One Academic Eastern Edition (DO NOT USE) ProQuest One Applied & Life Sciences ProQuest One Academic ProQuest One Academic UKI Edition ProQuest Central China Genetics Abstracts MEDLINE - Academic PubMed Central (Full Participant titles)
DatabaseTitle	CrossRef MEDLINE Medline Complete MEDLINE with Full Text PubMed MEDLINE (Ovid) ProQuest Central Student Technology Research Database ProQuest One Academic Middle East (New) ProQuest Central Essentials ProQuest Health & Medical Complete (Alumni) ProQuest Central (Alumni Edition) SciTech Premium Collection ProQuest One Community College ProQuest One Health & Nursing ProQuest Natural Science Collection ProQuest Central China ProQuest Central ProQuest One Applied & Life Sciences ProQuest Health & Medical Research Collection Genetics Abstracts Health Research Premium Collection Health and Medicine Complete (Alumni Edition) Natural Science Collection ProQuest Central Korea Health & Medical Research Collection Biological Science Collection ProQuest Central (New) ProQuest Medical Library (Alumni) ProQuest Biological Science Collection ProQuest One Academic Eastern Edition ProQuest Hospital Collection Health Research Premium Collection (Alumni) Biological Science Database ProQuest SciTech Collection ProQuest Hospital Collection (Alumni) Biotechnology and BioEngineering Abstracts ProQuest Health & Medical Complete ProQuest Medical Library ProQuest One Academic UKI Edition Engineering Research Database ProQuest One Academic ProQuest One Academic (New) ProQuest Central (Alumni) MEDLINE - Academic
Database_xml	– sequence: 1 dbid: NPM name: PubMed url: https://proxy.k.utb.cz/login?url=http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed sourceTypes: Index Database – sequence: 2 dbid: EIF name: MEDLINE url: https://proxy.k.utb.cz/login?url=https://www.webofscience.com/wos/medline/basic-search sourceTypes: Index Database – sequence: 3 dbid: BENPR name: ProQuest Central url: https://www.proquest.com/central sourceTypes: Aggregation Database
DeliveryMethod	fulltext_linktorsrc
Discipline	Biology
EISSN	1435-232X
EndPage	1041
ExternalDocumentID	PMC8542510 33972679 10_1038_s10038_021_00923_z
Genre	Historical Article Research Support, Non-U.S. Gov't Journal Article
GeographicLocations	Japan
GeographicLocations_xml	– name: Japan
GrantInformation_xml	– fundername: MEXT \| JST \| Research Institute of Science and Technology for Society (RISTEX) grantid: JPMJRX19B5 – fundername: MEXT \| Japan Society for the Promotion of Science (JSPS) grantid: 19K21566 – fundername: ; – fundername: ; grantid: JPMJRX19B5 – fundername: ; grantid: 19K21566; 19K21566
GroupedDBID	--- .86 0R~ 29K 36B 39C 4.4 406 53G 5GY 70F 7X7 88E 8FI 8FJ AACDK AANZL AASML AATNV AAYXX AAYZH ABAKF ABBRH ABDBE ABFSG ABJNI ABUWG ABZZP ACAOD ACGFS ACKTT ACRQY ACSTC ACZOJ ADBBV ADIMF AEFQL AEJRE AEMSY AENEX AESKC AEVLU AEXYK AEZWR AFBBN AFDZB AFHIU AFKRA AFSHS AGAYW AGHAI AGQEE AHBYD AHMBA AHSBF AHWEU AIGIU AIXLP AJRNO ALFFA ALIPV ALMA_UNASSIGNED_HOLDINGS AMYLF ATHPR AXYYD AYFIA BBNVY BENPR BHPHI BKKNO BPHCQ BVXVI CCPQU CITATION CS3 D-I DIK DNIVK DPUIP DU5 E3Z EAP EBLON EBS EE. EHN EMB EST F5P FDQFY FERAY FIGPU FSGXE FYUFA HCIFZ HMCUK HZ~ IHE IWAJR IZQ JSO JZLTJ KDC KOV LAS M1P M7P NQJWS O9- OK1 P2P PHGZM PHGZT PQQKQ PROAC PSQYO RNT RNTTT ROL RPX S27 SDH SNX SNYQT SOHCF SOJ SRMVM SWTZT T13 TAOOD TBHMF TDRGL TSG UKHRP WJK ~KM -Q- .55 1SB 2P1 2VQ 2WC 3O- 3V. 5VS 6NX 78A AAIAL AAZLF ABAWZ ABDBF ACBXY ACOMO ACUHS ADHDB ADINQ AFLOW AILAN AMKLP AZFZN B0M BAWUL BGNMA CAG CGR COF CUY CVF DL5 EAD EAS EBC EBD EBX ECM EIF EIOEI EJD EMK EMOBN EPAXT EPL EPT ESX FEDTE FIZPM HF~ HG6 HVGLF I09 IXE KQ8 M4Y NAO NPM NU0 QOK QOS Q~Q RIG RRX RSV S1Z SBL SV3 TR2 TSK TUS TWA U2A VC2 WK8 X7M ZJWQK ~8M 7XB 8FD 8FE 8FH 8FK ABRTQ AZQEC DWQXO FR3 GNUQQ K9. LK8 P64 PJZUB PKEHL PPXIY PQEST PQGLB PQUKI PRINS RC3 7X8 PUEGO 5PM
ID	FETCH-LOGICAL-c564t-ce4f67cd7f12ff6c5c4434e73849e83f7e671976428864cf6565acbf99778f153
IEDL.DBID	7X7
ISSN	1434-5161 1435-232X
IngestDate	Thu Aug 21 14:11:14 EDT 2025 Sun Aug 24 04:03:22 EDT 2025 Sat Aug 23 14:04:14 EDT 2025 Wed Feb 19 02:26:27 EST 2025 Tue Jul 01 03:52:30 EDT 2025 Thu Apr 24 23:03:35 EDT 2025
IsDoiOpenAccess	true
IsOpenAccess	true
IsPeerReviewed	true
IsScholarly	true
Issue	11
Language	English
License	Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/.
LinkModel	DirectLink
MergedId	FETCHMERGED-LOGICAL-c564t-ce4f67cd7f12ff6c5c4434e73849e83f7e671976428864cf6565acbf99778f153
Notes	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 14 content type line 23
ORCID	0000-0002-6773-4741
OpenAccessLink	https://pubmed.ncbi.nlm.nih.gov/PMC8542510
PMID	33972679
PQID	2585232682
PQPubID	2043496
PageCount	3
ParticipantIDs	pubmedcentral_primary_oai_pubmedcentral_nih_gov_8542510 proquest_miscellaneous_2525650471 proquest_journals_2585232682 pubmed_primary_33972679 crossref_primary_10_1038_s10038_021_00923_z crossref_citationtrail_10_1038_s10038_021_00923_z
ProviderPackageCode	CITATION AAYXX
PublicationCentury	2000
PublicationDate	2021-11-01
PublicationDateYYYYMMDD	2021-11-01
PublicationDate_xml	– month: 11 year: 2021 text: 2021-11-01 day: 01
PublicationDecade	2020
PublicationPlace	England
PublicationPlace_xml	– name: England – name: London – name: Singapore
PublicationTitle	Journal of human genetics
PublicationTitleAlternate	J Hum Genet
PublicationYear	2021
Publisher	Nature Publishing Group Springer Singapore
Publisher_xml	– name: Nature Publishing Group – name: Springer Singapore
References	J Metcalf (923_CR7) 2016 J Kaye (923_CR6) 2011; 130 923_CR9 H Nagai (923_CR4) 2017; 9 BT Slingsby (923_CR1) 2004; 13 N Yamamoto (923_CR5) 2018; 63 D Nicol (923_CR8) 2019; 364 S Tashiro (923_CR2) 2010; 19 Y Hishiyama (923_CR10) 2019; 64 J Minari (923_CR3) 2014; 11
References_xml	– volume: 9 start-page: 183 year: 2017 ident: 923_CR4 publication-title: Asian Bioeth Rev doi: 10.1007/s41649-017-0022-z – volume: 64 start-page: 397 year: 2019 ident: 923_CR10 publication-title: J Hum Genet doi: 10.1038/s10038-019-0587-3 – volume: 130 start-page: 377 year: 2011 ident: 923_CR6 publication-title: Hum Genet doi: 10.1007/s00439-011-1063-0 – volume: 13 start-page: 245 year: 2004 ident: 923_CR1 publication-title: Camb Q Health Ethics doi: 10.1017/s0963180104133070 – volume: 19 start-page: 4 year: 2010 ident: 923_CR2 publication-title: Int J Jpn Sociol doi: 10.1111/j.1475-6781.2010.01127.x – volume: 63 start-page: 537 year: 2018 ident: 923_CR5 publication-title: J Hum Genet doi: 10.1038/s10038-017-0409-4 – volume: 364 start-page: 445 year: 2019 ident: 923_CR8 publication-title: Science doi: 10.1126/science.aax0892 – volume: 11 start-page: 180 year: 2014 ident: 923_CR3 publication-title: SCRIPTed doi: 10.2966/scrip.110214.180 – ident: 923_CR9 doi: 10.1038/s41431-020-00771-z – year: 2016 ident: 923_CR7 publication-title: BDS doi: 10.1177/2053951716650211
SSID	ssj0003272
Score	2.3158877
SourceID	pubmedcentral proquest pubmed crossref
SourceType	Open Access Repository Aggregation Database Index Database Enrichment Source
StartPage	1039
SubjectTerms	Biomedical research Biomedical Research - ethics Biomedical Research - history Biomedical Research - legislation & jurisprudence Biomedical Research - standards Computer Security - ethics Computer Security - history Computer Security - legislation & jurisprudence Consent Ethicists - history Ethicists - legislation & jurisprudence Ethics Genetic Privacy - ethics Genetic Privacy - legislation & jurisprudence Genome, Human - physiology Genomes Government Regulation - history Healthy Volunteers History, 21st Century Human Genetics - ethics Human Genetics - history Human Genetics - legislation & jurisprudence Human Genetics - standards Human subjects Humans Japan Legislation Medical research Practice Guidelines as Topic - standards Privacy Regulation Revisions Science Social sciences
Title	Looking back: three key lessons from 20 years of shaping Japanese genome research regulations
URI	https://www.ncbi.nlm.nih.gov/pubmed/33972679 https://www.proquest.com/docview/2585232682 https://www.proquest.com/docview/2525650471 https://pubmed.ncbi.nlm.nih.gov/PMC8542510
Volume	66
hasFullText	1
inHoldings	1
isFullTextHit
isPrint
link	http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwfV1Lb9QwEB5BKyQuqLxTSmUkbsgi8SP2cqkKtCoFKoSotBcUxY7dRbTZQraH9td3JvEGFqSeksiOEs2MZz4_5huAl84pGbxy3DSu5so4x2tbRO5t40Re1k70ZNWfj8qDY3U41dO04NalY5VLn9g76mbuaY38tUBci9G_tGLn_BenqlG0u5pKaNyGdaIuI6s203HClUvRF29CSKC4RmiTkmZyaSl1Di-cDigQ7ZDkV6uB6T-0-e-hyb-i0P4G3Evwke0O-r4Pt0L7AO4MBSUvH8L3T7Qc254wV_ufb9gCFRUYDlN2ig4N7YtRNgkTObtEA-_YPLJuVlPGFDvEoEnFKBmRtp4FlkiAZnhzkip8dY_geH_v27sDngoocK9LteA-qFga35hYiBhLr71CUQQjrZoEK6MJpSkQj-AUxJbKR8R2uvYuThAU2oi-8DGstfM2PAWmG18XUUVRN1LltrFGCi1QGFFHaaLJoFhKr_KJXZyKXJxW_S63tNUg8QolXvUSr64yeDW-cz5wa9zYe2uplCqNs676YxUZvBibcYTQtgeKbX5BfRDW6RyjcAZPBh2On5MIx0RpJhmYFe2OHYh9e7Wl_THrWbitRndX5Js3_9YzuCvIyPrsxS1YW_y-CM8Rxizcdm-r27D-du_oy1d8ev_h4zWc1vM1
linkProvider	ProQuest
linkToHtml	http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwtV1Lb9QwEB5VRQguiDeBAkaCE7JI_Ii9SAghoNq2255aaS8oxI7dRZRsIVuh7Y_iNzKTx8KC1FtPiRRHiT6PZz4_Zj6A584pGbxy3FSu5Mo4x0ubRe5t5USal060xar3D_Lxkdqd6ukG_BpyYehY5eATW0ddzT2tkb8SyGsx-udWvD39zkk1inZXBwmNziz2wvInTtmaNzsfsH9fCLH98fD9mPeqAtzrXC24DyrmxlcmZiLG3GuvlFTBSKtGwcpoQm4yDNLIy22ufETCo0vv4giZko0ZqUSgy7-CgTelyZ6ZriZ4qRStWBRSEMU1Uqk-SSeVllL18MLpQASVOZL8fD0Q_sdu_z2k-VfU274JN3q6yt519nULNkJ9G652ApbLO_BpQsu_9TFzpf_6mi3QMAJDt8BO0IGiPTPKXmEiZUtErmHzyJpZSRlabBeDNIlfMioS-y2wvujQDG-Oe0Wx5i4cXQq092CzntfhATBd-TKLKoqykiq1lTVSaIFgRB2liSaBbECv8H01cxLVOCnaXXVpiw7xAhEvWsSL8wRert457Wp5XNh6a-iUoh_XTfHHChN4tnqMI5K2WRC2-Rm1QRqpU4z6Cdzv-nD1OYn0T-RmlIBZ691VA6r2vf6k_jJrq35bje41Sx9e_FtP4dr4cH9STHYO9h7BdUEG12ZObsHm4sdZeIwUauGetHbL4PNlD5TfN4kswg
linkToPdf	http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwtV3da9RAEB_KFcUX8du0VVfQJ1ma7Ed2ryCitke_PIpY6IvE7Ga3J21ztbki1z_Nv87ZfOkp9K1PCWRDwszszG93Z-YH8MoYwZ0VhqrC5FQoY2iuE0-tLgyL09ywuln1p3G6fSh2j-TREvzqamFCWmXnE2tHXUxt2CNfZ4hrMfqnmq37Ni3iYHP07vwHDQxS4aS1o9NoTGTPzX_i8q16u7OJun7N2Gjry8dt2jIMUCtTMaPWCZ8qWyifMO9TK60QXDjFtRg6zb1yqUowYCNG16mwHsGPzK3xQ0RN2ieBMQLd_7IKq6IBLH_YGh987uMAZzV1FAISQSUCq7ZkJ-Y6FO7hhYb0iND0iNOrxbD4H9b9N2Xzrxg4ugd3W_BK3jfWdh-WXPkAbjV0lvOH8HU_bAaXx8Tk9mSDzNBMHEEnQU7RnaJ1k1DLQlhM5ii7ikw9qSZ5qNciuxiyAxUmCS1jzxxpWxBN8Oa45RerHsHhjQj3MQzKaemeApGFzRMvPMsLLmJdaMWZZCgMLz1XXkWQdNLLbNvbPFBsnGb1GTvXWSPxDCWe1RLPriJ4079z3nT2uHb0WqeUrJ3lVfbHJiN42T_G-RkOXVBs08swBkGljBEDRPCk0WH_OY5gkKVqGIFa0G4_IPT-XnxSfp_UPcC1RGebxCvX_9YLuI2TJNvfGe-twh0W7K0uo1yDwezi0j1DPDUzz1vDJfDtpufKb2lRMl0
openUrl	ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=Looking+back%3A+three+key+lessons+from+20+years+of+shaping+Japanese+genome+research+regulations&rft.jtitle=Journal+of+human+genetics&rft.au=Minari%2C+Jusaku&rft.au=Yokono%2C+Megumu&rft.au=Takashima%2C+Kayo&rft.au=Kokado%2C+Minori&rft.date=2021-11-01&rft.pub=Springer+Singapore&rft.issn=1434-5161&rft.eissn=1435-232X&rft.volume=66&rft.issue=11&rft.spage=1039&rft.epage=1041&rft_id=info:doi/10.1038%2Fs10038-021-00923-z&rft_id=info%3Apmid%2F33972679&rft.externalDocID=PMC8542510
thumbnail_l	http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/lc.gif&issn=1434-5161&client=summon
thumbnail_m	http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/mc.gif&issn=1434-5161&client=summon
thumbnail_s	http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/sc.gif&issn=1434-5161&client=summon